Starting 10th month on ZELBORAF

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  • Post
    • July 10, 2012 at 10:11 pm
    aldakota22
    Participant

      Today opened up new bottle of Zelboraf.Starting month #10.Drug is working so good that after the June 26 visit with my melanoma specialist dr. at NYU Cancer Center I am able to skip a July visit and actually see D.

      Today opened up new bottle of Zelboraf.Starting month #10.Drug is working so good that after the June 26 visit with my melanoma specialist dr. at NYU Cancer Center I am able to skip a July visit and actually see D. Pavalik at the end of August.Will have Cat scans done at that time.Pray that the "Z" keeps working.Keep all the warriors and their loved ones in my daily prayers.Still to many sad posts that I just wanted to post a positive post .There is hope and I beleive that the medical researches are closing in on a chronic treatment for this horrible disease.All the best to everyone out there in our fight.  Al

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    • Replies
        • July 10, 2012 at 10:29 pm
        JC
        Participant

          I see you were initially Stage I.  What was your stage I pathology if you don't mind my asking? 

          • July 10, 2012 at 10:29 pm
          JC
          Participant

            I see you were initially Stage I.  What was your stage I pathology if you don't mind my asking? 

            • July 10, 2012 at 10:29 pm
            JC
            Participant

              I see you were initially Stage I.  What was your stage I pathology if you don't mind my asking? 

                • July 13, 2012 at 4:21 pm
                H555
                Participant

                  in answer to anonymous my initial melanoma in 1995 was Clark's level III-IV, 1.3mm deep, incompletely excised

                  • July 13, 2012 at 4:21 pm
                  H555
                  Participant

                    in answer to anonymous my initial melanoma in 1995 was Clark's level III-IV, 1.3mm deep, incompletely excised

                    • July 13, 2012 at 4:21 pm
                    H555
                    Participant

                      in answer to anonymous my initial melanoma in 1995 was Clark's level III-IV, 1.3mm deep, incompletely excised

                    • July 11, 2012 at 4:11 am
                    gabsound
                    Participant
                      Al,

                      Congratulations! May you have long term control with this drug. Thank you also for all the support you give others on this board.

                      Julie in Las Vegas

                      • July 11, 2012 at 4:11 am
                      gabsound
                      Participant
                        Al,

                        Congratulations! May you have long term control with this drug. Thank you also for all the support you give others on this board.

                        Julie in Las Vegas

                        • July 11, 2012 at 4:11 am
                        gabsound
                        Participant
                          Al,

                          Congratulations! May you have long term control with this drug. Thank you also for all the support you give others on this board.

                          Julie in Las Vegas

                          • July 11, 2012 at 2:17 pm
                          awillett1991
                          Participant
                            Congrats!
                            • July 11, 2012 at 2:17 pm
                            awillett1991
                            Participant
                              Congrats!
                              • July 11, 2012 at 2:17 pm
                              awillett1991
                              Participant
                                Congrats!
                                • July 11, 2012 at 5:44 pm
                                Richard_K
                                Participant

                                   

                                  Al

                                  Way to go! I didn’t realize we both were patients of Dr. Pavlick.  I can relate to your elation upon moving to two month follow-ups.  I remember how happy I was when I changed from three week to six week appointments.  At my last visit, it was mentioned they were going to try to get my scans changed to every twelve weeks from the current six.

                                  Dick

                                  • July 11, 2012 at 5:44 pm
                                  Richard_K
                                  Participant

                                     

                                    Al

                                    Way to go! I didn’t realize we both were patients of Dr. Pavlick.  I can relate to your elation upon moving to two month follow-ups.  I remember how happy I was when I changed from three week to six week appointments.  At my last visit, it was mentioned they were going to try to get my scans changed to every twelve weeks from the current six.

                                    Dick

                                    • July 11, 2012 at 5:44 pm
                                    Richard_K
                                    Participant

                                       

                                      Al

                                      Way to go! I didn’t realize we both were patients of Dr. Pavlick.  I can relate to your elation upon moving to two month follow-ups.  I remember how happy I was when I changed from three week to six week appointments.  At my last visit, it was mentioned they were going to try to get my scans changed to every twelve weeks from the current six.

                                      Dick

                                      • July 12, 2012 at 5:26 am
                                      H555
                                      Participant

                                        hoorah! i'm starting month 3, about to head to Kenya via Cairo to visit my son who's in the Peace Corps. 3 months ago i was one sick puppy with numerous mets in my lungs and a semi blocked airway. Congrats to you. I hope I can emulate your progress.  I had a chest xray on Monday for a cough, lungs look even better than last CT scan and i'm just getting over radiation residuals. it's so good to see an increasing number of us doing well on Zelboraf.

                                        • July 12, 2012 at 5:26 am
                                        H555
                                        Participant

                                          hoorah! i'm starting month 3, about to head to Kenya via Cairo to visit my son who's in the Peace Corps. 3 months ago i was one sick puppy with numerous mets in my lungs and a semi blocked airway. Congrats to you. I hope I can emulate your progress.  I had a chest xray on Monday for a cough, lungs look even better than last CT scan and i'm just getting over radiation residuals. it's so good to see an increasing number of us doing well on Zelboraf.

                                            • July 12, 2012 at 9:33 am
                                            JC
                                            Participant

                                              H555, I noticed you were stage I then had recur 16 years later.  If you don't mind my asking, what was your stage I pathology?

                                              • July 12, 2012 at 9:33 am
                                              JC
                                              Participant

                                                H555, I noticed you were stage I then had recur 16 years later.  If you don't mind my asking, what was your stage I pathology?

                                                • July 12, 2012 at 8:05 pm
                                                Snickers60
                                                Participant

                                                  Way to go, AL !  What an encouragement you have been to Wayne and I.   So glad to hear your appts. are getting further

                                                  apart – we are hoping to hear that soon.    This is Wayne 3rd month and as you know he was NED at 7 weeks.   We head back to MDA on Monday for check and in Aug. we do PET etc. all over again.  After that, we are HOPING that the appts. will be less frequent……although that makes me a little nervous too.   🙂 

                                                  WE ARE SO GRATEFUL FOR THIS BOARD, FOR ALL OF YOU and FOR ZEL !   🙂

                                                   

                                                  Nancy (devoted wife of 3X Warrior Wayne ) 

                                                  • July 12, 2012 at 8:05 pm
                                                  Snickers60
                                                  Participant

                                                    Way to go, AL !  What an encouragement you have been to Wayne and I.   So glad to hear your appts. are getting further

                                                    apart – we are hoping to hear that soon.    This is Wayne 3rd month and as you know he was NED at 7 weeks.   We head back to MDA on Monday for check and in Aug. we do PET etc. all over again.  After that, we are HOPING that the appts. will be less frequent……although that makes me a little nervous too.   🙂 

                                                    WE ARE SO GRATEFUL FOR THIS BOARD, FOR ALL OF YOU and FOR ZEL !   🙂

                                                     

                                                    Nancy (devoted wife of 3X Warrior Wayne ) 

                                                    • July 12, 2012 at 8:05 pm
                                                    Snickers60
                                                    Participant

                                                      Way to go, AL !  What an encouragement you have been to Wayne and I.   So glad to hear your appts. are getting further

                                                      apart – we are hoping to hear that soon.    This is Wayne 3rd month and as you know he was NED at 7 weeks.   We head back to MDA on Monday for check and in Aug. we do PET etc. all over again.  After that, we are HOPING that the appts. will be less frequent……although that makes me a little nervous too.   🙂 

                                                      WE ARE SO GRATEFUL FOR THIS BOARD, FOR ALL OF YOU and FOR ZEL !   🙂

                                                       

                                                      Nancy (devoted wife of 3X Warrior Wayne ) 

                                                      • July 13, 2012 at 4:59 am
                                                      H555
                                                      Participant

                                                        i'll have to look it up, i didn't understand it at the time and don't remember it but i do have the path report in my "binder"

                                                        • July 13, 2012 at 4:59 am
                                                        H555
                                                        Participant

                                                          i'll have to look it up, i didn't understand it at the time and don't remember it but i do have the path report in my "binder"

                                                          • July 13, 2012 at 4:59 am
                                                          H555
                                                          Participant

                                                            i'll have to look it up, i didn't understand it at the time and don't remember it but i do have the path report in my "binder"

                                                            • July 12, 2012 at 9:33 am
                                                            JC
                                                            Participant

                                                              H555, I noticed you were stage I then had recur 16 years later.  If you don't mind my asking, what was your stage I pathology?

                                                            • July 12, 2012 at 5:26 am
                                                            H555
                                                            Participant

                                                              hoorah! i'm starting month 3, about to head to Kenya via Cairo to visit my son who's in the Peace Corps. 3 months ago i was one sick puppy with numerous mets in my lungs and a semi blocked airway. Congrats to you. I hope I can emulate your progress.  I had a chest xray on Monday for a cough, lungs look even better than last CT scan and i'm just getting over radiation residuals. it's so good to see an increasing number of us doing well on Zelboraf.

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