Stage 4, multiple lung nodules

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  • Post
    • February 23, 2015 at 9:54 pm
    RGal
    Participant

      My father has just begun a trial of Anti pd-1 trial.  He had one infusion and has been on the  oral inhibitor pills for just about 2 wks now.  After week one he had enough fluid in his lungs to have him hospitalized to drain the lungs.  There is now some sort of mass that the doctors need to break up so they can continue the draining to continue.  Has anyone had a similar experience with lung nodules?  Any info you can share would be most apprectiated.

       

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    • Replies
        • February 24, 2015 at 5:53 am
        Jubes
        Participant

          Hi ,

          I had a large mass in my lungs and they dont know how much of it is melanoma and how much is sarcoidosis.

          I am on Anti PD 1 but the mass has reduced with it, and so has the coughing, so I guess a bit different from your situation.

          I would be interested to know how they continue with your father, as we thought draining the lungs would be good but the doctors did not want to touch it, which I am glad abouot now.

          Anne-Louise

          • February 24, 2015 at 5:53 am
          Jubes
          Participant

            Hi ,

            I had a large mass in my lungs and they dont know how much of it is melanoma and how much is sarcoidosis.

            I am on Anti PD 1 but the mass has reduced with it, and so has the coughing, so I guess a bit different from your situation.

            I would be interested to know how they continue with your father, as we thought draining the lungs would be good but the doctors did not want to touch it, which I am glad abouot now.

            Anne-Louise

            • February 24, 2015 at 5:53 am
            Jubes
            Participant

              Hi ,

              I had a large mass in my lungs and they dont know how much of it is melanoma and how much is sarcoidosis.

              I am on Anti PD 1 but the mass has reduced with it, and so has the coughing, so I guess a bit different from your situation.

              I would be interested to know how they continue with your father, as we thought draining the lungs would be good but the doctors did not want to touch it, which I am glad abouot now.

              Anne-Louise

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