Six Months on Zelboraf

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  • Post
    • March 12, 2012 at 9:59 pm
    aldakota22
    Participant

      Today I just completed my sixth month on Zelboraf.Drug for me is working as hoped.Have not had a scan of any kind since late last July 2011.Will see doc on the 3/21 and schedule one soon after.Side effects on drug are do able.Hoping to stay on this treatment for a lifetime as progress is being made on managing melanoma as a chronic disease.,Praying for myself and all other fighters out there. Thanks for keeping me in your thoughts….Al

      Today I just completed my sixth month on Zelboraf.Drug for me is working as hoped.Have not had a scan of any kind since late last July 2011.Will see doc on the 3/21 and schedule one soon after.Side effects on drug are do able.Hoping to stay on this treatment for a lifetime as progress is being made on managing melanoma as a chronic disease.,Praying for myself and all other fighters out there. Thanks for keeping me in your thoughts….Al

    Viewing 11 reply threads
    • Replies
        • March 12, 2012 at 11:47 pm
        hope4cure1
        Participant

          Al,keep it up!  You're an inspiration to us all 🙂

          Hope

          • March 12, 2012 at 11:47 pm
          hope4cure1
          Participant

            Al,keep it up!  You're an inspiration to us all 🙂

            Hope

            • March 12, 2012 at 11:47 pm
            hope4cure1
            Participant

              Al,keep it up!  You're an inspiration to us all 🙂

              Hope

              • March 12, 2012 at 11:50 pm
              washoegal
              Participant

                Curious, why no scans in so long?  Where were your mets?  I check profile and it wasn't clear?  I am just curious how you know it working if no scans but so happy for you.  I hope it keeps working for a very, very long time.  Also BRAF+

                Mary

                Stage3

                  • March 13, 2012 at 12:35 am
                  deardad
                  Participant

                    Hi yes I am curious they haven't scanned you either? My dad is on his 7 month and has been having monthly scans up  until the 6 months mark when they go to 3 monthly scans. Regardless of that, Im glad the drugs are working and I too am hoping that this can be managed as chronic disease. I have to remain cautious because no-one can know what melanoma does in one individual to another and from the beginning we were told that there's a 0!!!! chance that the disease had spread to the blood (even I knew this was a big call considering his histology). 

                    Anyway we all hope for the best and need to remain positive especially considering the research of current.

                    Nahmi

                    • March 13, 2012 at 12:35 am
                    deardad
                    Participant

                      Hi yes I am curious they haven't scanned you either? My dad is on his 7 month and has been having monthly scans up  until the 6 months mark when they go to 3 monthly scans. Regardless of that, Im glad the drugs are working and I too am hoping that this can be managed as chronic disease. I have to remain cautious because no-one can know what melanoma does in one individual to another and from the beginning we were told that there's a 0!!!! chance that the disease had spread to the blood (even I knew this was a big call considering his histology). 

                      Anyway we all hope for the best and need to remain positive especially considering the research of current.

                      Nahmi

                      • March 13, 2012 at 12:35 am
                      deardad
                      Participant

                        Hi yes I am curious they haven't scanned you either? My dad is on his 7 month and has been having monthly scans up  until the 6 months mark when they go to 3 monthly scans. Regardless of that, Im glad the drugs are working and I too am hoping that this can be managed as chronic disease. I have to remain cautious because no-one can know what melanoma does in one individual to another and from the beginning we were told that there's a 0!!!! chance that the disease had spread to the blood (even I knew this was a big call considering his histology). 

                        Anyway we all hope for the best and need to remain positive especially considering the research of current.

                        Nahmi

                        • March 13, 2012 at 12:47 am
                        aldakota22
                        Participant

                          I am not as informed as so many of you are.Do not know when you ask for mets what they are. As for it working it was very obvious as a small growth on the neck.With in a week it shrunk and is no longer felt or visible.Will get the scans as soon as possible.All my lab blood work is always positive with good numbers when I visit oncologist.Will probably be searching for a melanoma specialist soon.Thanks for the good wishes.want the same foe all of us.

                          • March 13, 2012 at 4:26 pm
                          Linny
                          Participant

                            "Mets" is short for Metastasis. PETscans and/or CT scans are generally used to check for them. My understanding is that how often you have them depends on the type of treatment you've opted for and how far past the original diagnosis date you are. If your scans are clean it means the melanoma has not spread (metastasized) to other organs.

                            Glad to hear your labwork is good!

                            • March 13, 2012 at 4:26 pm
                            Linny
                            Participant

                              "Mets" is short for Metastasis. PETscans and/or CT scans are generally used to check for them. My understanding is that how often you have them depends on the type of treatment you've opted for and how far past the original diagnosis date you are. If your scans are clean it means the melanoma has not spread (metastasized) to other organs.

                              Glad to hear your labwork is good!

                              • March 13, 2012 at 4:26 pm
                              Linny
                              Participant

                                "Mets" is short for Metastasis. PETscans and/or CT scans are generally used to check for them. My understanding is that how often you have them depends on the type of treatment you've opted for and how far past the original diagnosis date you are. If your scans are clean it means the melanoma has not spread (metastasized) to other organs.

                                Glad to hear your labwork is good!

                                • March 13, 2012 at 12:47 am
                                aldakota22
                                Participant

                                  I am not as informed as so many of you are.Do not know when you ask for mets what they are. As for it working it was very obvious as a small growth on the neck.With in a week it shrunk and is no longer felt or visible.Will get the scans as soon as possible.All my lab blood work is always positive with good numbers when I visit oncologist.Will probably be searching for a melanoma specialist soon.Thanks for the good wishes.want the same foe all of us.

                                  • March 13, 2012 at 12:47 am
                                  aldakota22
                                  Participant

                                    I am not as informed as so many of you are.Do not know when you ask for mets what they are. As for it working it was very obvious as a small growth on the neck.With in a week it shrunk and is no longer felt or visible.Will get the scans as soon as possible.All my lab blood work is always positive with good numbers when I visit oncologist.Will probably be searching for a melanoma specialist soon.Thanks for the good wishes.want the same foe all of us.

                                  • March 12, 2012 at 11:50 pm
                                  washoegal
                                  Participant

                                    Curious, why no scans in so long?  Where were your mets?  I check profile and it wasn't clear?  I am just curious how you know it working if no scans but so happy for you.  I hope it keeps working for a very, very long time.  Also BRAF+

                                    Mary

                                    Stage3

                                    • March 12, 2012 at 11:50 pm
                                    washoegal
                                    Participant

                                      Curious, why no scans in so long?  Where were your mets?  I check profile and it wasn't clear?  I am just curious how you know it working if no scans but so happy for you.  I hope it keeps working for a very, very long time.  Also BRAF+

                                      Mary

                                      Stage3

                                      • March 13, 2012 at 12:46 am
                                      Theresa123
                                      Participant

                                        You go girl!!  you are an inspiration.  Especially since I might be on Zelboraf soon.  What are the side effects?  I heard warts, of all things.  Does it stop working after a certain time?

                                        stay in there!

                                        • March 13, 2012 at 12:46 am
                                        Theresa123
                                        Participant

                                          You go girl!!  you are an inspiration.  Especially since I might be on Zelboraf soon.  What are the side effects?  I heard warts, of all things.  Does it stop working after a certain time?

                                          stay in there!

                                          • March 13, 2012 at 12:46 am
                                          Theresa123
                                          Participant

                                            You go girl!!  you are an inspiration.  Especially since I might be on Zelboraf soon.  What are the side effects?  I heard warts, of all things.  Does it stop working after a certain time?

                                            stay in there!

                                            • March 13, 2012 at 1:27 pm
                                            Richard_K
                                            Participant

                                              Al

                                              Great news.  I always like to hear of other people doing well on Zelboraf.  Keep it going.

                                              Dick

                                              • March 13, 2012 at 1:27 pm
                                              Richard_K
                                              Participant

                                                Al

                                                Great news.  I always like to hear of other people doing well on Zelboraf.  Keep it going.

                                                Dick

                                                • March 13, 2012 at 1:27 pm
                                                Richard_K
                                                Participant

                                                  Al

                                                  Great news.  I always like to hear of other people doing well on Zelboraf.  Keep it going.

                                                  Dick

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