Quite an update.

Forums General Melanoma Community Quite an update.

  • Post
    himynameiskevin
    Participant

      Well, I had a seizure yesterday, apparently one of the tumors in my brain, even though the biggest is only about 1cm, the swelling around it appeared to have disrupted some functions and a seizure occurred. Luckily I was at home, right here. I started to feel, a bit funny, kind of dizzy or out of it. I got up and walked to Brenda, as I was coming around the couch, my vision and ability to stand started to go, I remember telling her something was wrong, to call an ambulance, and I started saying a few panicky, emotional last words, because I thought this was it. It was really scary.

      Well, I had a seizure yesterday, apparently one of the tumors in my brain, even though the biggest is only about 1cm, the swelling around it appeared to have disrupted some functions and a seizure occurred. Luckily I was at home, right here. I started to feel, a bit funny, kind of dizzy or out of it. I got up and walked to Brenda, as I was coming around the couch, my vision and ability to stand started to go, I remember telling her something was wrong, to call an ambulance, and I started saying a few panicky, emotional last words, because I thought this was it. It was really scary. Not knowing what was going on, I thought this was the end of me. I heard her yelling my name and everything went black. I woke up disoriented in an ambulance maybe 25 mins later. It wasn't until I was in the ER that I became fully aware of what was going on and what happened. Long story short, it was most likely the swelling that caused the seizure, they watched all my vitals for a couple hours, did a CT scan of my brain, called my doctor and gave me an anti-seizure medication. Then sent me home.

      This morning I went to get my mask fitted for the SRS I'll be getting soon. Good news is, it's finally under way. Next Wednesday, all 4 will be getting zapped. The bad news is the  detailed "mapping" MRI they gave me last Friday revealed four new miniscule ones the last standard MRI didn't catch. They're tiny though, too small to even zap at this point. So in four weeks I'll have another MRI and they plan to zap out the remaining four right around then. Though they didn't want to do it, today they decided to put me on a low dose steroid to stop the swelling in my brain, I know it's not good for my immune system and past treatments, but it's kind of necessary right now, they plan to taper me off as soon as possible.

      Lastly, tomorrow I'll be seeing an oncologist I haven't seen in a year and a half to be referred to the oncologist who's been taking care of me for the last year and a half. A CT of my chest will be ordered and in about two weeks we'll discuss that and any other possible treatments for me to try out.

      Always hoping for the best.. for all of us.

      Thanks for reading,
      -Kevin

    Viewing 20 reply threads
    • Replies
        aldakota22
        Participant

          Kevin,Hang in there. Only have a small feeling of what you are going thru.Want you and every one else on this site to kick cancers ass.keep posting and my prayers go out to you and family

          aldakota22
          Participant

            Kevin,Hang in there. Only have a small feeling of what you are going thru.Want you and every one else on this site to kick cancers ass.keep posting and my prayers go out to you and family

            aldakota22
            Participant

              Kevin,Hang in there. Only have a small feeling of what you are going thru.Want you and every one else on this site to kick cancers ass.keep posting and my prayers go out to you and family

              lhaley
              Participant

                So scary..     I'm hoping that the srs takes care of all of the issues.     

                I have my brain mapping tomorrow for my crainectomy on Friday.  That is also my greatest fear that something else shows up.  My last mri was a month ago and so much edema it looks like a fog!     

                The steroids are horrible. I just hope they can wean you quickly.  

                cyber hugs,

                linda

                  Vermont_Donna
                  Participant

                    Hi Kevin,

                    Pretty scary stuff! Glad you are getting started on taking care of those brain mets. Thanks for posting your updates, I think of you often and like to know what is going on…sending you lots of positive thoughts!

                    Vermont_Donna, stage 3a, NED

                    Vermont_Donna
                    Participant

                      Hi Kevin,

                      Pretty scary stuff! Glad you are getting started on taking care of those brain mets. Thanks for posting your updates, I think of you often and like to know what is going on…sending you lots of positive thoughts!

                      Vermont_Donna, stage 3a, NED

                      Vermont_Donna
                      Participant

                        Hi Kevin,

                        Pretty scary stuff! Glad you are getting started on taking care of those brain mets. Thanks for posting your updates, I think of you often and like to know what is going on…sending you lots of positive thoughts!

                        Vermont_Donna, stage 3a, NED

                      lhaley
                      Participant

                        So scary..     I'm hoping that the srs takes care of all of the issues.     

                        I have my brain mapping tomorrow for my crainectomy on Friday.  That is also my greatest fear that something else shows up.  My last mri was a month ago and so much edema it looks like a fog!     

                        The steroids are horrible. I just hope they can wean you quickly.  

                        cyber hugs,

                        linda

                        lhaley
                        Participant

                          So scary..     I'm hoping that the srs takes care of all of the issues.     

                          I have my brain mapping tomorrow for my crainectomy on Friday.  That is also my greatest fear that something else shows up.  My last mri was a month ago and so much edema it looks like a fog!     

                          The steroids are horrible. I just hope they can wean you quickly.  

                          cyber hugs,

                          linda

                          Fen
                          Participant

                            Kevin – so glad you have a plan in place.  Medical community – or probably insurance – sets some odd hoops to jump through.  At least you'll wind up with your regular oncologist.  Please keep posting – I fret if I don't hear from you.  Sending huge positive vibes.

                            Fen

                              deardad
                              Participant

                                Sorry to hear what you've been through Kevin, hang tight and stay positive. Good to hear that things are going ahead treatment wise for you.

                                Take care

                                Nahmi from Melbourne

                                deardad
                                Participant

                                  Sorry to hear what you've been through Kevin, hang tight and stay positive. Good to hear that things are going ahead treatment wise for you.

                                  Take care

                                  Nahmi from Melbourne

                                  deardad
                                  Participant

                                    Sorry to hear what you've been through Kevin, hang tight and stay positive. Good to hear that things are going ahead treatment wise for you.

                                    Take care

                                    Nahmi from Melbourne

                                  Fen
                                  Participant

                                    Kevin – so glad you have a plan in place.  Medical community – or probably insurance – sets some odd hoops to jump through.  At least you'll wind up with your regular oncologist.  Please keep posting – I fret if I don't hear from you.  Sending huge positive vibes.

                                    Fen

                                    Fen
                                    Participant

                                      Kevin – so glad you have a plan in place.  Medical community – or probably insurance – sets some odd hoops to jump through.  At least you'll wind up with your regular oncologist.  Please keep posting – I fret if I don't hear from you.  Sending huge positive vibes.

                                      Fen

                                      LynnLuc
                                      Participant

                                        Hope everything goes fine! Sorry to hear about the new mets.

                                        LynnLuc
                                        Participant

                                          Hope everything goes fine! Sorry to hear about the new mets.

                                          LynnLuc
                                          Participant

                                            Hope everything goes fine! Sorry to hear about the new mets.

                                            hope4cure1
                                            Participant

                                              Hey Kevin.  I hope you know that a bunch of people are pulling for you.  It's good that your treatment team has a sound plan and are watching out for you.  I'll keep you in my prayers. Hang in there!

                                              hope4cure1
                                              Participant

                                                Hey Kevin.  I hope you know that a bunch of people are pulling for you.  It's good that your treatment team has a sound plan and are watching out for you.  I'll keep you in my prayers. Hang in there!

                                                hope4cure1
                                                Participant

                                                  Hey Kevin.  I hope you know that a bunch of people are pulling for you.  It's good that your treatment team has a sound plan and are watching out for you.  I'll keep you in my prayers. Hang in there!

                                                  justlittleoleme
                                                  Participant

                                                    Kevin,

                                                    praying for you.

                                                    barb

                                                    justlittleoleme
                                                    Participant

                                                      Kevin,

                                                      praying for you.

                                                      barb

                                                      justlittleoleme
                                                      Participant

                                                        Kevin,

                                                        praying for you.

                                                        barb

                                                        JerryfromFauq
                                                        Participant

                                                          Get'em ZAPPED!  Then get the other 4 zapped and hopefully they stay gone.  Pulling for and praying for you.  Good Luck.

                                                          JerryfromFauq
                                                          Participant

                                                            Get'em ZAPPED!  Then get the other 4 zapped and hopefully they stay gone.  Pulling for and praying for you.  Good Luck.

                                                            JerryfromFauq
                                                            Participant

                                                              Get'em ZAPPED!  Then get the other 4 zapped and hopefully they stay gone.  Pulling for and praying for you.  Good Luck.

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