Question for Gene S or other ipi users

› Forums › General Melanoma Community › Question for Gene S or other ipi users

  • Post
    • August 9, 2011 at 10:29 pm
    Lisa13
    Participant

      Since ending dacarbazine a month ago, I started going back into my vitamin and supplement program. Mainly I focus on high does of Vitamin C, Vitamin D and a Potent Multi Vitamin and some green tea extract.

      Tomorrow I start ipi and assume I won't be able to take any of these supplements during the trial – is this true or have others taken vitamins while on ipi? Gene S – you had mentioned back in June taking high dose Vitamin D and even red wine 🙂 Was this okay with your oncologist or did you go against his suggestion? Can you enjoy a glass of wine on ipi? 

      Since ending dacarbazine a month ago, I started going back into my vitamin and supplement program. Mainly I focus on high does of Vitamin C, Vitamin D and a Potent Multi Vitamin and some green tea extract.

      Tomorrow I start ipi and assume I won't be able to take any of these supplements during the trial – is this true or have others taken vitamins while on ipi? Gene S – you had mentioned back in June taking high dose Vitamin D and even red wine 🙂 Was this okay with your oncologist or did you go against his suggestion? Can you enjoy a glass of wine on ipi? 

      Lisa – Stage 4

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    • Replies
        • August 9, 2011 at 11:41 pm
        Rocco
        Participant

          Hi Lisa,

          Good luck with ipi.  I hope all goes well for you.  While I was on ipi in the Compassionate Use Trial I still took my 2,000 IU of Vit D daily and a multi-vitamin.  I had been taking a number of other vitamins prior to enrolling in the trial, but it was suggested that I narrow down to just Vit D and multi.

          Your Onc and others on this board may have other opnions or direction.

          Rocco, Stage IV,ipi responder!

          • August 9, 2011 at 11:41 pm
          Rocco
          Participant

            Hi Lisa,

            Good luck with ipi.  I hope all goes well for you.  While I was on ipi in the Compassionate Use Trial I still took my 2,000 IU of Vit D daily and a multi-vitamin.  I had been taking a number of other vitamins prior to enrolling in the trial, but it was suggested that I narrow down to just Vit D and multi.

            Your Onc and others on this board may have other opnions or direction.

            Rocco, Stage IV,ipi responder!

            • August 10, 2011 at 12:38 am
            Nan in Nebraska
            Participant

              Hi Lisa,

              I took a multi-vitamin, omega 3 and probiotic while I was on the compassionate use trial. I had very little side effects – rash, controlled with benadryl and slight diarreha controlled with Imodium.

              Good luck,

              Nan in Nebraska

              • August 10, 2011 at 12:38 am
              Nan in Nebraska
              Participant

                Hi Lisa,

                I took a multi-vitamin, omega 3 and probiotic while I was on the compassionate use trial. I had very little side effects – rash, controlled with benadryl and slight diarreha controlled with Imodium.

                Good luck,

                Nan in Nebraska

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