Possible recurrence after ipi/nivo

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    • May 10, 2016 at 12:05 am
    knittingirl
    Participant

      I was diagnosed stage 3b in September 2015 ( lymph node in my left groin). I have been treated then at UCSF. First I had a  ipi/nivo combo but had to stop after the 3rd infusion due to severe colitis that lasted 1 month and a half. I had a scan beginning of February and was declared NED. I went through surgery in March for a CLND of left groin and the pathology confirmed the scan: no cancerous cell. I was so happy !

      I had an other scan last week and my manubrium and pubis bone show a SUV of 9.5 and 8 . Oncologist wants me to get an MRI this Friday.  Is there any other explanation ( except cancer) that could explain this high level of SUV ? I am confused as I thought that my immune system would still be active 5 months after the last infusion of ipi/nivo.

      Is there anyone who went through ipi/nivo and see his tumor disapeared and few months later got a recurrence ?

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