› Forums › General Melanoma Community › Port for Keytruda
- This topic has 36 replies, 9 voices, and was last updated 10 years, 10 months ago by
_Paul_.
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- April 29, 2015 at 1:25 pm
I just had my 4th Keytruda infusion yesterday and it seems things are going well. My oncologist does not seem too concerned about giving me a scan right away as my blood work is good and I am not exhibiting any symptoms from the melanoma. My last scan was in January, and he thinks July sounds like a good time for the next one.
It appears to have stopped a new tumor on my shoulder which had grown 10 times in volume from December to January. If it was still growing at that rate I would not be on my keyboard right now!
So it seems like I will be on Keytruda for the forseeable future. Do you think it is worth getting a port?
Thanks! – Paul.
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- April 29, 2015 at 1:42 pm
Paul,
I have one and think it's great. If you have good veins and both arms are usable you can probably get by without one. I'm limited to one arm and my veins are not very good so it was a no brainer for me. I've had mine for about 18 months and it really hasn't had any negative impact on my quality on life.
Brian
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- April 29, 2015 at 1:42 pm
Paul,
I have one and think it's great. If you have good veins and both arms are usable you can probably get by without one. I'm limited to one arm and my veins are not very good so it was a no brainer for me. I've had mine for about 18 months and it really hasn't had any negative impact on my quality on life.
Brian
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- April 29, 2015 at 1:42 pm
Paul,
I have one and think it's great. If you have good veins and both arms are usable you can probably get by without one. I'm limited to one arm and my veins are not very good so it was a no brainer for me. I've had mine for about 18 months and it really hasn't had any negative impact on my quality on life.
Brian
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- April 29, 2015 at 2:45 pm
Paul, we're on a similar schedule. I had my 4th infusion last week. I considered a port. I decided against it when I learned that they will not use it for drawing blood. I figure that if they need to stick me at each infusion for blood, what's the difference? (I also have young kids and would worry about the port getting knocked around, though I'm not sure that this latter point is a legitimate concern.)
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- April 29, 2015 at 4:52 pm
I've never heard that before Mat. I use mine for everything, blood draws, infusions, contrast for scans.
I live a pretty active life style and haven't had any issues with my port. I battle my son all the time and haven't had any port mishaps. He's only 4 now so when he gets older and starts kicking my butt it may be a different story!
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- April 29, 2015 at 4:52 pm
I've never heard that before Mat. I use mine for everything, blood draws, infusions, contrast for scans.
I live a pretty active life style and haven't had any issues with my port. I battle my son all the time and haven't had any port mishaps. He's only 4 now so when he gets older and starts kicking my butt it may be a different story!
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- April 29, 2015 at 4:52 pm
I've never heard that before Mat. I use mine for everything, blood draws, infusions, contrast for scans.
I live a pretty active life style and haven't had any issues with my port. I battle my son all the time and haven't had any port mishaps. He's only 4 now so when he gets older and starts kicking my butt it may be a different story!
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- April 29, 2015 at 2:45 pm
Paul, we're on a similar schedule. I had my 4th infusion last week. I considered a port. I decided against it when I learned that they will not use it for drawing blood. I figure that if they need to stick me at each infusion for blood, what's the difference? (I also have young kids and would worry about the port getting knocked around, though I'm not sure that this latter point is a legitimate concern.)
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- April 29, 2015 at 2:45 pm
Paul, we're on a similar schedule. I had my 4th infusion last week. I considered a port. I decided against it when I learned that they will not use it for drawing blood. I figure that if they need to stick me at each infusion for blood, what's the difference? (I also have young kids and would worry about the port getting knocked around, though I'm not sure that this latter point is a legitimate concern.)
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- April 29, 2015 at 3:31 pm
Hey Paul!
I'm a few infusions behind you and am considering the same thing. I only have one useable arm and I am so bruised I'm starting to look like a junkie that doesn't care anymore. So I'm seriously considering it. Especially if I'm on Pembro for the foreseeable future.
I've been told that they can be used for blood draws, too.
I'll let you know what I end up doing.
Julie
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- April 29, 2015 at 3:31 pm
Hey Paul!
I'm a few infusions behind you and am considering the same thing. I only have one useable arm and I am so bruised I'm starting to look like a junkie that doesn't care anymore. So I'm seriously considering it. Especially if I'm on Pembro for the foreseeable future.
I've been told that they can be used for blood draws, too.
I'll let you know what I end up doing.
Julie
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- April 29, 2015 at 3:31 pm
Hey Paul!
I'm a few infusions behind you and am considering the same thing. I only have one useable arm and I am so bruised I'm starting to look like a junkie that doesn't care anymore. So I'm seriously considering it. Especially if I'm on Pembro for the foreseeable future.
I've been told that they can be used for blood draws, too.
I'll let you know what I end up doing.
Julie
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- April 29, 2015 at 6:04 pm
Hi Paul,
I know they've actually done some outcomes studies based on type of vascular access device a patient uses. Ports have lower rates of infection, etc. I actually used to be involved in dialysis research and one of the main areas of outcome studies for hemodialysis patients was how (what type of access) a patient received treatment. I thought this was a good description
I do have a "funny" story from when my mom had cancer (she passed away several years ago). She was getting chemotherapy and the nurse could never hit her veins and had to take several shots at it. My mom had very tough hands and had a very high tolerance and tried to reassure the nurse that she was not in any pain. However, the very empathetic nurse would burst into tears when trying to get the IV in and my mom would try to console her and tell her it was ok, even brought her in cookies and brownies. This nurse was so empathetic with her patients, she was just a sweetheart and she really felt like she was hurting my mom. My mom ended up getting a port just so she wouldn't stress the nurse out! 🙂
Good luck!
Jackie
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- April 29, 2015 at 6:04 pm
Hi Paul,
I know they've actually done some outcomes studies based on type of vascular access device a patient uses. Ports have lower rates of infection, etc. I actually used to be involved in dialysis research and one of the main areas of outcome studies for hemodialysis patients was how (what type of access) a patient received treatment. I thought this was a good description
I do have a "funny" story from when my mom had cancer (she passed away several years ago). She was getting chemotherapy and the nurse could never hit her veins and had to take several shots at it. My mom had very tough hands and had a very high tolerance and tried to reassure the nurse that she was not in any pain. However, the very empathetic nurse would burst into tears when trying to get the IV in and my mom would try to console her and tell her it was ok, even brought her in cookies and brownies. This nurse was so empathetic with her patients, she was just a sweetheart and she really felt like she was hurting my mom. My mom ended up getting a port just so she wouldn't stress the nurse out! 🙂
Good luck!
Jackie
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- April 29, 2015 at 6:04 pm
Hi Paul,
I know they've actually done some outcomes studies based on type of vascular access device a patient uses. Ports have lower rates of infection, etc. I actually used to be involved in dialysis research and one of the main areas of outcome studies for hemodialysis patients was how (what type of access) a patient received treatment. I thought this was a good description
I do have a "funny" story from when my mom had cancer (she passed away several years ago). She was getting chemotherapy and the nurse could never hit her veins and had to take several shots at it. My mom had very tough hands and had a very high tolerance and tried to reassure the nurse that she was not in any pain. However, the very empathetic nurse would burst into tears when trying to get the IV in and my mom would try to console her and tell her it was ok, even brought her in cookies and brownies. This nurse was so empathetic with her patients, she was just a sweetheart and she really felt like she was hurting my mom. My mom ended up getting a port just so she wouldn't stress the nurse out! 🙂
Good luck!
Jackie
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- April 29, 2015 at 6:28 pm
Hey Paul, I been on a BMS study of Ipi and Nivolumab for 16 months now. I decided not to do the port line since I try to still be as active as possible. I still lift weights and mountain bike from time to time. The Ottawa General hospital did a study a couple of years ago and found that there was an increased risk for getting blood clots for people who are very active and have a Pic or port. I must admit that I am getting tired of getting picked for scans every 6 weeks, brain Mri every 3 months and blood draws and treatments every two weeks. Wishing you the best!!! Ed
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- April 29, 2015 at 6:28 pm
Hey Paul, I been on a BMS study of Ipi and Nivolumab for 16 months now. I decided not to do the port line since I try to still be as active as possible. I still lift weights and mountain bike from time to time. The Ottawa General hospital did a study a couple of years ago and found that there was an increased risk for getting blood clots for people who are very active and have a Pic or port. I must admit that I am getting tired of getting picked for scans every 6 weeks, brain Mri every 3 months and blood draws and treatments every two weeks. Wishing you the best!!! Ed
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- April 29, 2015 at 6:28 pm
Hey Paul, I been on a BMS study of Ipi and Nivolumab for 16 months now. I decided not to do the port line since I try to still be as active as possible. I still lift weights and mountain bike from time to time. The Ottawa General hospital did a study a couple of years ago and found that there was an increased risk for getting blood clots for people who are very active and have a Pic or port. I must admit that I am getting tired of getting picked for scans every 6 weeks, brain Mri every 3 months and blood draws and treatments every two weeks. Wishing you the best!!! Ed
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- April 29, 2015 at 9:31 pm
I almost got a port but was having problems choking so now better but haven't had it done yet. A power port can be used for everything except pet scans as far as I was told. So basically blood draws, iv meds, ct and mri scans. A non power port has limitations for what it can be used for but they are smaller. One of my older posts I think from dec has some info about ports especially what Celeste said about things you need to make sure you know so you make sure the nurses use it right.
Artie
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- April 29, 2015 at 9:31 pm
I almost got a port but was having problems choking so now better but haven't had it done yet. A power port can be used for everything except pet scans as far as I was told. So basically blood draws, iv meds, ct and mri scans. A non power port has limitations for what it can be used for but they are smaller. One of my older posts I think from dec has some info about ports especially what Celeste said about things you need to make sure you know so you make sure the nurses use it right.
Artie
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- April 29, 2015 at 9:31 pm
I almost got a port but was having problems choking so now better but haven't had it done yet. A power port can be used for everything except pet scans as far as I was told. So basically blood draws, iv meds, ct and mri scans. A non power port has limitations for what it can be used for but they are smaller. One of my older posts I think from dec has some info about ports especially what Celeste said about things you need to make sure you know so you make sure the nurses use it right.
Artie
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- April 30, 2015 at 3:01 am
I'm on a similar schedule as several others here, and with an undertermined number of future Pembro infusions, as well as blood draws, scan contrast dyes, I opted for the port which will be used for all sticks.
I'm already glad I did, and now, barely two weeks after port installation, I'm heading to the swimming pool.
Best wishes for a full and durable response!
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- May 1, 2015 at 9:30 pm
My friend who had breast cancer did not opt for a port and she regrets it. After so many sticks, the veins start to scar and it makes it very difficult to access down the road. The veins can get so damaged that IV fluids, medication, and blood draws are impossible to do. Sometimes, blood needs to be drawn for the feet, between the toes, etc. I would definitely look seriously at a port if you are looking at years of infusions and scans.
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- May 1, 2015 at 9:30 pm
My friend who had breast cancer did not opt for a port and she regrets it. After so many sticks, the veins start to scar and it makes it very difficult to access down the road. The veins can get so damaged that IV fluids, medication, and blood draws are impossible to do. Sometimes, blood needs to be drawn for the feet, between the toes, etc. I would definitely look seriously at a port if you are looking at years of infusions and scans.
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- May 1, 2015 at 9:30 pm
My friend who had breast cancer did not opt for a port and she regrets it. After so many sticks, the veins start to scar and it makes it very difficult to access down the road. The veins can get so damaged that IV fluids, medication, and blood draws are impossible to do. Sometimes, blood needs to be drawn for the feet, between the toes, etc. I would definitely look seriously at a port if you are looking at years of infusions and scans.
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- April 30, 2015 at 3:01 am
I'm on a similar schedule as several others here, and with an undertermined number of future Pembro infusions, as well as blood draws, scan contrast dyes, I opted for the port which will be used for all sticks.
I'm already glad I did, and now, barely two weeks after port installation, I'm heading to the swimming pool.
Best wishes for a full and durable response!
-
- April 30, 2015 at 3:01 am
I'm on a similar schedule as several others here, and with an undertermined number of future Pembro infusions, as well as blood draws, scan contrast dyes, I opted for the port which will be used for all sticks.
I'm already glad I did, and now, barely two weeks after port installation, I'm heading to the swimming pool.
Best wishes for a full and durable response!
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- May 2, 2015 at 12:53 pm
Thanks everybody for your replies. I decided to go for it and I will get it installed this coming Wednesday. I have good veins right now, but between the infusions every three weeks and the frequent blood samples my endocrinologist needs it seems like the proactive thing to do.
Plus I attended my first ever cancer support group the other night and one of the folks there was happy to show me hers which really didn't look like that big a deal. She warned me to make sure to get it placed away from where my seat belt lies so I think I will draw the outline with pen on my shoulder the morning of.
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- May 2, 2015 at 12:53 pm
Thanks everybody for your replies. I decided to go for it and I will get it installed this coming Wednesday. I have good veins right now, but between the infusions every three weeks and the frequent blood samples my endocrinologist needs it seems like the proactive thing to do.
Plus I attended my first ever cancer support group the other night and one of the folks there was happy to show me hers which really didn't look like that big a deal. She warned me to make sure to get it placed away from where my seat belt lies so I think I will draw the outline with pen on my shoulder the morning of.
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- May 2, 2015 at 12:53 pm
Thanks everybody for your replies. I decided to go for it and I will get it installed this coming Wednesday. I have good veins right now, but between the infusions every three weeks and the frequent blood samples my endocrinologist needs it seems like the proactive thing to do.
Plus I attended my first ever cancer support group the other night and one of the folks there was happy to show me hers which really didn't look like that big a deal. She warned me to make sure to get it placed away from where my seat belt lies so I think I will draw the outline with pen on my shoulder the morning of.
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