Port for Keytruda

Forums General Melanoma Community Port for Keytruda

  • Post
    _Paul_
    Participant

      I just had my 4th Keytruda infusion yesterday and it seems things are going well. My oncologist does not seem too concerned about giving me a scan right away as my blood work is good and I am not exhibiting any symptoms from the melanoma. My last scan was in January, and he thinks July sounds like a good time for the next one.

      It appears to have stopped a new tumor on my shoulder which had grown 10 times in volume from December to January. If it was still growing at that rate I would not be on my keyboard right now!

      So it seems like I will be on Keytruda for the forseeable future. Do you think it is worth getting a port?

      Thanks! – Paul.

    Viewing 23 reply threads
    • Replies
        BrianP
        Participant

          Paul,

          I have one and think it's great.  If you have good veins and both arms are usable you can probably get by without one.  I'm limited to one arm and my veins are not very good so it was a no brainer for me.  I've had mine for about 18 months and it really hasn't had any negative impact on my quality on life.

          Brian

          BrianP
          Participant

            Paul,

            I have one and think it's great.  If you have good veins and both arms are usable you can probably get by without one.  I'm limited to one arm and my veins are not very good so it was a no brainer for me.  I've had mine for about 18 months and it really hasn't had any negative impact on my quality on life.

            Brian

            BrianP
            Participant

              Paul,

              I have one and think it's great.  If you have good veins and both arms are usable you can probably get by without one.  I'm limited to one arm and my veins are not very good so it was a no brainer for me.  I've had mine for about 18 months and it really hasn't had any negative impact on my quality on life.

              Brian

              Mat
              Participant

                Paul, we're on a similar schedule.  I had my 4th infusion last week.  I considered a port.  I decided against it when I learned that they will not use it for drawing blood.  I figure that if they need to stick me at each infusion for blood, what's the difference?  (I also have young kids and would worry about the port getting knocked around, though I'm not sure that this latter point is a legitimate concern.)

                  BrianP
                  Participant

                    I've never heard that before Mat.  I use mine for everything, blood draws, infusions, contrast for scans.

                    I live a pretty active life style and haven't had any issues with my port.  I battle my son all the time and haven't had any port mishaps.  He's only 4 now so when he gets older and starts kicking my butt it may be a different story!

                    BrianP
                    Participant

                      I've never heard that before Mat.  I use mine for everything, blood draws, infusions, contrast for scans.

                      I live a pretty active life style and haven't had any issues with my port.  I battle my son all the time and haven't had any port mishaps.  He's only 4 now so when he gets older and starts kicking my butt it may be a different story!

                      BrianP
                      Participant

                        I've never heard that before Mat.  I use mine for everything, blood draws, infusions, contrast for scans.

                        I live a pretty active life style and haven't had any issues with my port.  I battle my son all the time and haven't had any port mishaps.  He's only 4 now so when he gets older and starts kicking my butt it may be a different story!

                        _Paul_
                        Participant

                          Huh! Thanks for pointing this out. I had been assuming they would get blood from in too. Thanks Mat.

                          Mat
                          Participant

                            Based on Brian's reply, I would ask.  Maybe just a UPenn policy.

                            Mat
                            Participant

                              Based on Brian's reply, I would ask.  Maybe just a UPenn policy.

                              Mat
                              Participant

                                Based on Brian's reply, I would ask.  Maybe just a UPenn policy.

                                _Paul_
                                Participant

                                  Huh! Thanks for pointing this out. I had been assuming they would get blood from in too. Thanks Mat.

                                  _Paul_
                                  Participant

                                    Huh! Thanks for pointing this out. I had been assuming they would get blood from in too. Thanks Mat.

                                  Mat
                                  Participant

                                    Paul, we're on a similar schedule.  I had my 4th infusion last week.  I considered a port.  I decided against it when I learned that they will not use it for drawing blood.  I figure that if they need to stick me at each infusion for blood, what's the difference?  (I also have young kids and would worry about the port getting knocked around, though I'm not sure that this latter point is a legitimate concern.)

                                    Mat
                                    Participant

                                      Paul, we're on a similar schedule.  I had my 4th infusion last week.  I considered a port.  I decided against it when I learned that they will not use it for drawing blood.  I figure that if they need to stick me at each infusion for blood, what's the difference?  (I also have young kids and would worry about the port getting knocked around, though I'm not sure that this latter point is a legitimate concern.)

                                      Julie in SoCal
                                      Participant

                                        Hey Paul!

                                        I'm a few infusions behind you and am considering the same thing.  I only have one useable arm and I am so bruised I'm starting to look like a junkie that doesn't care anymore.  So I'm seriously considering it. Especially if I'm on Pembro for the foreseeable future.  

                                        I've been told that they can be used for blood draws, too.  

                                        I'll let you know what I end up doing.

                                        Julie

                                        Julie in SoCal
                                        Participant

                                          Hey Paul!

                                          I'm a few infusions behind you and am considering the same thing.  I only have one useable arm and I am so bruised I'm starting to look like a junkie that doesn't care anymore.  So I'm seriously considering it. Especially if I'm on Pembro for the foreseeable future.  

                                          I've been told that they can be used for blood draws, too.  

                                          I'll let you know what I end up doing.

                                          Julie

                                          Julie in SoCal
                                          Participant

                                            Hey Paul!

                                            I'm a few infusions behind you and am considering the same thing.  I only have one useable arm and I am so bruised I'm starting to look like a junkie that doesn't care anymore.  So I'm seriously considering it. Especially if I'm on Pembro for the foreseeable future.  

                                            I've been told that they can be used for blood draws, too.  

                                            I'll let you know what I end up doing.

                                            Julie

                                            jbronicki
                                            Participant

                                              Hi Paul,

                                              I know they've actually done some outcomes studies based on type of vascular access device a patient uses.  Ports have lower rates of infection, etc.  I actually used to be involved in dialysis research and one of the main areas of outcome studies for hemodialysis patients was how (what type of access) a patient received treatment.  I thought this was a good description

                                              http://www.cancer.ca/en/cancer-information/diagnosis-and-treatment/tests-and-procedures/subcutaneous-port/?region=on

                                               

                                              I do have a "funny" story from when my mom had cancer (she passed away several years ago).  She was getting chemotherapy and the nurse could never hit her veins and had to take several shots at it.  My mom had very tough hands and had a very high tolerance and tried to reassure the nurse that she was not in any pain.  However, the very empathetic nurse would burst into tears when trying to get the IV in and my mom would try to console her and tell her it was ok,  even brought her in cookies and brownies.  This nurse was so empathetic with her patients, she was just a sweetheart and she really felt like she was hurting my mom.  My mom ended up getting a port just so she wouldn't stress the nurse out!  🙂  

                                               

                                              Good luck!

                                              Jackie

                                              jbronicki
                                              Participant

                                                Hi Paul,

                                                I know they've actually done some outcomes studies based on type of vascular access device a patient uses.  Ports have lower rates of infection, etc.  I actually used to be involved in dialysis research and one of the main areas of outcome studies for hemodialysis patients was how (what type of access) a patient received treatment.  I thought this was a good description

                                                http://www.cancer.ca/en/cancer-information/diagnosis-and-treatment/tests-and-procedures/subcutaneous-port/?region=on

                                                 

                                                I do have a "funny" story from when my mom had cancer (she passed away several years ago).  She was getting chemotherapy and the nurse could never hit her veins and had to take several shots at it.  My mom had very tough hands and had a very high tolerance and tried to reassure the nurse that she was not in any pain.  However, the very empathetic nurse would burst into tears when trying to get the IV in and my mom would try to console her and tell her it was ok,  even brought her in cookies and brownies.  This nurse was so empathetic with her patients, she was just a sweetheart and she really felt like she was hurting my mom.  My mom ended up getting a port just so she wouldn't stress the nurse out!  🙂  

                                                 

                                                Good luck!

                                                Jackie

                                                jbronicki
                                                Participant

                                                  Hi Paul,

                                                  I know they've actually done some outcomes studies based on type of vascular access device a patient uses.  Ports have lower rates of infection, etc.  I actually used to be involved in dialysis research and one of the main areas of outcome studies for hemodialysis patients was how (what type of access) a patient received treatment.  I thought this was a good description

                                                  http://www.cancer.ca/en/cancer-information/diagnosis-and-treatment/tests-and-procedures/subcutaneous-port/?region=on

                                                   

                                                  I do have a "funny" story from when my mom had cancer (she passed away several years ago).  She was getting chemotherapy and the nurse could never hit her veins and had to take several shots at it.  My mom had very tough hands and had a very high tolerance and tried to reassure the nurse that she was not in any pain.  However, the very empathetic nurse would burst into tears when trying to get the IV in and my mom would try to console her and tell her it was ok,  even brought her in cookies and brownies.  This nurse was so empathetic with her patients, she was just a sweetheart and she really felt like she was hurting my mom.  My mom ended up getting a port just so she wouldn't stress the nurse out!  🙂  

                                                   

                                                  Good luck!

                                                  Jackie

                                                  ed williams
                                                  Participant

                                                    Hey Paul, I been on a BMS study of Ipi and Nivolumab for 16 months now. I decided not to do the port line since I try to still be as active as possible. I still lift weights and mountain bike from time to time. The Ottawa General hospital did a study a couple of years ago and found that there was an increased risk for getting blood clots for people who are very active and have a Pic or port. I must admit that I am getting tired of getting picked for scans every 6 weeks, brain Mri every 3 months and blood draws and treatments every two weeks. Wishing you the best!!! Ed 

                                                    ed williams
                                                    Participant

                                                      Hey Paul, I been on a BMS study of Ipi and Nivolumab for 16 months now. I decided not to do the port line since I try to still be as active as possible. I still lift weights and mountain bike from time to time. The Ottawa General hospital did a study a couple of years ago and found that there was an increased risk for getting blood clots for people who are very active and have a Pic or port. I must admit that I am getting tired of getting picked for scans every 6 weeks, brain Mri every 3 months and blood draws and treatments every two weeks. Wishing you the best!!! Ed 

                                                      ed williams
                                                      Participant

                                                        Hey Paul, I been on a BMS study of Ipi and Nivolumab for 16 months now. I decided not to do the port line since I try to still be as active as possible. I still lift weights and mountain bike from time to time. The Ottawa General hospital did a study a couple of years ago and found that there was an increased risk for getting blood clots for people who are very active and have a Pic or port. I must admit that I am getting tired of getting picked for scans every 6 weeks, brain Mri every 3 months and blood draws and treatments every two weeks. Wishing you the best!!! Ed 

                                                        arthurjedi007
                                                        Participant

                                                          I almost got a port but was having problems choking so now better but haven't had it done yet. A power port can be used for everything except pet scans as far as I was told. So basically blood draws, iv meds, ct and mri scans. A non power port has limitations for what it can be used for but they are smaller. One of my older posts I think from dec has some info about ports especially what Celeste said about things you need to make sure you know so you make sure the nurses use it right.

                                                          Artie

                                                          arthurjedi007
                                                          Participant

                                                            I almost got a port but was having problems choking so now better but haven't had it done yet. A power port can be used for everything except pet scans as far as I was told. So basically blood draws, iv meds, ct and mri scans. A non power port has limitations for what it can be used for but they are smaller. One of my older posts I think from dec has some info about ports especially what Celeste said about things you need to make sure you know so you make sure the nurses use it right.

                                                            Artie

                                                            arthurjedi007
                                                            Participant

                                                              I almost got a port but was having problems choking so now better but haven't had it done yet. A power port can be used for everything except pet scans as far as I was told. So basically blood draws, iv meds, ct and mri scans. A non power port has limitations for what it can be used for but they are smaller. One of my older posts I think from dec has some info about ports especially what Celeste said about things you need to make sure you know so you make sure the nurses use it right.

                                                              Artie

                                                              Polymath
                                                              Participant

                                                                I'm on a similar schedule as several others here, and with an undertermined number of future Pembro infusions, as well as blood draws, scan contrast dyes, I opted for the port which will be used for all sticks.

                                                                I'm already glad I did, and now, barely two weeks after port installation, I'm heading to the swimming pool.

                                                                Best wishes for a full and durable response!

                                                                  Marianne quinn
                                                                  Participant

                                                                    My friend who had breast cancer did not opt for a port and she regrets it. After so many sticks, the veins start to scar and it makes it very difficult to access down the road. The veins can get so damaged that IV fluids, medication, and blood draws are impossible to do. Sometimes, blood needs to be drawn for the feet, between the toes, etc. I would definitely look seriously at a port if you are looking at years of infusions and scans. 

                                                                    Marianne quinn
                                                                    Participant

                                                                      My friend who had breast cancer did not opt for a port and she regrets it. After so many sticks, the veins start to scar and it makes it very difficult to access down the road. The veins can get so damaged that IV fluids, medication, and blood draws are impossible to do. Sometimes, blood needs to be drawn for the feet, between the toes, etc. I would definitely look seriously at a port if you are looking at years of infusions and scans. 

                                                                      Marianne quinn
                                                                      Participant

                                                                        My friend who had breast cancer did not opt for a port and she regrets it. After so many sticks, the veins start to scar and it makes it very difficult to access down the road. The veins can get so damaged that IV fluids, medication, and blood draws are impossible to do. Sometimes, blood needs to be drawn for the feet, between the toes, etc. I would definitely look seriously at a port if you are looking at years of infusions and scans. 

                                                                      Polymath
                                                                      Participant

                                                                        I'm on a similar schedule as several others here, and with an undertermined number of future Pembro infusions, as well as blood draws, scan contrast dyes, I opted for the port which will be used for all sticks.

                                                                        I'm already glad I did, and now, barely two weeks after port installation, I'm heading to the swimming pool.

                                                                        Best wishes for a full and durable response!

                                                                        Polymath
                                                                        Participant

                                                                          I'm on a similar schedule as several others here, and with an undertermined number of future Pembro infusions, as well as blood draws, scan contrast dyes, I opted for the port which will be used for all sticks.

                                                                          I'm already glad I did, and now, barely two weeks after port installation, I'm heading to the swimming pool.

                                                                          Best wishes for a full and durable response!

                                                                          _Paul_
                                                                          Participant

                                                                            Thanks everybody for your replies. I decided to go for it and I will get it installed this coming Wednesday. I have good veins right now, but between the infusions every three weeks and the frequent blood samples my endocrinologist needs it seems like the proactive thing to do.

                                                                            Plus I attended my first ever cancer support group the other night and one of the folks there was happy to show me hers which really didn't look like that big a deal. She warned me to make sure to get it placed away from where my seat belt lies so I think I will draw the outline with pen on my shoulder the morning of.

                                                                            _Paul_
                                                                            Participant

                                                                              Thanks everybody for your replies. I decided to go for it and I will get it installed this coming Wednesday. I have good veins right now, but between the infusions every three weeks and the frequent blood samples my endocrinologist needs it seems like the proactive thing to do.

                                                                              Plus I attended my first ever cancer support group the other night and one of the folks there was happy to show me hers which really didn't look like that big a deal. She warned me to make sure to get it placed away from where my seat belt lies so I think I will draw the outline with pen on my shoulder the morning of.

                                                                              _Paul_
                                                                              Participant

                                                                                Thanks everybody for your replies. I decided to go for it and I will get it installed this coming Wednesday. I have good veins right now, but between the infusions every three weeks and the frequent blood samples my endocrinologist needs it seems like the proactive thing to do.

                                                                                Plus I attended my first ever cancer support group the other night and one of the folks there was happy to show me hers which really didn't look like that big a deal. She warned me to make sure to get it placed away from where my seat belt lies so I think I will draw the outline with pen on my shoulder the morning of.

                                                                            Viewing 23 reply threads
                                                                            • You must be logged in to reply to this topic.
                                                                            About the MRF Patient Forum

                                                                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                            Popular Topics