Please Help—-Temodar

› Forums › General Melanoma Community › Please Help—-Temodar

  • This topic is empty.
  • Post
    • November 8, 2013 at 7:54 pm
    DeniseK
    Participant

      Hello Everyone,

      I am on my second day of Temodar and I am in so much pain.  My head back and neck is killing me.  These are all sights of my melanoma.  My throat is closing up again and I can barely talk or swallow again.  I didn't feel like this when I was on the Mek/Tanfinlar, it actually helped my throat and head.  I don't want to quit the temodar if this is normal.  It's like my mets are inflammed and causing me pain.  Has anyone done temodar with similar effects.  I feel like I am dying.  I have a call in to my doctor to see what I should do.

      As far as getting gamma knife again, they won't do it because one of my brain mets is too close to my eye.  They will do external radiation if my vision starts to get affected.

      Thanks for your help.

      Denise

    • You must be logged in to reply to this topic.
    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.