Plan is keydruda PD1

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  • Post
    • July 20, 2017 at 5:49 pm
    Scooby123
    Participant

      Hi all plan is PD1 so any one who has experience with it much appriciated . Starting ASAP , cannot do radiotherapy node too near wind pipe and could damage it.

      Thanks

      Scooby ❤️

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    • Replies
        • July 20, 2017 at 7:32 pm
        Julie in SoCal
        Participant

          Good plan Scooby!  I did Pembro for a year and a half I just a little fatigue and joint pain that was a bit of a mystery for awhile.  But I watched my tumors melt away!

          May you see all your tumors melt away, too!

          Shalom,

          Julie

            • July 20, 2017 at 7:48 pm
            Scooby123
            Participant

              Thanks Julie, 

              How you doing Hun , hope you are feeling much better . Very long day today chilling now.

              Take care 

              Scooby❤️

            • July 20, 2017 at 9:51 pm
            Bubbles
            Participant

              I did 2 1/2 years of nivo (Opdivo) which is the other anti-PD-1 product from 2010 to 2013.  The response rates and side effects are similar.  I had some tiredness (but still worked!!!), rashes, achy joints (but I still ran!!!), and the worst for me were outright mouth ulcers (dry mouth and mild irritation are more common)…but…most importantly – it got rid of a brain tumor that I had when I started and I have been NED ever since with my last treatment in June of 2013!!!  I wish you my best!  celeste

              • July 20, 2017 at 10:36 pm
              Jubes
              Participant

                Hope your tumors melt away on pembro like mine did scooby!

                • July 21, 2017 at 3:13 pm
                Bradley75
                Participant

                  Keytruda has been great.  Side effects are very manageable.  Joint pain and fatigue for a few days each time is all I have had to deal with.  I am praying it works for you as it has for me. 

                  • July 21, 2017 at 4:15 pm
                  sister of patient
                  Participant

                    That is great Scooby!! May keytruda eradicate this beast once and for all for you. Best wishes for you for a complete response!

                    Barb

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