Plan B, here I come!

› Forums › General Melanoma Community › Plan B, here I come!

  • Post
    • August 9, 2011 at 12:12 pm
    Lisa13
    Participant

      Tomorrow is my first day of ipi (yervoy).  I'm a little nervous about potential symptoms, but other than that, I'm hoping and praying that this treatment will work for me. It's my birthday on Saturday, so that has to bring me some kind of luck 🙂

      Tomorrow is my first day of ipi (yervoy).  I'm a little nervous about potential symptoms, but other than that, I'm hoping and praying that this treatment will work for me. It's my birthday on Saturday, so that has to bring me some kind of luck 🙂

      I have a busy month ahead of me – my birthday, a wedding to go to, moving into a house – all celebratory things which has been keeping my mind very busy through all this nonsense.   As much as I want to have symptoms to feel like this might be working, I hope it doesn't prevent me from enjoying all these wonderful things.

      Prayers and Positive Thoughts to you all!

      Lisa

    Viewing 7 reply threads
    • Replies
        • August 9, 2011 at 12:33 pm
        Laurie from maine
        Participant

          good luck – positive thoughts coming your way!!!  Happy birthday too!! busy time for you – hope your side effects are few and you have a great time with all you have coming up!

          keep us posted!

          laurie from maine

          • August 9, 2011 at 12:33 pm
          Laurie from maine
          Participant

            good luck – positive thoughts coming your way!!!  Happy birthday too!! busy time for you – hope your side effects are few and you have a great time with all you have coming up!

            keep us posted!

            laurie from maine

            • August 9, 2011 at 2:18 pm
            FormerCaregiver
            Participant

              Good luck with plan B, Lisa. Wishing you a very happy birthday for Saturday!

              You remain in my prayers.

              Frank from Australia

              • August 9, 2011 at 2:18 pm
              FormerCaregiver
              Participant

                Good luck with plan B, Lisa. Wishing you a very happy birthday for Saturday!

                You remain in my prayers.

                Frank from Australia

                  • August 9, 2011 at 10:32 pm
                  Lisa13
                  Participant

                    Thanks very much Frank and Laurie. 

                    I always remain positive and continue to hope for a fabulous response from treatment.

                    Lisa

                    • August 9, 2011 at 10:32 pm
                    Lisa13
                    Participant

                      Thanks very much Frank and Laurie. 

                      I always remain positive and continue to hope for a fabulous response from treatment.

                      Lisa

                    • August 10, 2011 at 1:39 am
                    shellebrownies
                    Participant

                      Ah, Lisa, our fellow "classmate"… Wishing you the very best of luck with your next treatment. Been thinking about you and boots and hoping this kicks your melanoma's butt!  : )

                       

                      Michelle, wife of Don

                      • August 10, 2011 at 1:39 am
                      shellebrownies
                      Participant

                        Ah, Lisa, our fellow "classmate"… Wishing you the very best of luck with your next treatment. Been thinking about you and boots and hoping this kicks your melanoma's butt!  : )

                         

                        Michelle, wife of Don

                        • August 11, 2011 at 6:45 pm
                        lyndaloo
                        Participant

                          Hello Lisa –  We also live in Canada, my husband had lung mets followed by surgery, then brain mets followed by surgery and radiation. Last scan showed all vital organs clear and brain mets are stable. A few small spots are showing in the body. Our doctor mentioned "watchful waiting" or chemo first then ipi.  Unfortunately he tested negative for BRAF. How did you find the chemo?  Were you able to still function fairly well? I hope you do well on the ipi, it shows promising results.

                          Prayers and positive thoughts go out to you neighbour!! Enjoy your busy month, sounds like alot is happening to keep you busy!

                          Lyndaloo

                            • August 12, 2011 at 4:54 pm
                            Lisa13
                            Participant

                              Hi Lyndaloo,

                              Keeping busy is key for me as well as looking after my 22 month old daughter 🙂

                              I'm glad to hear your husbands mets in lungs are gone after surgery. Had I only had a few spots, I would have done the same. As mentioned with dacarbazine, I tolerated it quite well and except for 3 days, was able to live life as normal. 

                              IPI would be a good next plan for your husband if the chemo fails. Dacarbazine doesn't cross the blood/brain barrier, so you might want to try Temador since that does. If neither of these work, ipi has shown to eliminate mets in all locations, so this is promising.

                              Best of luck!

                              Lisa

                              • August 12, 2011 at 4:54 pm
                              Lisa13
                              Participant

                                Hi Lyndaloo,

                                Keeping busy is key for me as well as looking after my 22 month old daughter 🙂

                                I'm glad to hear your husbands mets in lungs are gone after surgery. Had I only had a few spots, I would have done the same. As mentioned with dacarbazine, I tolerated it quite well and except for 3 days, was able to live life as normal. 

                                IPI would be a good next plan for your husband if the chemo fails. Dacarbazine doesn't cross the blood/brain barrier, so you might want to try Temador since that does. If neither of these work, ipi has shown to eliminate mets in all locations, so this is promising.

                                Best of luck!

                                Lisa

                              • August 11, 2011 at 6:45 pm
                              lyndaloo
                              Participant

                                Hello Lisa –  We also live in Canada, my husband had lung mets followed by surgery, then brain mets followed by surgery and radiation. Last scan showed all vital organs clear and brain mets are stable. A few small spots are showing in the body. Our doctor mentioned "watchful waiting" or chemo first then ipi.  Unfortunately he tested negative for BRAF. How did you find the chemo?  Were you able to still function fairly well? I hope you do well on the ipi, it shows promising results.

                                Prayers and positive thoughts go out to you neighbour!! Enjoy your busy month, sounds like alot is happening to keep you busy!

                                Lyndaloo

                            Viewing 7 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics