Opdivo treatment #2

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  • Post
    • April 21, 2018 at 5:57 am
    Raco
    Participant

      Hi All:

      I had my second Opdivo treatment, this time in 30min. Thursday April 19, 2018

      Went very fast, stopped at grocery store on way home, once Home Had some dinner than fell out.

      fatigue was way worse than my first treatment,  

      went to sleep at 6:30pm Thursday untill 1130am Friday only up a few times for bathroom and meds (17 Hours)

      once up, drank some coffee and got a bangle, fell back to sleep at 1:30pm and sleep till 7:00pm. Got up feeling sick in stomach for about an hour but gone now.

      Back to sleep at 1030pm and now up at 1:30am Sat writing this.  What a dayindecision

      Hope Saturday is un-event-full.

      Thanks for listening Guys

       

        

       

       

       

       

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    • Replies
        • April 21, 2018 at 10:24 pm
        Mtngirl
        Participant

          Hi Raco, I had 4 immunotherapytreatments last summer and it is all a fog now. I do remember sleeping a lot and losing weight because of nausea. I found that eating small meals or snacks every 2-4 hours helped overcome the nausea. The good news is that a year later, my melanoma is almost gone – just one small spot on my spleen that we are watching. Good luck with your treatment!

            • April 21, 2018 at 11:41 pm
            Raco
            Participant

              Thank you for the info.  

              You said you had 4 treatments? Last summer, I have to have a total of 26

              i hope your stays gone and is a watch only

              take  care

            • April 23, 2018 at 2:38 pm
            Hukill
            Participant

              I have had 44 opdivo treatments and 5 yervoy. I have had fatiuge from the start but have worked full time. I also have insomnia side effect so I am tired but can't sleep. Tried every over the counter and prescription sleep meds but nothing helps. Tried the "wives tales" nothing worked. My fatiuge got better after the yervoy ended but still so tired, usually real bad 3 to 5 days after a treatment.

                • April 23, 2018 at 6:18 pm
                Susanlee528
                Participant

                   I have had my fourth treatment out of a year’s worth. I had the exact same reaction as you.  After every treatment I come home, have a couple OK hours and then fall asleep for 16 to 18 hours. It sucks but I just make sure to plan ahead so that I don’t have anything I need to get done in that period of time because I know I’m not going to be able to.  Good luck! I’m hoping it gets better as time goes on, but I’m not too optimistic after reading everyone else’s experiences. 

                  • April 23, 2018 at 6:53 pm
                  bjeans
                  Participant

                    My husband has had two infusions, though we don't know if he's on the nivo only study arm or the nivo with ipi, but has had no reactions, to either one or both infusions (we can't know). So maybe there's hope for you.

                    On the other hand, maybe this means your immune system is cranking up, and that would be a good thing thing. 

                    • April 26, 2018 at 7:53 pm
                    Raco
                    Participant

                      lets hope, thanks all for the input

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