Nivo for stage 3

Forums General Melanoma Community Nivo for stage 3

  • Post
    vickiaa0529
    Participant

      Hi

      Just wondering if anyone has heard if Nivo was mentioned at the ASCO conference for treatment for Stage3. My oncologist is pushing IPI and I would like to hold out for Nivo

      Thanks

      Vicki

       

       

    Viewing 5 reply threads
    • Replies
        jennunicorn
        Participant

          I didn't see anything mentioned about nivo coming out as approved for stage 3 yet, not sure when that will happen. Would be nice if it happened soon, but make sure you don't wait too long, there is a window of time between surgery and start of treatment. I believe my onc said 12 weeks when I asked how long I could wait to start Ipi. 

          Hope you're doing well πŸ™‚

            vickiaa0529
            Participant

              Thanks Jen

              Hope you are doing well. No I don't want to wait too long my surgery was April 4th, but I had to go back in for Cellutitius. It looks like Ipi it is since I haven't found anything about Nivo either. My CT and MRI are on the 15th so I should start sometime shortly after that.

              Wish me Luck

               

              jennunicorn
              Participant

                Best of luck, hope you have a smooth ride with Ipi!

                jennunicorn
                Participant

                  Best of luck, hope you have a smooth ride with Ipi!

                  jennunicorn
                  Participant

                    Best of luck, hope you have a smooth ride with Ipi!

                    vickiaa0529
                    Participant

                      Thanks Jen

                      Hope you are doing well. No I don't want to wait too long my surgery was April 4th, but I had to go back in for Cellutitius. It looks like Ipi it is since I haven't found anything about Nivo either. My CT and MRI are on the 15th so I should start sometime shortly after that.

                      Wish me Luck

                       

                      vickiaa0529
                      Participant

                        Thanks Jen

                        Hope you are doing well. No I don't want to wait too long my surgery was April 4th, but I had to go back in for Cellutitius. It looks like Ipi it is since I haven't found anything about Nivo either. My CT and MRI are on the 15th so I should start sometime shortly after that.

                        Wish me Luck

                         

                        jvictoria
                        Participant

                          Hi Jenn… I'm on Nivo for Satge 3B, I had no side effects until halfway through month 7 of the clinical trial. Then they all hit like the perfect storm. My 2cents: If I had not had the option of the trial, I would has gone down the ipi route without any hesitation. BTW-when I joined the trial, ipi was not FDA approved for stage 3.

                          Good luck!

                          vickiaa0529
                          Participant

                            Thanks right now I am not eligilible for Nivo for 3b

                             

                            vickiaa0529
                            Participant

                              Thanks right now I am not eligilible for Nivo for 3b

                               

                              vickiaa0529
                              Participant

                                Thanks right now I am not eligilible for Nivo for 3b

                                 

                                jvictoria
                                Participant

                                  Hi Jenn… I'm on Nivo for Satge 3B, I had no side effects until halfway through month 7 of the clinical trial. Then they all hit like the perfect storm. My 2cents: If I had not had the option of the trial, I would has gone down the ipi route without any hesitation. BTW-when I joined the trial, ipi was not FDA approved for stage 3.

                                  Good luck!

                                  jvictoria
                                  Participant

                                    Hi Jenn… I'm on Nivo for Satge 3B, I had no side effects until halfway through month 7 of the clinical trial. Then they all hit like the perfect storm. My 2cents: If I had not had the option of the trial, I would has gone down the ipi route without any hesitation. BTW-when I joined the trial, ipi was not FDA approved for stage 3.

                                    Good luck!

                                  jennunicorn
                                  Participant

                                    I didn't see anything mentioned about nivo coming out as approved for stage 3 yet, not sure when that will happen. Would be nice if it happened soon, but make sure you don't wait too long, there is a window of time between surgery and start of treatment. I believe my onc said 12 weeks when I asked how long I could wait to start Ipi. 

                                    Hope you're doing well πŸ™‚

                                    jennunicorn
                                    Participant

                                      I didn't see anything mentioned about nivo coming out as approved for stage 3 yet, not sure when that will happen. Would be nice if it happened soon, but make sure you don't wait too long, there is a window of time between surgery and start of treatment. I believe my onc said 12 weeks when I asked how long I could wait to start Ipi. 

                                      Hope you're doing well πŸ™‚

                                      geriakt
                                      Participant

                                        I am on NIVO at stage IIIB but to get it you have to be on a trial. It is not approved for stage III.  My trial is to show the benefits of this treatment at stage III so it will take time for results. If you have the option for Yervoy at stage III I would take it. You are only looking at 4 infusions every 3 weeks and then 3 infusions every 3 months.

                                        Tom 

                                        geriakt
                                        Participant

                                          I am on NIVO at stage IIIB but to get it you have to be on a trial. It is not approved for stage III.  My trial is to show the benefits of this treatment at stage III so it will take time for results. If you have the option for Yervoy at stage III I would take it. You are only looking at 4 infusions every 3 weeks and then 3 infusions every 3 months.

                                          Tom 

                                          geriakt
                                          Participant

                                            I am on NIVO at stage IIIB but to get it you have to be on a trial. It is not approved for stage III.  My trial is to show the benefits of this treatment at stage III so it will take time for results. If you have the option for Yervoy at stage III I would take it. You are only looking at 4 infusions every 3 weeks and then 3 infusions every 3 months.

                                            Tom 

                                              vickiaa0529
                                              Participant

                                                Hi

                                                Thanks… I am just worried about the side effects from ipi

                                                Are you in the US? How did you get a Nivo trial?

                                                 

                                                 

                                                vickiaa0529
                                                Participant

                                                  Hi

                                                  Thanks… I am just worried about the side effects from ipi

                                                  Are you in the US? How did you get a Nivo trial?

                                                   

                                                   

                                                  vickiaa0529
                                                  Participant

                                                    Hi

                                                    Thanks… I am just worried about the side effects from ipi

                                                    Are you in the US? How did you get a Nivo trial?

                                                     

                                                     

                                                    geriakt
                                                    Participant

                                                      I am in Orlando FL.  My trial is CA209-238 (NCT02388906).  I interviewed for the trial after my lymph node dissection. 

                                                      Also I am told that IPI is approved for stage III at 10mg/kg. Your doctor has the option to offer a lower dose of 3mg/kg.

                                                      Tom

                                                      vickiaa0529
                                                      Participant

                                                        Thanks… I would prefer the lower dose, I didn't know it was an option

                                                        I will find out on the 15th.

                                                         

                                                        vickiaa0529
                                                        Participant

                                                          Thanks… I would prefer the lower dose, I didn't know it was an option

                                                          I will find out on the 15th.

                                                           

                                                          vickiaa0529
                                                          Participant

                                                            Thanks… I would prefer the lower dose, I didn't know it was an option

                                                            I will find out on the 15th.

                                                             

                                                            jennunicorn
                                                            Participant

                                                              Not all insurance will approve the lower dose since it was not part of the approval, the FDA approval is for 10mg/kg, so insurance tends to only want to stick with the rules on that. But, sometimes, the doctor can put up a little fight to get the lower dose. Just want you to know in case that doesn't come as an option for you. 

                                                              πŸ™‚

                                                              jennunicorn
                                                              Participant

                                                                Not all insurance will approve the lower dose since it was not part of the approval, the FDA approval is for 10mg/kg, so insurance tends to only want to stick with the rules on that. But, sometimes, the doctor can put up a little fight to get the lower dose. Just want you to know in case that doesn't come as an option for you. 

                                                                πŸ™‚

                                                                jennunicorn
                                                                Participant

                                                                  Not all insurance will approve the lower dose since it was not part of the approval, the FDA approval is for 10mg/kg, so insurance tends to only want to stick with the rules on that. But, sometimes, the doctor can put up a little fight to get the lower dose. Just want you to know in case that doesn't come as an option for you. 

                                                                  πŸ™‚

                                                                  geriakt
                                                                  Participant

                                                                    I am in Orlando FL.  My trial is CA209-238 (NCT02388906).  I interviewed for the trial after my lymph node dissection. 

                                                                    Also I am told that IPI is approved for stage III at 10mg/kg. Your doctor has the option to offer a lower dose of 3mg/kg.

                                                                    Tom

                                                                    geriakt
                                                                    Participant

                                                                      I am in Orlando FL.  My trial is CA209-238 (NCT02388906).  I interviewed for the trial after my lymph node dissection. 

                                                                      Also I am told that IPI is approved for stage III at 10mg/kg. Your doctor has the option to offer a lower dose of 3mg/kg.

                                                                      Tom

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