new to site

Forums General Melanoma Community new to site

  • Post
    dorothymoe_1
    Participant

      Hello, I am Dorothy.  I am new to this site but really just wanted to check it out.  My father has stage 4 malignant melanoma that has spread to his lungs, brain, stomach and spleen.  He has tried several bouts of chemo and 1 of radiation.  He had an MRI 2 days ago and they have gotten bigger in his brain and lung.  I am not sure if there is anything more to do.  I am so upset and he is scared as well as my mom.

      Hello, I am Dorothy.  I am new to this site but really just wanted to check it out.  My father has stage 4 malignant melanoma that has spread to his lungs, brain, stomach and spleen.  He has tried several bouts of chemo and 1 of radiation.  He had an MRI 2 days ago and they have gotten bigger in his brain and lung.  I am not sure if there is anything more to do.  I am so upset and he is scared as well as my mom.

    Viewing 5 reply threads
    • Replies
        NYKaren
        Participant

          Hi Dorothy,

          Welcome to the board, it's a great place for support, but I'm sorry for the reason you're here.

          I'm sure others much more experienced than I will chime in with suggestions, but the ones that comes to my mind are, is your dad being seen by a melanoma specialist?   Has he been tested for the Braf mutation? 

          there are other therapies that have been developed recently, but again, I'm not well-versed enough in them to advise you…just wanted to say hi.

          All the best,

          karen 

          NYKaren
          Participant

            Hi Dorothy,

            Welcome to the board, it's a great place for support, but I'm sorry for the reason you're here.

            I'm sure others much more experienced than I will chime in with suggestions, but the ones that comes to my mind are, is your dad being seen by a melanoma specialist?   Has he been tested for the Braf mutation? 

            there are other therapies that have been developed recently, but again, I'm not well-versed enough in them to advise you…just wanted to say hi.

            All the best,

            karen 

            NYKaren
            Participant

              Hi Dorothy,

              Welcome to the board, it's a great place for support, but I'm sorry for the reason you're here.

              I'm sure others much more experienced than I will chime in with suggestions, but the ones that comes to my mind are, is your dad being seen by a melanoma specialist?   Has he been tested for the Braf mutation? 

              there are other therapies that have been developed recently, but again, I'm not well-versed enough in them to advise you…just wanted to say hi.

              All the best,

              karen 

              Tim–MRF
              Guest

                Dorothy:

                With someone in your father's situation, the best path is to ensure, if possible, that he is being treated by a team that treats a lot of melanoma.  They will be up on the latest and best treatments and the clinical trials that are showing promise.

                I don't know where you are located, but if you are in the US you may want to consider one of the two new drugs that were approved this year by the FDA.  These were the first new approvals for metastatic melanoma in 13 years.  One drug, Yervoy, helps engage the immune system in fighting the cancer.  The other, Zelboraf, goes into the tumor cells and shuts them down.  Zelboraf only works in patients who have tumors with a particular genetic mutation of a compound called BRAF (pronouced BEE-raf).  About half of patients with melanoma of the skin have this mutation.

                The big challenge may be the tumors in the brain.  It is unclear whether either of these drugs help in that area, though some studies suggest that they do.

                Please keep us posted and don't hesitate to ask questions.

                Tim–MRF

                Tim–MRF
                Guest

                  Dorothy:

                  With someone in your father's situation, the best path is to ensure, if possible, that he is being treated by a team that treats a lot of melanoma.  They will be up on the latest and best treatments and the clinical trials that are showing promise.

                  I don't know where you are located, but if you are in the US you may want to consider one of the two new drugs that were approved this year by the FDA.  These were the first new approvals for metastatic melanoma in 13 years.  One drug, Yervoy, helps engage the immune system in fighting the cancer.  The other, Zelboraf, goes into the tumor cells and shuts them down.  Zelboraf only works in patients who have tumors with a particular genetic mutation of a compound called BRAF (pronouced BEE-raf).  About half of patients with melanoma of the skin have this mutation.

                  The big challenge may be the tumors in the brain.  It is unclear whether either of these drugs help in that area, though some studies suggest that they do.

                  Please keep us posted and don't hesitate to ask questions.

                  Tim–MRF

                  Tim–MRF
                  Guest

                    Dorothy:

                    With someone in your father's situation, the best path is to ensure, if possible, that he is being treated by a team that treats a lot of melanoma.  They will be up on the latest and best treatments and the clinical trials that are showing promise.

                    I don't know where you are located, but if you are in the US you may want to consider one of the two new drugs that were approved this year by the FDA.  These were the first new approvals for metastatic melanoma in 13 years.  One drug, Yervoy, helps engage the immune system in fighting the cancer.  The other, Zelboraf, goes into the tumor cells and shuts them down.  Zelboraf only works in patients who have tumors with a particular genetic mutation of a compound called BRAF (pronouced BEE-raf).  About half of patients with melanoma of the skin have this mutation.

                    The big challenge may be the tumors in the brain.  It is unclear whether either of these drugs help in that area, though some studies suggest that they do.

                    Please keep us posted and don't hesitate to ask questions.

                    Tim–MRF

                Viewing 5 reply threads
                • You must be logged in to reply to this topic.
                About the MRF Patient Forum

                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                Popular Topics