Need some clarifying

Hi Greg, I read your earlier post but hadn't had a chance to respond. My husband was diagnosed in March of this year and has a similar path report as yours. We are a young family (he's 39) with 3 boys under 7.  Where you are in your diagnoses was the most unsettling for my family.  I came to this site and Linny reminded me that once you have a plan of attack and know fully what you are dealing with this does get better.  He was right.  We are almost 8 months into our journey and he's part of a clinical trial for stage 3b.  His SNB was positive and he elected for a modified radical neck dissection.  He is fully recovered from his surgery(ies), little numbness where his scar is, and has his 3 month check ups.  So far…NED and glad to report that.  His next set of scans is in November

You are still in the staging phase and I would make sure you are seeing a melanoma specialist.  Get second opinions if you want (we did) and be aggressive in your care.  I wish you the best and keep us posted on your progress.  I am so thankful to have found this community and as you've probably experienced already the folks on this forum are both patients and caregivers and are here to help!

Take care,

~Kristi

Hi Greg, I read your earlier post but hadn't had a chance to respond. My husband was diagnosed in March of this year and has a similar path report as yours. We are a young family (he's 39) with 3 boys under 7.  Where you are in your diagnoses was the most unsettling for my family.  I came to this site and Linny reminded me that once you have a plan of attack and know fully what you are dealing with this does get better.  He was right.  We are almost 8 months into our journey and he's part of a clinical trial for stage 3b.  His SNB was positive and he elected for a modified radical neck dissection.  He is fully recovered from his surgery(ies), little numbness where his scar is, and has his 3 month check ups.  So far…NED and glad to report that.  His next set of scans is in November

You are still in the staging phase and I would make sure you are seeing a melanoma specialist.  Get second opinions if you want (we did) and be aggressive in your care.  I wish you the best and keep us posted on your progress.  I am so thankful to have found this community and as you've probably experienced already the folks on this forum are both patients and caregivers and are here to help!

Take care,

~Kristi

Hi Greg, I read your earlier post but hadn't had a chance to respond. My husband was diagnosed in March of this year and has a similar path report as yours. We are a young family (he's 39) with 3 boys under 7.  Where you are in your diagnoses was the most unsettling for my family.  I came to this site and Linny reminded me that once you have a plan of attack and know fully what you are dealing with this does get better.  He was right.  We are almost 8 months into our journey and he's part of a clinical trial for stage 3b.  His SNB was positive and he elected for a modified radical neck dissection.  He is fully recovered from his surgery(ies), little numbness where his scar is, and has his 3 month check ups.  So far…NED and glad to report that.  His next set of scans is in November

You are still in the staging phase and I would make sure you are seeing a melanoma specialist.  Get second opinions if you want (we did) and be aggressive in your care.  I wish you the best and keep us posted on your progress.  I am so thankful to have found this community and as you've probably experienced already the folks on this forum are both patients and caregivers and are here to help!

Take care,

~Kristi

Hi Greg,

Did you mean "Leukocytes?" I've never heard of "lycocytes." If that's leukocytes I'd say that sounds like a good thing, but I've never run across that before.

As for the others….

According to my wife, who is an RN, "not identified" is the language they use when they don't see something, but don't want to completely rule it out. In my initial pathology report there was something like "perineural invasion suspected but not identified." That meant that they believed there was some nerve involvement, but it wasn't actually seen.

You're better off without either lymphatic or perineural invasion, so this is an encouraging development I would think.

-Bill

Hi Greg,

Did you mean "Leukocytes?" I've never heard of "lycocytes." If that's leukocytes I'd say that sounds like a good thing, but I've never run across that before.

As for the others….

According to my wife, who is an RN, "not identified" is the language they use when they don't see something, but don't want to completely rule it out. In my initial pathology report there was something like "perineural invasion suspected but not identified." That meant that they believed there was some nerve involvement, but it wasn't actually seen.

You're better off without either lymphatic or perineural invasion, so this is an encouraging development I would think.

-Bill

Hi Greg,

Did you mean "Leukocytes?" I've never heard of "lycocytes." If that's leukocytes I'd say that sounds like a good thing, but I've never run across that before.

As for the others….

According to my wife, who is an RN, "not identified" is the language they use when they don't see something, but don't want to completely rule it out. In my initial pathology report there was something like "perineural invasion suspected but not identified." That meant that they believed there was some nerve involvement, but it wasn't actually seen.

You're better off without either lymphatic or perineural invasion, so this is an encouraging development I would think.

-Bill