› Forums › General Melanoma Community › NED
- This topic has 7 replies, 7 voices, and was last updated 8 years, 7 months ago by
Hukill.
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- August 8, 2017 at 8:29 pm
In June I was told I was in remission after 14 months of nivo/ipi combo and ipi alone. I had another scan last friday and now being told NED!!!!!!!!!!! Don't know if there is much difference between remission and NED but it just sounds better. I still get ipi every other week and dealing with multiple side effects but small price to pay for no melanoma. Vitiligo is still spreading, started on hands and arms but has moved to ankles and knees, love it as it is a positive sign.
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- August 8, 2017 at 8:39 pm
Great news – so pleased for you!!! Congrats and enjoy your new status!!! Best wishes always!! 🙂
Barb
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- August 8, 2017 at 9:20 pm
AWESOME!! Best 3 letter acronym ever! Hope NED is your title for good!
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- August 8, 2017 at 10:52 pm
Congratulations! Wonderful news!!
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- August 10, 2017 at 3:20 pm
Congrats!! Enjoy!! Just wondering….are you still getting ipi infusions q other week…or nivo??? Here's to a walk on the white side!!! If you and others are interested….here's a bunch of links re: vitiligo –
http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/09/all-things-vitiligo.html
Best wishes. Celeste
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