Melanoma Stage 4–new to site

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    btgdudley
    Participant

      Have been dealing with Melanoma Stage 4 to Liver for over a year. Multiple traditional therapies and clinical trials attempted. Not much success. Anyone have a recommendation for alternative therapies such as supplements/health food items??

      Have been dealing with Melanoma Stage 4 to Liver for over a year. Multiple traditional therapies and clinical trials attempted. Not much success. Anyone have a recommendation for alternative therapies such as supplements/health food items??

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    • Replies
        JerryfromFauq
        Participant

          It would help responses if you tell us what therapies you have tried.  Aare you takiing any type of chemo at present?  Also I hope you are aware that certain supplements often work against the standard therapies, depending on the mode of action they are designed for.  If the therapy is designed to ride into the tumor cells on oxidents, hugh doses of anti-oxidents can reduce the treatment drugs reaching the tumors.   I also read an article last week that a recently completed study determined that Omega-3's counteract some chemo treatments.  They did not state what chemo treatments were countered nor what mode of operation those chemos used (I would like to know more details on this study.) 

            As a general rule I do recommend tumeric Extract (95% curcumin) as discussed in the MDA study (http://www2.mdanderson.org/cancerwise/cancer-prevention/nutrition/

          Also I try to take Broccolli and asparagus.  I try to get most of my andti-oxidents from food  items, not from supplements.  (My treatment rides on oxidants.) 

            If not on any treatment I then try to use larger amounts of anti-oxidants.

           

          JerryfromFauq Stage IV since Feb 2007, Never NED, but still rolling  on.

          JerryfromFauq
          Participant

            It would help responses if you tell us what therapies you have tried.  Aare you takiing any type of chemo at present?  Also I hope you are aware that certain supplements often work against the standard therapies, depending on the mode of action they are designed for.  If the therapy is designed to ride into the tumor cells on oxidents, hugh doses of anti-oxidents can reduce the treatment drugs reaching the tumors.   I also read an article last week that a recently completed study determined that Omega-3's counteract some chemo treatments.  They did not state what chemo treatments were countered nor what mode of operation those chemos used (I would like to know more details on this study.) 

              As a general rule I do recommend tumeric Extract (95% curcumin) as discussed in the MDA study (http://www2.mdanderson.org/cancerwise/cancer-prevention/nutrition/

            Also I try to take Broccolli and asparagus.  I try to get most of my andti-oxidents from food  items, not from supplements.  (My treatment rides on oxidants.) 

              If not on any treatment I then try to use larger amounts of anti-oxidants.

             

            JerryfromFauq Stage IV since Feb 2007, Never NED, but still rolling  on.

            JerryfromFauq
            Participant

              It would help responses if you tell us what therapies you have tried.  Aare you takiing any type of chemo at present?  Also I hope you are aware that certain supplements often work against the standard therapies, depending on the mode of action they are designed for.  If the therapy is designed to ride into the tumor cells on oxidents, hugh doses of anti-oxidents can reduce the treatment drugs reaching the tumors.   I also read an article last week that a recently completed study determined that Omega-3's counteract some chemo treatments.  They did not state what chemo treatments were countered nor what mode of operation those chemos used (I would like to know more details on this study.) 

                As a general rule I do recommend tumeric Extract (95% curcumin) as discussed in the MDA study (http://www2.mdanderson.org/cancerwise/cancer-prevention/nutrition/

              Also I try to take Broccolli and asparagus.  I try to get most of my andti-oxidents from food  items, not from supplements.  (My treatment rides on oxidants.) 

                If not on any treatment I then try to use larger amounts of anti-oxidants.

               

              JerryfromFauq Stage IV since Feb 2007, Never NED, but still rolling  on.

              boot2aboot
              Participant

                there are a few of us with liver mets…King is a good one to speak with…she had one liver met and was resected something like 5 years ago and so far so good…i think jerry and i have one too many and i am told if there is more than one liver met, surgery no go…i am braf + so i am on zelboraf…i won't know until 10-20 to see if this is working…i had chemo prior to zelboraf and it didn't do squat…jerry has had good success… good luck…

                boot2aboot
                Participant

                  there are a few of us with liver mets…King is a good one to speak with…she had one liver met and was resected something like 5 years ago and so far so good…i think jerry and i have one too many and i am told if there is more than one liver met, surgery no go…i am braf + so i am on zelboraf…i won't know until 10-20 to see if this is working…i had chemo prior to zelboraf and it didn't do squat…jerry has had good success… good luck…

                  boot2aboot
                  Participant

                    there are a few of us with liver mets…King is a good one to speak with…she had one liver met and was resected something like 5 years ago and so far so good…i think jerry and i have one too many and i am told if there is more than one liver met, surgery no go…i am braf + so i am on zelboraf…i won't know until 10-20 to see if this is working…i had chemo prior to zelboraf and it didn't do squat…jerry has had good success… good luck…

                    mombase
                    Participant

                      I recommend getting the book,"Knockout" by Suzanne Somers.  I thought it was going to be all new-agie (new word) so I was not anxious to read it, but my sister was relentless. I finally opened it up and read the book in one sitting. Not only was it fascinating, but you might recognize the names of some of the contributing oncologists, and they spell out the science behind their alternative medicine claims. I found a lot of the information very compelling, some of it not so much. Definitely worth the read, though.

                      The thing I don't get about melanoma is how differently it can manifest in different people and also how differently people react to the same medication. It's a crazy disease!

                      Cristy, Stage IV

                      mombase
                      Participant

                        I recommend getting the book,"Knockout" by Suzanne Somers.  I thought it was going to be all new-agie (new word) so I was not anxious to read it, but my sister was relentless. I finally opened it up and read the book in one sitting. Not only was it fascinating, but you might recognize the names of some of the contributing oncologists, and they spell out the science behind their alternative medicine claims. I found a lot of the information very compelling, some of it not so much. Definitely worth the read, though.

                        The thing I don't get about melanoma is how differently it can manifest in different people and also how differently people react to the same medication. It's a crazy disease!

                        Cristy, Stage IV

                          justlittleoleme
                          Participant
                            I heartily agree with Cristy. Great book. Lots of interesting information. It is very eye opening.
                            justlittleoleme
                            Participant
                              I heartily agree with Cristy. Great book. Lots of interesting information. It is very eye opening.
                              justlittleoleme
                              Participant
                                I heartily agree with Cristy. Great book. Lots of interesting information. It is very eye opening.
                                JerryfromFauq
                                Participant

                                  Christy, the problem with Melanoma is that it is NOT one disease!  Currently (and maybe never) there is no one thing that can be done to stop  it.  From the signaling path standpoints, the DNA mutation standpoints and the treatments required for each of them, Melanoma is perhaps a hundred or more diseases.  It is not the same one disease in each person.  There are certain likenesses in many, but there are also many differences.  Some melanomas are more l ike some  other types of cancer than they are like other melanomas as far as treatments that have postitve effects.

                                     Here is a good article to help understand some of the factors involved.

                                  JerryfromFauq
                                  Participant

                                    Christy, the problem with Melanoma is that it is NOT one disease!  Currently (and maybe never) there is no one thing that can be done to stop  it.  From the signaling path standpoints, the DNA mutation standpoints and the treatments required for each of them, Melanoma is perhaps a hundred or more diseases.  It is not the same one disease in each person.  There are certain likenesses in many, but there are also many differences.  Some melanomas are more l ike some  other types of cancer than they are like other melanomas as far as treatments that have postitve effects.

                                       Here is a good article to help understand some of the factors involved.

                                    mombase
                                    Participant

                                      Hi, Jerry!

                                      I didn't see a link to the article and am looking forward to reading it. Thank you for your contributions.

                                      Sincerely,

                                      Cristy, Stage IV

                                      mombase
                                      Participant

                                        Hi, Jerry!

                                        I didn't see a link to the article and am looking forward to reading it. Thank you for your contributions.

                                        Sincerely,

                                        Cristy, Stage IV

                                        JerryfromFauq
                                        Participant

                                          OOs.  I remember copying the link, must have forgotten to paast it!!1

                                          http://mmdm.cancercommons.org/ml/index.php/A_Melanoma_Molecular_Disease_Model

                                          Good l uck.

                                          JerryfromFauq
                                          Participant

                                            OOs.  I remember copying the link, must have forgotten to paast it!!1

                                            http://mmdm.cancercommons.org/ml/index.php/A_Melanoma_Molecular_Disease_Model

                                            Good l uck.

                                            mombase
                                            Participant

                                              Thank you, Jerry. What an EXCELLENT paper!

                                              mombase
                                              Participant

                                                Thank you, Jerry. What an EXCELLENT paper!

                                                mombase
                                                Participant

                                                  Thank you, Jerry. What an EXCELLENT paper!

                                                  JerryfromFauq
                                                  Participant

                                                    OOs.  I remember copying the link, must have forgotten to paast it!!1

                                                    http://mmdm.cancercommons.org/ml/index.php/A_Melanoma_Molecular_Disease_Model

                                                    Good l uck.

                                                    mombase
                                                    Participant

                                                      Hi, Jerry!

                                                      I didn't see a link to the article and am looking forward to reading it. Thank you for your contributions.

                                                      Sincerely,

                                                      Cristy, Stage IV

                                                      JerryfromFauq
                                                      Participant

                                                        Christy, the problem with Melanoma is that it is NOT one disease!  Currently (and maybe never) there is no one thing that can be done to stop  it.  From the signaling path standpoints, the DNA mutation standpoints and the treatments required for each of them, Melanoma is perhaps a hundred or more diseases.  It is not the same one disease in each person.  There are certain likenesses in many, but there are also many differences.  Some melanomas are more l ike some  other types of cancer than they are like other melanomas as far as treatments that have postitve effects.

                                                           Here is a good article to help understand some of the factors involved.

                                                      mombase
                                                      Participant

                                                        I recommend getting the book,"Knockout" by Suzanne Somers.  I thought it was going to be all new-agie (new word) so I was not anxious to read it, but my sister was relentless. I finally opened it up and read the book in one sitting. Not only was it fascinating, but you might recognize the names of some of the contributing oncologists, and they spell out the science behind their alternative medicine claims. I found a lot of the information very compelling, some of it not so much. Definitely worth the read, though.

                                                        The thing I don't get about melanoma is how differently it can manifest in different people and also how differently people react to the same medication. It's a crazy disease!

                                                        Cristy, Stage IV

                                                        Hereiam
                                                        Participant

                                                          Hi,

                                                          I am very sorry that you have to deal with this terrible disease! I am a caregiver; therefore, I can just share experience of my aunt (melanoma stage 3 diagnosed in 2007). Well, after several surgeries, she wasn`t responding to chemo or radiotherapy as good as hoped, so her oncologist advised her to consider virotherapy (it is considered to be an effective treatment method in Latvia, especially for melanoma patients). She was very doubtful, but representatives of Virotherapy Center were very helpful and explained everything to her. So she tried out this method, and it worked for her. She`s been NED for almost two years.

                                                          But I really want to remind you, that, as others here said, every person is very individual and no one knows whether this method is appropriate for you or not.

                                                          Anyhow, maybe consult your doctor about this possibility, it you have no response to chemo!

                                                          Wishing you all the best in recovering fast,

                                                          A

                                                          Hereiam
                                                          Participant

                                                            Hi,

                                                            I am very sorry that you have to deal with this terrible disease! I am a caregiver; therefore, I can just share experience of my aunt (melanoma stage 3 diagnosed in 2007). Well, after several surgeries, she wasn`t responding to chemo or radiotherapy as good as hoped, so her oncologist advised her to consider virotherapy (it is considered to be an effective treatment method in Latvia, especially for melanoma patients). She was very doubtful, but representatives of Virotherapy Center were very helpful and explained everything to her. So she tried out this method, and it worked for her. She`s been NED for almost two years.

                                                            But I really want to remind you, that, as others here said, every person is very individual and no one knows whether this method is appropriate for you or not.

                                                            Anyhow, maybe consult your doctor about this possibility, it you have no response to chemo!

                                                            Wishing you all the best in recovering fast,

                                                            A

                                                            Hereiam
                                                            Participant

                                                              Hi,

                                                              I am very sorry that you have to deal with this terrible disease! I am a caregiver; therefore, I can just share experience of my aunt (melanoma stage 3 diagnosed in 2007). Well, after several surgeries, she wasn`t responding to chemo or radiotherapy as good as hoped, so her oncologist advised her to consider virotherapy (it is considered to be an effective treatment method in Latvia, especially for melanoma patients). She was very doubtful, but representatives of Virotherapy Center were very helpful and explained everything to her. So she tried out this method, and it worked for her. She`s been NED for almost two years.

                                                              But I really want to remind you, that, as others here said, every person is very individual and no one knows whether this method is appropriate for you or not.

                                                              Anyhow, maybe consult your doctor about this possibility, it you have no response to chemo!

                                                              Wishing you all the best in recovering fast,

                                                              A

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