mad sweats and so tired all the time

› Forums › General Melanoma Community › mad sweats and so tired all the time

  • Post
    • August 12, 2014 at 3:50 am
    kelvin
    Participant
      Hi I was wondering if anyone can help with a few things,ever since I finishd radiation therapy for my stage 4 melanoma 9months ago I have been so tired I can sleep for days only waking every now and then for a toilet break,and have been having the madest sweats and also freezing cold chills,I have asked docs about it and they aren’t sure why,also found 2 new lumps which my g.p dosnt seem to be worried about,should I be worried or am I jst being paranoid,
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    • Replies
        • August 12, 2014 at 11:08 am
        dodgedh2
        Participant

          You didn't say, however, are you seeing a melanoma specialist? At stage 4 you shouldn't be relying on a GP. They just don't have the knowledge, experience, and contacts with the latest treatments for melanoma. Are you having regular CT scans? Blood work? Above all, seek out a melanoma specialist.

          • August 12, 2014 at 11:08 am
          dodgedh2
          Participant

            You didn't say, however, are you seeing a melanoma specialist? At stage 4 you shouldn't be relying on a GP. They just don't have the knowledge, experience, and contacts with the latest treatments for melanoma. Are you having regular CT scans? Blood work? Above all, seek out a melanoma specialist.

              • August 12, 2014 at 7:35 pm
              kelvin
              Participant
                I have seen a specialist once,I have an oncologist,no I don’t have any of things mentioned for at least 6 months,i have told them about the new lumps but no1 seems interested,more worried about the depression its caused,i shouldn’t complain about new Zealands free health care but i do feel like I’m being put in the ” to hard” pile as there are things wrong wif my stomach the docs think i have a tumor in there somewhere Bt yet nothings being done,sometimes its so bad I’m bed ridden and can’t eat for weeks and have to live off supplement drinks.
                • August 12, 2014 at 7:35 pm
                kelvin
                Participant
                  I have seen a specialist once,I have an oncologist,no I don’t have any of things mentioned for at least 6 months,i have told them about the new lumps but no1 seems interested,more worried about the depression its caused,i shouldn’t complain about new Zealands free health care but i do feel like I’m being put in the ” to hard” pile as there are things wrong wif my stomach the docs think i have a tumor in there somewhere Bt yet nothings being done,sometimes its so bad I’m bed ridden and can’t eat for weeks and have to live off supplement drinks.
                  • August 13, 2014 at 11:17 am
                  dodgedh2
                  Participant

                    You really need to see a melanoma specialist and it sounds like you need a CT scan ASAP. I don't know how the health system works in NZ, however, it sure sounds like they're passing you off as too costly to treat. Start making some waves with health care management and try to push for better care (from a knowledgeable specialist). If they already suspect a tumor is present, what is their course of action? Is there a health care ministry that you can contact?

                    • August 13, 2014 at 11:17 am
                    dodgedh2
                    Participant

                      You really need to see a melanoma specialist and it sounds like you need a CT scan ASAP. I don't know how the health system works in NZ, however, it sure sounds like they're passing you off as too costly to treat. Start making some waves with health care management and try to push for better care (from a knowledgeable specialist). If they already suspect a tumor is present, what is their course of action? Is there a health care ministry that you can contact?

                      • August 13, 2014 at 11:17 am
                      dodgedh2
                      Participant

                        You really need to see a melanoma specialist and it sounds like you need a CT scan ASAP. I don't know how the health system works in NZ, however, it sure sounds like they're passing you off as too costly to treat. Start making some waves with health care management and try to push for better care (from a knowledgeable specialist). If they already suspect a tumor is present, what is their course of action? Is there a health care ministry that you can contact?

                        • August 13, 2014 at 7:33 pm
                        kelvin
                        Participant
                          I have tried contacting the ministry before but to no prevail,my oncologist has even told me and my wife that no one at the hospital wants to take responsibility for me because there are to many different things wrong with me,my melanoma specialist sent me for an ultra sound on some lumps Bt got sent away because they were to hard to get to and see so dnt worry about it.although how gutless it sounds I have given up on help from my doctors now as its like banging my head against a wall
                          • August 13, 2014 at 7:33 pm
                          kelvin
                          Participant
                            I have tried contacting the ministry before but to no prevail,my oncologist has even told me and my wife that no one at the hospital wants to take responsibility for me because there are to many different things wrong with me,my melanoma specialist sent me for an ultra sound on some lumps Bt got sent away because they were to hard to get to and see so dnt worry about it.although how gutless it sounds I have given up on help from my doctors now as its like banging my head against a wall
                            • August 13, 2014 at 7:33 pm
                            kelvin
                            Participant
                              I have tried contacting the ministry before but to no prevail,my oncologist has even told me and my wife that no one at the hospital wants to take responsibility for me because there are to many different things wrong with me,my melanoma specialist sent me for an ultra sound on some lumps Bt got sent away because they were to hard to get to and see so dnt worry about it.although how gutless it sounds I have given up on help from my doctors now as its like banging my head against a wall
                              • August 12, 2014 at 7:35 pm
                              kelvin
                              Participant
                                I have seen a specialist once,I have an oncologist,no I don’t have any of things mentioned for at least 6 months,i have told them about the new lumps but no1 seems interested,more worried about the depression its caused,i shouldn’t complain about new Zealands free health care but i do feel like I’m being put in the ” to hard” pile as there are things wrong wif my stomach the docs think i have a tumor in there somewhere Bt yet nothings being done,sometimes its so bad I’m bed ridden and can’t eat for weeks and have to live off supplement drinks.
                              • August 12, 2014 at 11:08 am
                              dodgedh2
                              Participant

                                You didn't say, however, are you seeing a melanoma specialist? At stage 4 you shouldn't be relying on a GP. They just don't have the knowledge, experience, and contacts with the latest treatments for melanoma. Are you having regular CT scans? Blood work? Above all, seek out a melanoma specialist.

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