Leukine issue

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  • Post
    • April 14, 2016 at 3:31 pm
    Bradley75
    Participant

      I just finished my 7th round of shots.  I am using Leukine because I didn't qualify for any stage 3 clinical trials at the time of my diagnosis.  The Leukine was my best option to try to prevent recurrence.  My question involves side effects.  I have had similar side effects on all rounds with injection site reaction and a little fatigue.  This round is the first time I have been dealing with a headache.  I have had it for over a week now and am starting to wonder if it might be something other than a side effect.  Any Leukine users out there with a similar experience?  I asked my melanoma care team and they said it is most likely a side effect, but why would it occur on round 7 and not on any other round?

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    • Replies
        • April 14, 2016 at 6:39 pm
        jenny22
        Participant

          Hi Bradley-

          Wow, nice to see someone esle using Leukine…..I didnt think many were still using it…..I however am, and just started my 2nd cycle.  I was not a good candidate for IPI, so rather than "watch and wait" I agreed to to do the Leukine.  Currently stage IIIB, NED.

          As far as side effects I've had almost NONE, but keep in mind I've only comeplted ONE cycle and 2 injections on cycle 2.  My ONC told me to wait until the end of the 3rd cycle, and that may provide a better idea as to how the remainder of the year (12 cycles) will turn out.

          Wish I could comment on the headache…..i'd give it a few more days and if it persists I'd speak  to your ONC AGAIN…..

          Hope you're doing well otherwise.

           

          best,

          jenny

           

          • April 14, 2016 at 6:39 pm
          jenny22
          Participant

            Hi Bradley-

            Wow, nice to see someone esle using Leukine…..I didnt think many were still using it…..I however am, and just started my 2nd cycle.  I was not a good candidate for IPI, so rather than "watch and wait" I agreed to to do the Leukine.  Currently stage IIIB, NED.

            As far as side effects I've had almost NONE, but keep in mind I've only comeplted ONE cycle and 2 injections on cycle 2.  My ONC told me to wait until the end of the 3rd cycle, and that may provide a better idea as to how the remainder of the year (12 cycles) will turn out.

            Wish I could comment on the headache…..i'd give it a few more days and if it persists I'd speak  to your ONC AGAIN…..

            Hope you're doing well otherwise.

             

            best,

            jenny

             

            • April 14, 2016 at 6:39 pm
            jenny22
            Participant

              Hi Bradley-

              Wow, nice to see someone esle using Leukine…..I didnt think many were still using it…..I however am, and just started my 2nd cycle.  I was not a good candidate for IPI, so rather than "watch and wait" I agreed to to do the Leukine.  Currently stage IIIB, NED.

              As far as side effects I've had almost NONE, but keep in mind I've only comeplted ONE cycle and 2 injections on cycle 2.  My ONC told me to wait until the end of the 3rd cycle, and that may provide a better idea as to how the remainder of the year (12 cycles) will turn out.

              Wish I could comment on the headache…..i'd give it a few more days and if it persists I'd speak  to your ONC AGAIN…..

              Hope you're doing well otherwise.

               

              best,

              jenny

               

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