› Forums › General Melanoma Community › Just looking for answers
- This topic has 15 replies, 4 voices, and was last updated 9 years, 8 months ago by
jennunicorn.
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- June 27, 2016 at 11:49 pm
Hi everyone,
A couple weeks ago I went to the dermatologist for a routine body scan, simply because I hadn't been in awhile. She removed two moles from my back and a few days later called and said they were atypical, and one was pre-melanoma (I think those were her words, my head was sort of spinning at that point). She had me come back in for a larger excision so today I went in and she removed the area of skin surrounding the mole. I wish I could recall the size of both the mole and the incision but at this time I can not (I am planning on requesting the pathology report tomorrow).
I asked if this made it more likely that I would get melanoma and she said that No, it's all gone–that it was just in the mole and surrounding tissue and since it's removed, there is no longer a problem. Is this true, that I am good to go now? Are there instances where they run a report on the surrounding skin and find that there is more cancer and that it's spread? What's been your experience?
I go back in two weeks to get the stitches removed so I am hoping to have more answers then. I was feeling okay about this but the more I read the more I realize this could be bigger than I thought. The doctor was really encouraging and didn't seemed worried about anything, but I'm still worried about potential outcomes. My husband is deployed and closest family is about 4 hours away, so I'm just looking for support from people who have been there before.
Thanks to everyone.
Melissa
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- June 28, 2016 at 12:12 am
Melissa-
It sounds like it was just atypical cells which can turn into melanoma, may not ever had if you left it. That being said safe is better than sorry, so derm went for clear margins. Talk to your derm if you need clarification.
Josh
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- June 28, 2016 at 7:06 pm
Thanks for your encouragement. I just reread my initial post and somehow I forgot to include a vital piece of info. When I went in for the excision yesterday one of the first things the doctor said was that the mole was "a melanoma". But then she went on to tell me what I already wrote above: they got it all and I just have to come back every three months to get it checked on. She didn't say if she was sending the excised skin in to the pathologist but my mom (a CRNA) said they would. I'm sure worried that this is going to get progressively worse. At first it was just a suspicious mole, then it was atypical, now it's a melanoma. I already sort of deal with anxiety and this is just making it worse. ๐
Picking up the pathology report later so I can post more specific details
Thanks again.
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- June 28, 2016 at 7:06 pm
Thanks for your encouragement. I just reread my initial post and somehow I forgot to include a vital piece of info. When I went in for the excision yesterday one of the first things the doctor said was that the mole was "a melanoma". But then she went on to tell me what I already wrote above: they got it all and I just have to come back every three months to get it checked on. She didn't say if she was sending the excised skin in to the pathologist but my mom (a CRNA) said they would. I'm sure worried that this is going to get progressively worse. At first it was just a suspicious mole, then it was atypical, now it's a melanoma. I already sort of deal with anxiety and this is just making it worse. ๐
Picking up the pathology report later so I can post more specific details
Thanks again.
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- June 28, 2016 at 7:06 pm
Thanks for your encouragement. I just reread my initial post and somehow I forgot to include a vital piece of info. When I went in for the excision yesterday one of the first things the doctor said was that the mole was "a melanoma". But then she went on to tell me what I already wrote above: they got it all and I just have to come back every three months to get it checked on. She didn't say if she was sending the excised skin in to the pathologist but my mom (a CRNA) said they would. I'm sure worried that this is going to get progressively worse. At first it was just a suspicious mole, then it was atypical, now it's a melanoma. I already sort of deal with anxiety and this is just making it worse. ๐
Picking up the pathology report later so I can post more specific details
Thanks again.
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- June 28, 2016 at 11:03 pm
Your pathology report will have all the info you need. Maybe by pre-melanoma she meant melanoma in situ (also referred to as stage 0) which would mean that the melanoma cells are only within the outer layer of skin, epidermis, and not in the deeper layers that have access to blood and lymph vessels. Basically, an in situ melanoma cannot spread and after an excision of surrounding skin, you probably won't hear the melanoma word again. Like I said though, the pathology will tell you the details you need to know in order to understand what it is you had removed since just saying "it was a melanoma" means nothing if you don't know the stage and other things.
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- June 28, 2016 at 11:03 pm
Your pathology report will have all the info you need. Maybe by pre-melanoma she meant melanoma in situ (also referred to as stage 0) which would mean that the melanoma cells are only within the outer layer of skin, epidermis, and not in the deeper layers that have access to blood and lymph vessels. Basically, an in situ melanoma cannot spread and after an excision of surrounding skin, you probably won't hear the melanoma word again. Like I said though, the pathology will tell you the details you need to know in order to understand what it is you had removed since just saying "it was a melanoma" means nothing if you don't know the stage and other things.
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- June 28, 2016 at 11:03 pm
Your pathology report will have all the info you need. Maybe by pre-melanoma she meant melanoma in situ (also referred to as stage 0) which would mean that the melanoma cells are only within the outer layer of skin, epidermis, and not in the deeper layers that have access to blood and lymph vessels. Basically, an in situ melanoma cannot spread and after an excision of surrounding skin, you probably won't hear the melanoma word again. Like I said though, the pathology will tell you the details you need to know in order to understand what it is you had removed since just saying "it was a melanoma" means nothing if you don't know the stage and other things.
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- June 29, 2016 at 11:26 pm
Hi Melissa,
My situation is very similar to yours. I went to the dermatologist a couple of weeks ago for an all over body check. I hadn't had one in 2 years and at that time they removed 2 atypical moles. Although I wanted an all over check, I was concerned about 2 spots in particular. One on my arm and one on my hip. They biopsied both. The one on my arm was atypical and the one on my hip came back as melanoma – in situ. Like you it terrified me. He explained that on a scale of stages 1-4, mine was a stage 0 because it was caught very early. Yesterday I went back for the removal. He drew a circle with a sharpie to tell me where the melanoma was. Then drew a much larger circle to show me how much he would remove to make sure he got it all and also went down to the muscle. They will send it to a pathologist for confirmation. What really scares me is that I have soooooo many moles – on my arms, back, some on my legs. And none of mine are perfect little light brown circles. I'm driving myself crazy now obsessing over "what if" I miss one and it spreads before I realize it. I read a thread on here where one guy had 42 removed!! Oh, and like you, my doctor wants to see me every 3 months for the next 2 years. If our odds are not increased and they are sure they have removed it all, then why such a scheduled regiment like that?
Jenn
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- June 29, 2016 at 11:26 pm
Hi Melissa,
My situation is very similar to yours. I went to the dermatologist a couple of weeks ago for an all over body check. I hadn't had one in 2 years and at that time they removed 2 atypical moles. Although I wanted an all over check, I was concerned about 2 spots in particular. One on my arm and one on my hip. They biopsied both. The one on my arm was atypical and the one on my hip came back as melanoma – in situ. Like you it terrified me. He explained that on a scale of stages 1-4, mine was a stage 0 because it was caught very early. Yesterday I went back for the removal. He drew a circle with a sharpie to tell me where the melanoma was. Then drew a much larger circle to show me how much he would remove to make sure he got it all and also went down to the muscle. They will send it to a pathologist for confirmation. What really scares me is that I have soooooo many moles – on my arms, back, some on my legs. And none of mine are perfect little light brown circles. I'm driving myself crazy now obsessing over "what if" I miss one and it spreads before I realize it. I read a thread on here where one guy had 42 removed!! Oh, and like you, my doctor wants to see me every 3 months for the next 2 years. If our odds are not increased and they are sure they have removed it all, then why such a scheduled regiment like that?
Jenn
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- June 29, 2016 at 11:26 pm
Hi Melissa,
My situation is very similar to yours. I went to the dermatologist a couple of weeks ago for an all over body check. I hadn't had one in 2 years and at that time they removed 2 atypical moles. Although I wanted an all over check, I was concerned about 2 spots in particular. One on my arm and one on my hip. They biopsied both. The one on my arm was atypical and the one on my hip came back as melanoma – in situ. Like you it terrified me. He explained that on a scale of stages 1-4, mine was a stage 0 because it was caught very early. Yesterday I went back for the removal. He drew a circle with a sharpie to tell me where the melanoma was. Then drew a much larger circle to show me how much he would remove to make sure he got it all and also went down to the muscle. They will send it to a pathologist for confirmation. What really scares me is that I have soooooo many moles – on my arms, back, some on my legs. And none of mine are perfect little light brown circles. I'm driving myself crazy now obsessing over "what if" I miss one and it spreads before I realize it. I read a thread on here where one guy had 42 removed!! Oh, and like you, my doctor wants to see me every 3 months for the next 2 years. If our odds are not increased and they are sure they have removed it all, then why such a scheduled regiment like that?
Jenn
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- June 30, 2016 at 12:19 am
Try not to stress about all of your other moles. Only thing you can do is look for change, some people just have funny looking imperfect moles, doesn't automatically make them dangerous. That is why a montly self check is really good for all people to do. If any moles in particular concern you, take a picture, and compare in a month, if nothing changes it's ok to stay, if something starts to change (shape, color, size, bleeds, etc) then get it biopsied. Also, once you've had any level of skin cancer, derms will recommend you see them fairly often, usually every 6 months for a while, every 3 months is a bit much but makes them money so they're happy. They will be able to look in areas you can't see as well by yourself. Just remember, the odds of getting a second melanoma primary is small, most deal with it once and that's it. Derms like the steady flow of patients, so when they can say you have to come in every 3 months, they're happy. Doesn't mean you HAVE to do it, you could do 6 months. I only see my derm every 6 months, and I am stage 3b.
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- June 30, 2016 at 12:19 am
Try not to stress about all of your other moles. Only thing you can do is look for change, some people just have funny looking imperfect moles, doesn't automatically make them dangerous. That is why a montly self check is really good for all people to do. If any moles in particular concern you, take a picture, and compare in a month, if nothing changes it's ok to stay, if something starts to change (shape, color, size, bleeds, etc) then get it biopsied. Also, once you've had any level of skin cancer, derms will recommend you see them fairly often, usually every 6 months for a while, every 3 months is a bit much but makes them money so they're happy. They will be able to look in areas you can't see as well by yourself. Just remember, the odds of getting a second melanoma primary is small, most deal with it once and that's it. Derms like the steady flow of patients, so when they can say you have to come in every 3 months, they're happy. Doesn't mean you HAVE to do it, you could do 6 months. I only see my derm every 6 months, and I am stage 3b.
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- June 30, 2016 at 12:19 am
Try not to stress about all of your other moles. Only thing you can do is look for change, some people just have funny looking imperfect moles, doesn't automatically make them dangerous. That is why a montly self check is really good for all people to do. If any moles in particular concern you, take a picture, and compare in a month, if nothing changes it's ok to stay, if something starts to change (shape, color, size, bleeds, etc) then get it biopsied. Also, once you've had any level of skin cancer, derms will recommend you see them fairly often, usually every 6 months for a while, every 3 months is a bit much but makes them money so they're happy. They will be able to look in areas you can't see as well by yourself. Just remember, the odds of getting a second melanoma primary is small, most deal with it once and that's it. Derms like the steady flow of patients, so when they can say you have to come in every 3 months, they're happy. Doesn't mean you HAVE to do it, you could do 6 months. I only see my derm every 6 months, and I am stage 3b.
Tagged: cutaneous melanoma
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