Just finished Ipilimumab/Yervoy.

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  • Post
    • December 22, 2011 at 6:17 am
    himynameiskevin
    Participant

      Hey everyone, well I did my fourth and final dose of ipilimumab yesterday. All went well. Unfortunately this whole time while on the drug, I didn't seem to experience a single side effect, I say unfortunately because from what I understand, side effects are a good sign it may work. And I had nothing, so a part of me is a bit disappointed and worried. But who knows, I guess anything thing is possible. I should be thankful that overall I still feel pretty good. I've had a lingering itchy throat cough which signs point to a post nasal drip issue.

      Hey everyone, well I did my fourth and final dose of ipilimumab yesterday. All went well. Unfortunately this whole time while on the drug, I didn't seem to experience a single side effect, I say unfortunately because from what I understand, side effects are a good sign it may work. And I had nothing, so a part of me is a bit disappointed and worried. But who knows, I guess anything thing is possible. I should be thankful that overall I still feel pretty good. I've had a lingering itchy throat cough which signs point to a post nasal drip issue. But other than that I'm doing good. Still working and living close to as normal as I ever have. I'm going to enjoy the holiday and welcome the new year, do my best to make it through the "waiting period" until I have my scans in a couple weeks. I'll let you all know how it goes.  (fingers crossed).

      I hope you're all having an enjoyable holiday season.

      Talk to you soon.
      -Kevin
       

    Viewing 11 reply threads
    • Replies
        • December 22, 2011 at 1:07 pm
        melissa ann
        Participant

          Hi Kevin, My husband finished Ipi in September.  He has his 12 week scans next week.  He also had very little to no side effects.  However, as of right now he is responding.  His last scans showed some significant shrinkage in a mass behind his breastbone and some slight shrinkage in a mass in his chest wall.  We are hoping and praying for further response shown with the scans next week.  We are also living a fairly normal life and are so looking forward to a beautiful holiday.  We wish you the same and we well send thoughts and prayers for response to Ipi for you as well.  Peace and blessings, Melissa

          • December 22, 2011 at 1:07 pm
          melissa ann
          Participant

            Hi Kevin, My husband finished Ipi in September.  He has his 12 week scans next week.  He also had very little to no side effects.  However, as of right now he is responding.  His last scans showed some significant shrinkage in a mass behind his breastbone and some slight shrinkage in a mass in his chest wall.  We are hoping and praying for further response shown with the scans next week.  We are also living a fairly normal life and are so looking forward to a beautiful holiday.  We wish you the same and we well send thoughts and prayers for response to Ipi for you as well.  Peace and blessings, Melissa

            • December 22, 2011 at 1:07 pm
            melissa ann
            Participant

              Hi Kevin, My husband finished Ipi in September.  He has his 12 week scans next week.  He also had very little to no side effects.  However, as of right now he is responding.  His last scans showed some significant shrinkage in a mass behind his breastbone and some slight shrinkage in a mass in his chest wall.  We are hoping and praying for further response shown with the scans next week.  We are also living a fairly normal life and are so looking forward to a beautiful holiday.  We wish you the same and we well send thoughts and prayers for response to Ipi for you as well.  Peace and blessings, Melissa

              • December 22, 2011 at 1:33 pm
              lhaley
              Participant

                Kevin,

                I'm glad to hear from you.  We had someone that posted just the other day that she has had a great response and no side effects at all!  I think it's one of those drugs that just don't always give you a clue!

                Glad your still able living your life even while doing treatments!

                Happy Holidays,

                Linda

                • December 22, 2011 at 1:33 pm
                lhaley
                Participant

                  Kevin,

                  I'm glad to hear from you.  We had someone that posted just the other day that she has had a great response and no side effects at all!  I think it's one of those drugs that just don't always give you a clue!

                  Glad your still able living your life even while doing treatments!

                  Happy Holidays,

                  Linda

                    • December 22, 2011 at 2:19 pm
                    Lisa13
                    Participant

                      Hi Kevin,

                      I finished ipi in August and had no symptoms at all.  After a 12 and 16 week scan, the lung mets I have were shrinking, some disappeared and a couple of others remain stable. I have a 24 week scan at the end of January and hope that these tumours are doing the same thing and nothing is anywhere else.

                      Absolute Lymphocytes are often a good indication that you may be responding.  You can get these results from your blood work.

                      Keep positive!  I hope your scans rock!

                      Lisa

                      • December 22, 2011 at 2:19 pm
                      Lisa13
                      Participant

                        Hi Kevin,

                        I finished ipi in August and had no symptoms at all.  After a 12 and 16 week scan, the lung mets I have were shrinking, some disappeared and a couple of others remain stable. I have a 24 week scan at the end of January and hope that these tumours are doing the same thing and nothing is anywhere else.

                        Absolute Lymphocytes are often a good indication that you may be responding.  You can get these results from your blood work.

                        Keep positive!  I hope your scans rock!

                        Lisa

                        • December 22, 2011 at 3:12 pm
                        NYKaren
                        Participant

                          Hi Kevin,

                          It sounds from the other posters as though there is hope–I hope your scans show improvement.

                          be well,

                          karen

                          • December 22, 2011 at 3:12 pm
                          NYKaren
                          Participant

                            Hi Kevin,

                            It sounds from the other posters as though there is hope–I hope your scans show improvement.

                            be well,

                            karen

                            • December 22, 2011 at 4:36 pm
                            Vermont_Donna
                            Participant

                              Dear Kevin,

                              I did four rounds of ipi a year ago, and had some very minimal side effects…and I am a complete responder….still NED 8 months after my last dose!

                              Merry Christmas to you and your family. Dont give up HOPE!!

                              Vermont_Donna, stage 3a

                              • December 22, 2011 at 4:36 pm
                              Vermont_Donna
                              Participant

                                Dear Kevin,

                                I did four rounds of ipi a year ago, and had some very minimal side effects…and I am a complete responder….still NED 8 months after my last dose!

                                Merry Christmas to you and your family. Dont give up HOPE!!

                                Vermont_Donna, stage 3a

                                • December 22, 2011 at 4:36 pm
                                Vermont_Donna
                                Participant

                                  Dear Kevin,

                                  I did four rounds of ipi a year ago, and had some very minimal side effects…and I am a complete responder….still NED 8 months after my last dose!

                                  Merry Christmas to you and your family. Dont give up HOPE!!

                                  Vermont_Donna, stage 3a

                                  • December 22, 2011 at 3:12 pm
                                  NYKaren
                                  Participant

                                    Hi Kevin,

                                    It sounds from the other posters as though there is hope–I hope your scans show improvement.

                                    be well,

                                    karen

                                    • December 22, 2011 at 2:19 pm
                                    Lisa13
                                    Participant

                                      Hi Kevin,

                                      I finished ipi in August and had no symptoms at all.  After a 12 and 16 week scan, the lung mets I have were shrinking, some disappeared and a couple of others remain stable. I have a 24 week scan at the end of January and hope that these tumours are doing the same thing and nothing is anywhere else.

                                      Absolute Lymphocytes are often a good indication that you may be responding.  You can get these results from your blood work.

                                      Keep positive!  I hope your scans rock!

                                      Lisa

                                    • December 22, 2011 at 1:33 pm
                                    lhaley
                                    Participant

                                      Kevin,

                                      I'm glad to hear from you.  We had someone that posted just the other day that she has had a great response and no side effects at all!  I think it's one of those drugs that just don't always give you a clue!

                                      Glad your still able living your life even while doing treatments!

                                      Happy Holidays,

                                      Linda

                                      • December 23, 2011 at 6:38 am
                                      JerryfromFauq
                                      Participant

                                        BOY!, Show the good side effects.  That's what is really wanted!  Yeah, I know not having bad ones makes us wonder, but one isn't sure until one gets the scan results.  Glad you're feeling good!  My IL-2 side effects made me wonder if it was working, but it sure helped.  Hang in ther aand we're all wantiing to hear the scan results!

                                        • December 23, 2011 at 6:38 am
                                        JerryfromFauq
                                        Participant

                                          BOY!, Show the good side effects.  That's what is really wanted!  Yeah, I know not having bad ones makes us wonder, but one isn't sure until one gets the scan results.  Glad you're feeling good!  My IL-2 side effects made me wonder if it was working, but it sure helped.  Hang in ther aand we're all wantiing to hear the scan results!

                                          • December 23, 2011 at 6:38 am
                                          JerryfromFauq
                                          Participant

                                            BOY!, Show the good side effects.  That's what is really wanted!  Yeah, I know not having bad ones makes us wonder, but one isn't sure until one gets the scan results.  Glad you're feeling good!  My IL-2 side effects made me wonder if it was working, but it sure helped.  Hang in ther aand we're all wantiing to hear the scan results!

                                            • December 28, 2011 at 4:25 am
                                            momof2kids
                                            Participant

                                              I finished my 4 doses of IPI/Yervoy in Nov 2011, scan in Dec 2nd showed shrinkage in liver & lung mets (each over 6cm big), shrunk down to almost nothing, on the 1st scan.

                                              I never had a SINGLE SIDE EFFECT, and I never understood the numbers on my paperwork, so I can't even tell you if my numbers were up/down, etc!

                                              It can work on anyone, side effects or not!  31 years old here, no idea if age helps or not!

                                              • December 28, 2011 at 4:25 am
                                              momof2kids
                                              Participant

                                                I finished my 4 doses of IPI/Yervoy in Nov 2011, scan in Dec 2nd showed shrinkage in liver & lung mets (each over 6cm big), shrunk down to almost nothing, on the 1st scan.

                                                I never had a SINGLE SIDE EFFECT, and I never understood the numbers on my paperwork, so I can't even tell you if my numbers were up/down, etc!

                                                It can work on anyone, side effects or not!  31 years old here, no idea if age helps or not!

                                                • December 28, 2011 at 4:25 am
                                                momof2kids
                                                Participant

                                                  I finished my 4 doses of IPI/Yervoy in Nov 2011, scan in Dec 2nd showed shrinkage in liver & lung mets (each over 6cm big), shrunk down to almost nothing, on the 1st scan.

                                                  I never had a SINGLE SIDE EFFECT, and I never understood the numbers on my paperwork, so I can't even tell you if my numbers were up/down, etc!

                                                  It can work on anyone, side effects or not!  31 years old here, no idea if age helps or not!

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