Just diagnosed with Metastatic melanoma of liver/lung/lymph nodes

Forums General Melanoma Community Just diagnosed with Metastatic melanoma of liver/lung/lymph nodes

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    BugsyCarter
    Participant

      Hello,

      I have just been told that I have Stage 4 metastatic melanoma of the liver/lung/lymph nodes.

      I am currently researching physicians to see and places to go.  I have an appointment with a local oncologist in Ventura County.

      I also have appointments with Dr. Hamid in Santa Monica and Dr Kim Margolin at the City of Hope

      My wife would like me to consider MD Anderson (possibly starting out at Scripts as they refer to MDA), Also Cancer Centers of America and/or Mayo Clinic.  I am not so inclined to leave the state.  Is the care better??

      We would love and appreciate suggestions.  We have no idea of what to expact.

       

      Thank you,

      Robert

       

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        Bubbles
        Participant

          Sorry for what you are dealing with Robert. Most of us here certainly recommend that you see a melanoma specialist.  Dr. Omid Hamid in Los Angeles has a great reputation.  MD Anderson provides specialized care as well.  Learning about your diagnosis and treatment options is an essential first step and it seems you are on your way to doing that.  Here is a primer I put together that covers basic melanoma care, perhaps you will find it helpful:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2017/08/melanoma-intel-primer-for-current.html

          There are many amazing melanoma peeps on this forum who will supply you with great information and support.  Ask questions as you need.  I wish you my best.  Celeste

          doragsda
          Participant

            My wife sees Dr. Hamid;  he is outstanding and up to date on the leading edge of treatments in melanoma.

            She was diagnosed stage IV with brain mets in July, 2017.   She's had a craniotomy, gamma knife, and is currently on Opdivo after finishing the Yervoy/Opdivo combo.   Her last scans in February show no metabolic activity at any of her tumor sites – she is in remission.   We're in San Luis Obispo.    Angeles Clinic and Dr. Hamid are very close to you.    USC also has a stellar reputation for melanoma.    City of Hope seems to be growing their melanoma program, and has the benefit of having almost anything you would need under one roof.   I don't think you'll go wrong choosing any of them.  Dr. Hamid works with a local oncologist in SLO, so my wife receives her immunotherapy infusions within 1/4 mile of our house, and we just go down to Angeles every 3 months or so.   Hamid shares a couple of patients with the local oncologist, so it's helpful that they have a pre-existing relationship and we don't have to travel so much for quality care that is guided and overseen by Dr. Hamid.   Good luck to you.   The progress in melanoma treatments in just the last few years has been astounding.

              Cooper
              Participant

                We love UCLA and Dr. Ribas.  He has done so much research!  They also have the best pathologists!  It is a beautiful campus too.

                Cooper
                Participant

                  We love UCLA and Dr. Ribas.  He has done so much research!  They also have the best pathologists!  It is a beautiful campus too.

                CancerSpouse
                Participant

                  Hello, sorry to hear of your troubles. My husband, also Stage IV since diagnosis last October, sees Dr. Ribas at UCLA as well. We are very happy with him. Dr. Hamid also has a great reputation. City of Hope is excellent, but much farther than is the westside from Ventura County. You have many excellent options in LA, including USC Norris Cancer Center. ~ Carol

                   

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