JanOC at MDA

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  • Post
    • October 22, 2011 at 5:21 pm
    killmel
    Participant

      Jan,

       

      I hope things are going well. I am a little worried that you have not posted for awhile.

       

      Anyone heard from Jan?

       

      Mary

      Jan,

       

      I hope things are going well. I am a little worried that you have not posted for awhile.

       

      Anyone heard from Jan?

       

      Mary

    Viewing 5 reply threads
    • Replies
        • October 22, 2011 at 7:13 pm
        RMcLegal
        Participant

          Last I knew, she and Dirk were in Houston and he's being treated at MDA.  She posted a joke photo about CT scans on her facebook page today, so that seems like a good sign.

          • October 22, 2011 at 7:13 pm
          RMcLegal
          Participant

            Last I knew, she and Dirk were in Houston and he's being treated at MDA.  She posted a joke photo about CT scans on her facebook page today, so that seems like a good sign.

            • October 22, 2011 at 7:13 pm
            RMcLegal
            Participant

              Last I knew, she and Dirk were in Houston and he's being treated at MDA.  She posted a joke photo about CT scans on her facebook page today, so that seems like a good sign.

              • October 23, 2011 at 1:59 am
              Jan in OC
              Participant

                Hey everyone…thanks for your concern.  Yeah, we are still here, just haven't been on the computer much!  I am spending more time at the hospital than home this last month or so.  Dirk had a round of BioChemo, immediately followed by 10 days of Whole Brain Radiation…a week of recovery…then another 7 days in the hospital for more BioChemo.

                This has really knocked him down, tired, no appetite, some memory loss.  His comprehension and thinking abilities have been impacted to a small degree.  I am hoping that these will return with time.

                We are scheduled for CT and MRI on Nov 1st, if scans show improvement, maybe another round or two of BioChemo and gamma knife to any leftover brain mets (hoping they are all zapped!).  Try not to look at his "spots" every day hoping for change! 

                Just trying to get through one day at a time.  Taking small walks with him to build up his strength, trying to get him to eat (a bit of nausea and loss of appetite). Dealing with hair loss and peeling skin.  All of the fun side effects of brain surgery, chemo, IL-2, Interferon and radiation!

                Feel free to email or facebook anytime cool

                 Jan 

                 

                  • October 23, 2011 at 2:35 am
                  lhaley
                  Participant

                    Jan,

                    What is your fb?

                    Linda

                    • October 23, 2011 at 5:54 am
                    Jan in OC
                    Participant

                      Sorry…look up "Jan Ernst".  If you send me a friend request, please mention MRF.  I posted my email once on here and got some mighty strange emails, so first timers can send a message thru the MRF's profile section and I will respond.

                      Jan

                      • October 23, 2011 at 10:24 am
                      JerryfromFauq
                      Participant

                        Weird responses that seem to come from Postings on the MPIP should be reported to:smoneer@melanoma.org

                        • October 23, 2011 at 6:36 pm
                        Jan in OC
                        Participant

                          Thabks Jerry, for the info.  I will keep it in case of another occurrence.

                          • October 23, 2011 at 6:36 pm
                          Jan in OC
                          Participant

                            Thabks Jerry, for the info.  I will keep it in case of another occurrence.

                            • October 23, 2011 at 6:36 pm
                            Jan in OC
                            Participant

                              Thabks Jerry, for the info.  I will keep it in case of another occurrence.

                              • October 23, 2011 at 10:24 am
                              JerryfromFauq
                              Participant

                                Weird responses that seem to come from Postings on the MPIP should be reported to:smoneer@melanoma.org

                                • October 23, 2011 at 10:24 am
                                JerryfromFauq
                                Participant

                                  Weird responses that seem to come from Postings on the MPIP should be reported to:smoneer@melanoma.org

                                  • October 23, 2011 at 12:18 pm
                                  Gene_S
                                  Participant

                                    Great to hear from you again Jan as I have been wondering how you and hubby are doing.  I hope you get great scan results.

                                    I tried the facebook thing but so many Jan Ernst and I don't know which one you are.

                                    Judy (loving wife and caregiver of Gene)

                                    • October 23, 2011 at 6:38 pm
                                    Jan in OC
                                    Participant

                                      Can't help the common name, blame my parents and husband!  LOL!!  My profile pic is pretty cute…a cat peeking out of the top of a PopTart box!  

                                      Jan

                                      • October 23, 2011 at 6:38 pm
                                      Jan in OC
                                      Participant

                                        Can't help the common name, blame my parents and husband!  LOL!!  My profile pic is pretty cute…a cat peeking out of the top of a PopTart box!  

                                        Jan

                                        • October 23, 2011 at 6:38 pm
                                        Jan in OC
                                        Participant

                                          Can't help the common name, blame my parents and husband!  LOL!!  My profile pic is pretty cute…a cat peeking out of the top of a PopTart box!  

                                          Jan

                                          • October 23, 2011 at 12:18 pm
                                          Gene_S
                                          Participant

                                            Great to hear from you again Jan as I have been wondering how you and hubby are doing.  I hope you get great scan results.

                                            I tried the facebook thing but so many Jan Ernst and I don't know which one you are.

                                            Judy (loving wife and caregiver of Gene)

                                            • October 23, 2011 at 12:18 pm
                                            Gene_S
                                            Participant

                                              Great to hear from you again Jan as I have been wondering how you and hubby are doing.  I hope you get great scan results.

                                              I tried the facebook thing but so many Jan Ernst and I don't know which one you are.

                                              Judy (loving wife and caregiver of Gene)

                                              • October 23, 2011 at 5:54 am
                                              Jan in OC
                                              Participant

                                                Sorry…look up "Jan Ernst".  If you send me a friend request, please mention MRF.  I posted my email once on here and got some mighty strange emails, so first timers can send a message thru the MRF's profile section and I will respond.

                                                Jan

                                                • October 23, 2011 at 5:54 am
                                                Jan in OC
                                                Participant

                                                  Sorry…look up "Jan Ernst".  If you send me a friend request, please mention MRF.  I posted my email once on here and got some mighty strange emails, so first timers can send a message thru the MRF's profile section and I will respond.

                                                  Jan

                                                  • October 23, 2011 at 2:35 am
                                                  lhaley
                                                  Participant

                                                    Jan,

                                                    What is your fb?

                                                    Linda

                                                    • October 23, 2011 at 2:35 am
                                                    lhaley
                                                    Participant

                                                      Jan,

                                                      What is your fb?

                                                      Linda

                                                    • October 23, 2011 at 1:59 am
                                                    Jan in OC
                                                    Participant

                                                      Hey everyone…thanks for your concern.  Yeah, we are still here, just haven't been on the computer much!  I am spending more time at the hospital than home this last month or so.  Dirk had a round of BioChemo, immediately followed by 10 days of Whole Brain Radiation…a week of recovery…then another 7 days in the hospital for more BioChemo.

                                                      This has really knocked him down, tired, no appetite, some memory loss.  His comprehension and thinking abilities have been impacted to a small degree.  I am hoping that these will return with time.

                                                      We are scheduled for CT and MRI on Nov 1st, if scans show improvement, maybe another round or two of BioChemo and gamma knife to any leftover brain mets (hoping they are all zapped!).  Try not to look at his "spots" every day hoping for change! 

                                                      Just trying to get through one day at a time.  Taking small walks with him to build up his strength, trying to get him to eat (a bit of nausea and loss of appetite). Dealing with hair loss and peeling skin.  All of the fun side effects of brain surgery, chemo, IL-2, Interferon and radiation!

                                                      Feel free to email or facebook anytime cool

                                                       Jan 

                                                       

                                                      • October 23, 2011 at 1:59 am
                                                      Jan in OC
                                                      Participant

                                                        Hey everyone…thanks for your concern.  Yeah, we are still here, just haven't been on the computer much!  I am spending more time at the hospital than home this last month or so.  Dirk had a round of BioChemo, immediately followed by 10 days of Whole Brain Radiation…a week of recovery…then another 7 days in the hospital for more BioChemo.

                                                        This has really knocked him down, tired, no appetite, some memory loss.  His comprehension and thinking abilities have been impacted to a small degree.  I am hoping that these will return with time.

                                                        We are scheduled for CT and MRI on Nov 1st, if scans show improvement, maybe another round or two of BioChemo and gamma knife to any leftover brain mets (hoping they are all zapped!).  Try not to look at his "spots" every day hoping for change! 

                                                        Just trying to get through one day at a time.  Taking small walks with him to build up his strength, trying to get him to eat (a bit of nausea and loss of appetite). Dealing with hair loss and peeling skin.  All of the fun side effects of brain surgery, chemo, IL-2, Interferon and radiation!

                                                        Feel free to email or facebook anytime cool

                                                         Jan 

                                                         

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