Well I took Shane for a regular old eye exam to get new glasses and they saw what is a suspected metastisis in his eye. Thank goodness we already are seeing the oncologist and radiologist on Monday. The plan was to get radiation on the big sub q in his side/back and get spinal radiation at T8 T7 and L4.
Now with this development I’m not sure if the plan will change. They may have to do occular radiation. Mets to the eye are very rare but shane seems to get all the rare stuffor in his cancer journey.
He’s 8 months post open from a clnd and 2 days ago the incision developed a hole and pus was coming out. So onto antibiotics he went. The hole has gotten Bigger so I hope it closes up once the infection is gone.
And lastly a bit of good news. PMH reviewed Shane’s latest brain MRI and doesn’t think there is progression. It’s all tissue death making the tumor look bigger. So while not shrinking, he hasn’t progressed in the brain. We have followup scans in 3 months to check again. For now he’s staying on dabrafenib and tramentinib while we work out insurance for ipi/nivo as its not funded here.
Janis
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