My name is Belva and my husband Lynn is battling melenoma. I joined this forum to make new friends and find out new information. Sometimes it is easy talking to someone who is going through the same thing you are.
My name is Belva and my husband Lynn is battling melenoma. I joined this forum to make new friends and find out new information. Sometimes it is easy talking to someone who is going through the same thing you are.
We have had WBRT (through some crazy doctor who knows nothing about melenoma). We are currently being seen at MUSC in Charleston South Carolina and seing a melanoma specialist that is very update on all clinical trials and is actively searching for new advances. Dr. Shirai and his staff are very gentle and understand. Such as differences in the prior dr we had.
We have also had Gamma Knife surgery to 5 very small brain lesions. This was done on Feb 20th of this year. Gamma Knife was a breeze no problems. We are currently going through the ippi treatments. First 2 was very easy no side effects although after the after second treatment we noticed some new growths on skin. Showed this to the doctor on our third treatment day and he wasnt concerned he said with ippi that happens sometimes. Jimmy asked about blood. I asked this question each time and they say blood work is doing wonderful. We had third ipi treatment on March 13 and with this one he has had a little nasuea and some fatigue. I feel like i am sitting on a time bomb and feel so scared and alone.
Anybody with any comforting words or thoughts it would be greatlly appreciated. Again thanks for letting me post and May God bless each of you on your journey with this terrible disease. Remember by his stripes we are healed.
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