ipilimumab-fusion #2

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  • Post
    • August 2, 2013 at 5:15 pm
    Jims wife
    Participant

      My husband had his second treatment on Wednesday.  He is stage 4 (into lungs).  On the way home from Boston, his system let loose and he could noy control the diahrea.  They had him take prednisone and return to the hospital for a few hours.  He has had one or two incidents since but nothing like that commute home and the following hours.  Has anyone experienced this reaction?  I see people mentioning rashes.  This was very frustrating and upsetting for him.

      Any thoughts?

      My husband had his second treatment on Wednesday.  He is stage 4 (into lungs).  On the way home from Boston, his system let loose and he could noy control the diahrea.  They had him take prednisone and return to the hospital for a few hours.  He has had one or two incidents since but nothing like that commute home and the following hours.  Has anyone experienced this reaction?  I see people mentioning rashes.  This was very frustrating and upsetting for him.

      Any thoughts?

    Viewing 2 reply threads
    • Replies
        • August 2, 2013 at 6:30 pm
        NYKaren
        Participant
          Yes.
          Some docs do Budesonide EC, a steroid that is for the gut. I was in it for months, and it is very helpful. I had to check in with the onc nurse practically every day. If he does get put on that it is NOT like prednisone, meaning it is not a systemic steroid, and does not count “towards” a systemic (I believe you can only take 7.5 mg of systemic steroids a day on Ipi. Some docs will have you take immodium first.
          This is a serious side effect, but can be managed, trust me, I was the queen!
          Please feel to message me. I have a lot of posts on this.
          All the best,
          Karen
          • August 2, 2013 at 6:30 pm
          NYKaren
          Participant
            Yes.
            Some docs do Budesonide EC, a steroid that is for the gut. I was in it for months, and it is very helpful. I had to check in with the onc nurse practically every day. If he does get put on that it is NOT like prednisone, meaning it is not a systemic steroid, and does not count “towards” a systemic (I believe you can only take 7.5 mg of systemic steroids a day on Ipi. Some docs will have you take immodium first.
            This is a serious side effect, but can be managed, trust me, I was the queen!
            Please feel to message me. I have a lot of posts on this.
            All the best,
            Karen
            • August 2, 2013 at 6:30 pm
            NYKaren
            Participant
              Yes.
              Some docs do Budesonide EC, a steroid that is for the gut. I was in it for months, and it is very helpful. I had to check in with the onc nurse practically every day. If he does get put on that it is NOT like prednisone, meaning it is not a systemic steroid, and does not count “towards” a systemic (I believe you can only take 7.5 mg of systemic steroids a day on Ipi. Some docs will have you take immodium first.
              This is a serious side effect, but can be managed, trust me, I was the queen!
              Please feel to message me. I have a lot of posts on this.
              All the best,
              Karen
              • August 4, 2013 at 1:33 am
              NYKaren
              Participant
                Hi, I’ve sent you my email… Please let me know you’ve gotten it. I am not a doctor, just know what questions to ask!
                All the best,
                Karen
                • August 4, 2013 at 1:33 am
                NYKaren
                Participant
                  Hi, I’ve sent you my email… Please let me know you’ve gotten it. I am not a doctor, just know what questions to ask!
                  All the best,
                  Karen
                  • August 4, 2013 at 1:33 am
                  NYKaren
                  Participant
                    Hi, I’ve sent you my email… Please let me know you’ve gotten it. I am not a doctor, just know what questions to ask!
                    All the best,
                    Karen
                Viewing 2 reply threads
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