Infliximab/Remicade

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    • June 26, 2018 at 1:09 am
    tedtell1
    Participant

      Hey everybody;

      Happy be NED but dealing with the nasty side effects …..so it looks like this week I will be going back in to infusion for a dose of Infliximab to work on the colitis I have developed. I have also developed Type II insulin required diabetes from the high dose steroids…..ugh….but hey, not tumors, right! Question is, has anyone had experience with the Infliximab infusions for colitis? How did it go, any side effects. I am expected first one on Weds., then hopping on a plane to go out East on Thursday, so it would be nice to have the antenna up for any potential side effect issues. 

      Thanks for any info folks!

      Blessings,

      Ted

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        • June 28, 2018 at 2:24 am
        kst
        Participant

          After a week of high dose steroids to battle colitis and other Nivo related AE's, I was given Infliximab.  Solved colitis within a few hours and was able to stop steroids immediately.  Still having problems with joints that have required reintroduction to steroids but all other AE's remain resolved.  

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