Dad is still here at the hospital. The progression is very slow. He still cannot move well, walk, feed himself, get on the toilet etc. Its so scary. Mom or I are here with him 24/7. Not sleeping more that about 1 1/2 hours at a time. He is so miserable. Last night he told me he wanted to die. I know he is just frustrated and miserable, but I hate hearing him say that.
So the game plan is to start him on NIVO (I hope I have all of the names correct, the last few days is a blur). The thought process is that he is 72 years old, just had brain surgery and is recoving from it. We need to get somthing going ASAP. The Ono (that Dad likes) met with the Brain tumor board that included a Melanoma specialist yesterday and that is the conclusion that they all came to, his Ono is also in communication with the doc at City of Hope and USC. They feel that he will tolerate 1 drug better right now instead of starting on a combo of Nivo/ipi? and they feel that we can add anthother drug later if he doesn't respond well. The Brain surgeon hopes that he will be released this coming Thursday (we shall see) and they are hoping to start with the NIVO on Friday.
Thats the latest.
