Have You Responded to Marketing Surveys on this site?

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  • Post
    • June 1, 2011 at 2:21 am
    Charlie S
    Participant

      Over the past few months, several marketing companies have recruited people via the bulletin board to participate in paid marketing research.

      Three questions.

      Did you respond to the post, did you participate and did you get paid?

      I am somewhat concerned about patient exploitation occuring here that benefits commercial enterprise.

      No, I do not work for the MRF, but I do suspect pharma creeping in here and I do not like it, and it needs to be rooted out on any  patient forum before it takes seed.

      Charlie S

      Over the past few months, several marketing companies have recruited people via the bulletin board to participate in paid marketing research.

      Three questions.

      Did you respond to the post, did you participate and did you get paid?

      I am somewhat concerned about patient exploitation occuring here that benefits commercial enterprise.

      No, I do not work for the MRF, but I do suspect pharma creeping in here and I do not like it, and it needs to be rooted out on any  patient forum before it takes seed.

      Charlie S

    Viewing 17 reply threads
    • Replies
        • June 1, 2011 at 2:33 am
        jag
        Participant

          I did participate, and I got paid.  Pharma companies are helping me pay ma bills.

          I was happily exploited to the tune of $200/hr.

          • June 1, 2011 at 2:33 am
          jag
          Participant

            I did participate, and I got paid.  Pharma companies are helping me pay ma bills.

            I was happily exploited to the tune of $200/hr.

              • June 1, 2011 at 7:54 am
              NicOz
              Participant

                Somehow, I bet you talked very slowly 😛

                • June 1, 2011 at 7:54 am
                NicOz
                Participant

                  Somehow, I bet you talked very slowly 😛

                  • June 1, 2011 at 10:14 pm
                  nicoli
                  Participant

                    Ha, Ha, Ha. I am still laughing. I NEED a heartly laugh every day and this is today's! Thanks.

                    Nicki

                    • June 1, 2011 at 10:14 pm
                    nicoli
                    Participant

                      Ha, Ha, Ha. I am still laughing. I NEED a heartly laugh every day and this is today's! Thanks.

                      Nicki

                      • June 1, 2011 at 10:23 pm
                      jag
                      Participant

                        Ha!

                        • June 1, 2011 at 10:23 pm
                        jag
                        Participant

                          Ha!

                        • June 1, 2011 at 3:40 am
                        dian in spokane
                        Participant

                          participated..

                          paid.

                           

                          how you doing? I was just wondering about you. haven't seen you in chat lately

                          dian

                          • June 1, 2011 at 3:40 am
                          dian in spokane
                          Participant

                            participated..

                            paid.

                             

                            how you doing? I was just wondering about you. haven't seen you in chat lately

                            dian

                            • June 1, 2011 at 3:41 am
                            dian in spokane
                            Participant

                              oh! I just realized. The one I participated in was from a referral from another patient.

                               

                              but I did see it on here later

                              d

                              • June 1, 2011 at 3:41 am
                              dian in spokane
                              Participant

                                oh! I just realized. The one I participated in was from a referral from another patient.

                                 

                                but I did see it on here later

                                d

                                • June 1, 2011 at 6:31 am
                                washoegal
                                Participant

                                  Did not participate.  would not unless they come from MRF and then still not likely.

                                  Mary

                                  Stage 3

                                  • June 1, 2011 at 6:31 am
                                  washoegal
                                  Participant

                                    Did not participate.  would not unless they come from MRF and then still not likely.

                                    Mary

                                    Stage 3

                                    • June 1, 2011 at 12:46 pm
                                    Jerry from Cape Cod
                                    Participant

                                      Participated in three.  In all they were good experiences.  Have not been paid for the last one yet (2 months).  So far a string of excuses.

                                      I will participate again, but make sure that the payment follows in a reasonable time.

                                      Jerry from Cape Cod

                                      • June 1, 2011 at 12:46 pm
                                      Jerry from Cape Cod
                                      Participant

                                        Participated in three.  In all they were good experiences.  Have not been paid for the last one yet (2 months).  So far a string of excuses.

                                        I will participate again, but make sure that the payment follows in a reasonable time.

                                        Jerry from Cape Cod

                                          • June 1, 2011 at 12:55 pm
                                          KatyWI
                                          Participant

                                            Jerry, same here – I am only somewhat relieved to know I'm not the only one who hasn't yet been paid for the last survey.  Maybe we should take turns and call Christine every single day…devil

                                            From a larger perspective, I don't object to marketing companies using the occasional forum post to recruit respondents.  I am happy they are realizing they need a patient's perspective.

                                            KatyWI

                                            • June 1, 2011 at 12:55 pm
                                            KatyWI
                                            Participant

                                              Jerry, same here – I am only somewhat relieved to know I'm not the only one who hasn't yet been paid for the last survey.  Maybe we should take turns and call Christine every single day…devil

                                              From a larger perspective, I don't object to marketing companies using the occasional forum post to recruit respondents.  I am happy they are realizing they need a patient's perspective.

                                              KatyWI

                                              • June 1, 2011 at 4:36 pm
                                              KellieSue
                                              Participant

                                                Participated in 2, got paid for one. Still waiting on the big $200 payout. Would really come in handy right now.

                                                Kellie(from  Iowa) Stage IV

                                                • June 1, 2011 at 4:36 pm
                                                KellieSue
                                                Participant

                                                  Participated in 2, got paid for one. Still waiting on the big $200 payout. Would really come in handy right now.

                                                  Kellie(from  Iowa) Stage IV

                                                • June 1, 2011 at 5:46 pm
                                                Anonymous
                                                Inactive

                                                  Charlie,

                                                  Thanks for asking these questions.  I believe that all of those companies requesting surveys asked our permission before posting on the bulletin board.  In the future though, when companies ask us about that, would you (everyone else please answer as well) prefer that the MRF actually posts the information?  We generally check into the company, but then make them post their questions/information themselves.  We can certainly ask them not to post on the bulletin board so that those types of things come from us instead.  Let me know and we can figure out the best way to go about that, keeping in mind that we won't let these types of requests from companies get out of control.  Thanks so much!

                                                  Shelby – MRF

                                                  • June 1, 2011 at 5:46 pm
                                                  Anonymous
                                                  Inactive

                                                    Charlie,

                                                    Thanks for asking these questions.  I believe that all of those companies requesting surveys asked our permission before posting on the bulletin board.  In the future though, when companies ask us about that, would you (everyone else please answer as well) prefer that the MRF actually posts the information?  We generally check into the company, but then make them post their questions/information themselves.  We can certainly ask them not to post on the bulletin board so that those types of things come from us instead.  Let me know and we can figure out the best way to go about that, keeping in mind that we won't let these types of requests from companies get out of control.  Thanks so much!

                                                    Shelby – MRF

                                                      • June 1, 2011 at 6:06 pm
                                                      KatyWI
                                                      Participant

                                                        If the MRF is checking into the company, I for one would prefer to see the posting originate from the MRF as a means of telling us that "checking" has occured.  I think you could just add a disclaimer to make clear that you have no affiliation with the research firm or their clients. 

                                                        I don't think it's too likely that research into the perspectives of MM patients will get "out of control" any time soon. 

                                                        KatyWI

                                                        • June 1, 2011 at 6:06 pm
                                                        KatyWI
                                                        Participant

                                                          If the MRF is checking into the company, I for one would prefer to see the posting originate from the MRF as a means of telling us that "checking" has occured.  I think you could just add a disclaimer to make clear that you have no affiliation with the research firm or their clients. 

                                                          I don't think it's too likely that research into the perspectives of MM patients will get "out of control" any time soon. 

                                                          KatyWI

                                                          • June 1, 2011 at 6:32 pm
                                                          Anonymous
                                                          Inactive

                                                            Sounds good.  Thanks, Katy!

                                                            • June 1, 2011 at 6:32 pm
                                                            Anonymous
                                                            Inactive

                                                              Sounds good.  Thanks, Katy!

                                                              • June 1, 2011 at 7:45 pm
                                                              Jerry from Cape Cod
                                                              Participant

                                                                Shelly,

                                                                Personally I would prefer that you keep the posting the way it is now.  All the firms that post are reputable and we certainly are not under seige, so why add another layer. 

                                                                Also, there is a chance that some firms may skip posting to the MRF altoghether if you add a layer.  We are not the only place that a companies recruiters can find participants.  Why take the chance of some loosing the opportunity.

                                                                On a personal note I would do another survey with the company that has the late payment.  I have recieved a response and a reasonable explaination.  It's just that in the future I would make sure to have the payment info fully understood in the pre-interview.  It's not a big problem.

                                                                If you make too many rules then you will need rules to make rules.

                                                                Just my 2 cents worth.

                                                                Jerry from Cape Cod

                                                                • June 1, 2011 at 7:45 pm
                                                                Jerry from Cape Cod
                                                                Participant

                                                                  Shelly,

                                                                  Personally I would prefer that you keep the posting the way it is now.  All the firms that post are reputable and we certainly are not under seige, so why add another layer. 

                                                                  Also, there is a chance that some firms may skip posting to the MRF altoghether if you add a layer.  We are not the only place that a companies recruiters can find participants.  Why take the chance of some loosing the opportunity.

                                                                  On a personal note I would do another survey with the company that has the late payment.  I have recieved a response and a reasonable explaination.  It's just that in the future I would make sure to have the payment info fully understood in the pre-interview.  It's not a big problem.

                                                                  If you make too many rules then you will need rules to make rules.

                                                                  Just my 2 cents worth.

                                                                  Jerry from Cape Cod

                                                                  • June 1, 2011 at 8:08 pm
                                                                  Charlie S
                                                                  Participant

                                                                    Shelby, I tend to agree with Jerry about more rules, and it would be one more task for a staffer to do.  How about if you are having a conversation with a company just tell them to mention in their post that they have spoken with the MRF and have permission to post.

                                                                    That way, the MRF does not risk any direct involvement beyond permission to post.

                                                                    If patients find a huckster afoot, we can pass that along.

                                                                    Actually, I think it is great that somebody is seeking patient input beyond a vial of blood and lab experiment …………and offering money to do so.

                                                                    Cheers,

                                                                    Charlie S

                                                                    • June 1, 2011 at 8:08 pm
                                                                    Charlie S
                                                                    Participant

                                                                      Shelby, I tend to agree with Jerry about more rules, and it would be one more task for a staffer to do.  How about if you are having a conversation with a company just tell them to mention in their post that they have spoken with the MRF and have permission to post.

                                                                      That way, the MRF does not risk any direct involvement beyond permission to post.

                                                                      If patients find a huckster afoot, we can pass that along.

                                                                      Actually, I think it is great that somebody is seeking patient input beyond a vial of blood and lab experiment …………and offering money to do so.

                                                                      Cheers,

                                                                      Charlie S

                                                                      • June 1, 2011 at 10:17 pm
                                                                      nicoli
                                                                      Participant

                                                                        I want $200. Where do I sign up?

                                                                        Nicki

                                                                        • June 1, 2011 at 10:17 pm
                                                                        nicoli
                                                                        Participant

                                                                          I want $200. Where do I sign up?

                                                                          Nicki

                                                                          • June 2, 2011 at 7:46 pm
                                                                          Jerry from Cape Cod
                                                                          Participant

                                                                            Mark this one down.  Charlie agreed with me. devil

                                                                             

                                                                            Jerry from Cape Cod

                                                                            • June 2, 2011 at 7:46 pm
                                                                            Jerry from Cape Cod
                                                                            Participant

                                                                              Mark this one down.  Charlie agreed with me. devil

                                                                               

                                                                              Jerry from Cape Cod

                                                                            • June 3, 2011 at 4:55 am
                                                                            Gene_S
                                                                            Participant

                                                                              Hi, I did take a marketing survey, it lasted over one and half hours.

                                                                              It took so long because I really wanted to express how I felt and how other melanoma

                                                                              patients felt.

                                                                              Moving forward, they should make it known what drug they want your opinions about before you sign on to do their survey!

                                                                              Best wishes,

                                                                              Gene

                                                                              • June 3, 2011 at 4:55 am
                                                                              Gene_S
                                                                              Participant

                                                                                Hi, I did take a marketing survey, it lasted over one and half hours.

                                                                                It took so long because I really wanted to express how I felt and how other melanoma

                                                                                patients felt.

                                                                                Moving forward, they should make it known what drug they want your opinions about before you sign on to do their survey!

                                                                                Best wishes,

                                                                                Gene

                                                                                • June 3, 2011 at 3:01 pm
                                                                                EricNJill
                                                                                Participant

                                                                                  Eric participated in a long survey.  We also have not been paid.  I believe our contact is Christine.  Still hope they will pay, we could really use it.

                                                                                   

                                                                                  JillNEric in OH

                                                                                    • June 3, 2011 at 3:13 pm
                                                                                    Gene_S
                                                                                    Participant

                                                                                      My interviewer said it would be four to six weeks before I will get the check.

                                                                                      I still have a few more weeks to go.

                                                                                      Best wishes,

                                                                                      Gene

                                                                                      • June 3, 2011 at 3:13 pm
                                                                                      Gene_S
                                                                                      Participant

                                                                                        My interviewer said it would be four to six weeks before I will get the check.

                                                                                        I still have a few more weeks to go.

                                                                                        Best wishes,

                                                                                        Gene

                                                                                      • June 3, 2011 at 3:01 pm
                                                                                      EricNJill
                                                                                      Participant

                                                                                        Eric participated in a long survey.  We also have not been paid.  I believe our contact is Christine.  Still hope they will pay, we could really use it.

                                                                                         

                                                                                        JillNEric in OH

                                                                                        • June 4, 2011 at 3:03 am
                                                                                        KatyWI
                                                                                        Participant

                                                                                          The check for the survey I did back in March actually came today!  'Bout fell over…

                                                                                          So I figure Eric, Jerry, and others will get theirs very soon.

                                                                                          KatyWI

                                                                                          • June 4, 2011 at 3:03 am
                                                                                          KatyWI
                                                                                          Participant

                                                                                            The check for the survey I did back in March actually came today!  'Bout fell over…

                                                                                            So I figure Eric, Jerry, and others will get theirs very soon.

                                                                                            KatyWI

                                                                                        Viewing 17 reply threads
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