Great update

Friends;

As I haven't posted for a while, I thought I would share some great news. After having been diagnosed in February with stage IV, (secondary deep tumor on back spread through the blood) and a WLE repeated scans and treatment with NIVO I continue to show no sign of any further growth or tumors. My body wasn't really crazy about the NIVO and I have developed colitis after 4 months. Treatment with prednisone has spiked my blood sugars and created an insulin necessary diabetes. This condition seems to be very temporary as the blood sugar is fine until I take the prednisone. I believe this will resolve quickly when I taper of prednisone, which should start soon as it does not seem to be doing the trick and the doc is going to change tactics to another med. I still have the white spots on the back of my throat, ENT's don't really know what it is, and it has effected my voice/etc….but again something I will just have to live with. In reading everyone elses's stage IV stories I have to continuosly pause to think about how blessed I am with never having had mets in any other area! So going forward I have discontinued the NIVO as Dr. Dudek feels it has done what it was intended to do and the colitis should clear up eventually going off it. Thanks for all the support and love, this site has been hugely informative in my process of treatment and navigating. I pray for everyone daily and long for the same results for all of you. So for now, the beast has been kicked to the curb! I am planning on that being a permanent thing!

Blessings,

Ted