Genetic testing

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  • Post
    • June 24, 2014 at 7:44 pm
    Happy_girl
    Participant

      I just received a phone call from one of my drs.  He just received back information on my tumor and said it had some genetic make up that puts me at a higher risk for recurrance. I don't know what that is yet- I meet with him next week- but now I  am terrified and broken -hearted and afraid this definitely means my 1b will progress.  Thanks for listening.  I just don't know what to do and feel overwhelmed.

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    • Replies
        • June 24, 2014 at 8:17 pm
        JC
        Participant

          would be good to hear what credence those on the board give to this http://skinmelanoma.com/health-care-professionals/decisiondx-melanoma-summary/

          • June 24, 2014 at 8:17 pm
          JC
          Participant

            would be good to hear what credence those on the board give to this http://skinmelanoma.com/health-care-professionals/decisiondx-melanoma-summary/

            • June 24, 2014 at 8:17 pm
            JC
            Participant

              would be good to hear what credence those on the board give to this http://skinmelanoma.com/health-care-professionals/decisiondx-melanoma-summary/

              • June 25, 2014 at 2:03 am
              BrianP
              Participant

                Try not to think the worst right now.  I know easier said than done.  When you say "tumor" are you talking about a skin melanoma that was removed. 

                To give you some perspective the survival rate for stage Ib is:

                Stage IB: The 5-year survival rate is around 92%. The 10-year survival is around 86%. 

                Odds are overwhelmingly on your side.  Also keep in mind that the stats are not even taking into account the fantastic drugs that are now available. 

                I think your best bet is just to take a deep breath and relax as much as you can until next week and see what your Doctor has to say. 

                • June 25, 2014 at 2:03 am
                BrianP
                Participant

                  Try not to think the worst right now.  I know easier said than done.  When you say "tumor" are you talking about a skin melanoma that was removed. 

                  To give you some perspective the survival rate for stage Ib is:

                  Stage IB: The 5-year survival rate is around 92%. The 10-year survival is around 86%. 

                  Odds are overwhelmingly on your side.  Also keep in mind that the stats are not even taking into account the fantastic drugs that are now available. 

                  I think your best bet is just to take a deep breath and relax as much as you can until next week and see what your Doctor has to say. 

                    • June 25, 2014 at 8:12 am
                    Happy_girl
                    Participant

                      Yes- he is referring to the skin melanoma.  He is now having me get a pet scan and settings me up with an oncologist. I'm trying not to think the worst – like you said- hard to do.  I feel like now I am going to be on the "poor" side of those statistics.   I know a lot of this is emotions talking- I'm just scarf still I guess.  Thanks for your thoughts, Brian.

                      • June 25, 2014 at 8:12 am
                      Happy_girl
                      Participant

                        Yes- he is referring to the skin melanoma.  He is now having me get a pet scan and settings me up with an oncologist. I'm trying not to think the worst – like you said- hard to do.  I feel like now I am going to be on the "poor" side of those statistics.   I know a lot of this is emotions talking- I'm just scarf still I guess.  Thanks for your thoughts, Brian.

                        • June 25, 2014 at 8:12 am
                        Happy_girl
                        Participant

                          Yes- he is referring to the skin melanoma.  He is now having me get a pet scan and settings me up with an oncologist. I'm trying not to think the worst – like you said- hard to do.  I feel like now I am going to be on the "poor" side of those statistics.   I know a lot of this is emotions talking- I'm just scarf still I guess.  Thanks for your thoughts, Brian.

                        • June 25, 2014 at 2:03 am
                        BrianP
                        Participant

                          Try not to think the worst right now.  I know easier said than done.  When you say "tumor" are you talking about a skin melanoma that was removed. 

                          To give you some perspective the survival rate for stage Ib is:

                          Stage IB: The 5-year survival rate is around 92%. The 10-year survival is around 86%. 

                          Odds are overwhelmingly on your side.  Also keep in mind that the stats are not even taking into account the fantastic drugs that are now available. 

                          I think your best bet is just to take a deep breath and relax as much as you can until next week and see what your Doctor has to say. 

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