Dr. Schuchter – U of Penn, BRAF trial

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  • Post
    • July 25, 2011 at 8:43 pm
    TracyLee
    Participant

      Hi y'all,

      I will be going to U of Penn in Philly to join the BRAF+ extended access clinical trial.

      Anyone else currently in that trial?

      I'm hoping to see Dr. Schuchter once, get the meds, and then mainly be followed here in Delaware, as I do with Dr. Sharfman at Hopkins.
       

      I really don't want to haul back and forth to Philly more than I have to, I'm almost out of time off at work. I am blessed to have both short and long term disability offered at work, but hate to go that route.

      Hi y'all,

      I will be going to U of Penn in Philly to join the BRAF+ extended access clinical trial.

      Anyone else currently in that trial?

      I'm hoping to see Dr. Schuchter once, get the meds, and then mainly be followed here in Delaware, as I do with Dr. Sharfman at Hopkins.
       

      I really don't want to haul back and forth to Philly more than I have to, I'm almost out of time off at work. I am blessed to have both short and long term disability offered at work, but hate to go that route.

      What should I expect at my first appointment for this trial? Long visit, short visit?

      And, finally, I didn't mesh well with Dr. Schuchter last consult. However, I'm deferring to Dr. Sharfman's opinion that she is the one to see for this trial. I'll suck it up, I guess!

      Thanks as always to the posse! Final ipi on Thursday, then BRAF as long as it will work. I see IL2 in my future, hopefully, wayyyyyyy down the road.

      TracyLee

    Viewing 3 reply threads
    • Replies
        • July 25, 2011 at 10:14 pm
        shellebrownies
        Participant

          Tracy,

          That is Don's next step if/when the chemo is no longer effective. Best of luck; I hope it works well for you!

          Michelle, wife of Don

          • July 25, 2011 at 10:14 pm
          shellebrownies
          Participant

            Tracy,

            That is Don's next step if/when the chemo is no longer effective. Best of luck; I hope it works well for you!

            Michelle, wife of Don

            • July 25, 2011 at 10:49 pm
            StevenK
            Participant

              I am praying that you have a great response to this treatment, Tracy. Best of luck to you!

              Steve

              • July 25, 2011 at 10:49 pm
              StevenK
              Participant

                I am praying that you have a great response to this treatment, Tracy. Best of luck to you!

                Steve

            Viewing 3 reply threads
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