Defying the odds – never give up hope!!

Forums General Melanoma Community Defying the odds – never give up hope!!

  • Post
    sister of patient
    Participant

      Just another quick update on my sister, Leisa.

      Posted a few weeks back that latest thoracic CT showed tumour shrinkage everywhere and no new progression. Now we have a new brain MRI and the results are excellent – "There is no evidence of abnormal enhancement within the brain parenchyma, leptomeninges or pachymeningeal. The previously visualized enhancing lesions within the bilateral cerebral hemispheres have completely resolved (in the interval)." Yay!!!  This – after brain mets "too numerous to count" and WBR as the only option – is phenomenal. 

      I am so grateful to the "gods that be," there just aren't any words to describe how I feel, particularly because six months ago, it was doubtful she'd make it this far and any chance of ever seeing NED seemed impossible (there are only two organs in her whole body that were clear – heart and colon).

      I didn't want to even "dare to hope" but I sure am now. She still has a long way to go and is only approaching the halfway point of Nivo infusions (started on ipi/nivo combo but had only two infusions before the ipi attacked her retinas) but we have lots of reasons for believing that NED is in the future!

      With much gratitude, wishing everyone on here the best possible outcomes and a hopeful, healthy 2017!!

      Barb 

    Viewing 29 reply threads
    • Replies
        jennunicorn
        Participant

          We always love positive news on here! So happy for your sister, yay! 

          Hope you and your family have a very happy new year!

          jennunicorn
          Participant

            We always love positive news on here! So happy for your sister, yay! 

            Hope you and your family have a very happy new year!

            jennunicorn
            Participant

              We always love positive news on here! So happy for your sister, yay! 

              Hope you and your family have a very happy new year!

              Patrisa
              Participant

                Barb, that's fantastic, i'm sooo happy for you!

                Thank you for posting, we needed some great news like yours, it brings so much hope to everyone struggling…

                Love,

                Patrisa

                Patrisa
                Participant

                  Barb, that's fantastic, i'm sooo happy for you!

                  Thank you for posting, we needed some great news like yours, it brings so much hope to everyone struggling…

                  Love,

                  Patrisa

                  Patrisa
                  Participant

                    Barb, that's fantastic, i'm sooo happy for you!

                    Thank you for posting, we needed some great news like yours, it brings so much hope to everyone struggling…

                    Love,

                    Patrisa

                    Bradley75
                    Participant

                      Very happy to hear the good news.  A glimmer of hope goes a long way in my world these days.  Here's to continued success!

                      Wishing you the best!

                      Brad

                       

                       

                      Bradley75
                      Participant

                        Very happy to hear the good news.  A glimmer of hope goes a long way in my world these days.  Here's to continued success!

                        Wishing you the best!

                        Brad

                         

                         

                        Bradley75
                        Participant

                          Very happy to hear the good news.  A glimmer of hope goes a long way in my world these days.  Here's to continued success!

                          Wishing you the best!

                          Brad

                           

                           

                          debwray
                          Participant

                            Thank you so much for posting. Just want to agree with the others that news like this is so helpful to allow hope to exist when faced with bad clinical news and a dismal prognosis.

                            I'm stage 4 but am targetting a trip to Buckingham Palace with my daughter to pick up her Gold Duke of Edinburgh award….( sometime in 2017 )  Graduation from Med School -2019 , Son getting his first full time job ( 2017 hopefully )  made his graduation JUne 2016- and various other milestones……

                            Thanks Barb- dareing to hope sounds good to me….long may your sisters progress continue.

                            Deb

                             

                            debwray
                            Participant

                              Thank you so much for posting. Just want to agree with the others that news like this is so helpful to allow hope to exist when faced with bad clinical news and a dismal prognosis.

                              I'm stage 4 but am targetting a trip to Buckingham Palace with my daughter to pick up her Gold Duke of Edinburgh award….( sometime in 2017 )  Graduation from Med School -2019 , Son getting his first full time job ( 2017 hopefully )  made his graduation JUne 2016- and various other milestones……

                              Thanks Barb- dareing to hope sounds good to me….long may your sisters progress continue.

                              Deb

                               

                              debwray
                              Participant

                                Thank you so much for posting. Just want to agree with the others that news like this is so helpful to allow hope to exist when faced with bad clinical news and a dismal prognosis.

                                I'm stage 4 but am targetting a trip to Buckingham Palace with my daughter to pick up her Gold Duke of Edinburgh award….( sometime in 2017 )  Graduation from Med School -2019 , Son getting his first full time job ( 2017 hopefully )  made his graduation JUne 2016- and various other milestones……

                                Thanks Barb- dareing to hope sounds good to me….long may your sisters progress continue.

                                Deb

                                 

                                sister of patient
                                Participant

                                  Thank you so much everyone for your encouragement – it means alot!!

                                  Jenn, I've been watching your updates and sincerely hope that your current course of treatment will be your last too!!!!!

                                  And Deb – what an exciting year you have coming up!! Congratulations to your whole family and I wish you many, many more great milestones to celebrate!

                                  Cheers to all.

                                  Barb

                                  sister of patient
                                  Participant

                                    Thank you so much everyone for your encouragement – it means alot!!

                                    Jenn, I've been watching your updates and sincerely hope that your current course of treatment will be your last too!!!!!

                                    And Deb – what an exciting year you have coming up!! Congratulations to your whole family and I wish you many, many more great milestones to celebrate!

                                    Cheers to all.

                                    Barb

                                    sister of patient
                                    Participant

                                      Thank you so much everyone for your encouragement – it means alot!!

                                      Jenn, I've been watching your updates and sincerely hope that your current course of treatment will be your last too!!!!!

                                      And Deb – what an exciting year you have coming up!! Congratulations to your whole family and I wish you many, many more great milestones to celebrate!

                                      Cheers to all.

                                      Barb

                                      cancersnewnormal
                                      Participant

                                        Congrats to Leisa! What a wonderful way to step into a new year! Keep up those hopes and positive thinking…. your sister sounds like quite a fighter! : )

                                        cancersnewnormal
                                        Participant

                                          Congrats to Leisa! What a wonderful way to step into a new year! Keep up those hopes and positive thinking…. your sister sounds like quite a fighter! : )

                                          cancersnewnormal
                                          Participant

                                            Congrats to Leisa! What a wonderful way to step into a new year! Keep up those hopes and positive thinking…. your sister sounds like quite a fighter! : )

                                            maperny
                                            Participant

                                              Thank you so much for posting this.  So uplifting and hopeful for everyone!  Congratulations to your sister and Happy New Year to you all.

                                              Maria

                                              maperny
                                              Participant

                                                Thank you so much for posting this.  So uplifting and hopeful for everyone!  Congratulations to your sister and Happy New Year to you all.

                                                Maria

                                                maperny
                                                Participant

                                                  Thank you so much for posting this.  So uplifting and hopeful for everyone!  Congratulations to your sister and Happy New Year to you all.

                                                  Maria

                                                  Maria C
                                                  Participant

                                                    Barb, thanks so much for posting about your sister's triumph against the odds! I am likewise a survivor of brain mets, retina-detachment side effects, et.al. and am grateful to both medical miracles and powerful prayer chains. May your sister continue on the path to recovery in 2017!!

                                                    Maria C
                                                    Participant

                                                      Barb, thanks so much for posting about your sister's triumph against the odds! I am likewise a survivor of brain mets, retina-detachment side effects, et.al. and am grateful to both medical miracles and powerful prayer chains. May your sister continue on the path to recovery in 2017!!

                                                      Maria C
                                                      Participant

                                                        Barb, thanks so much for posting about your sister's triumph against the odds! I am likewise a survivor of brain mets, retina-detachment side effects, et.al. and am grateful to both medical miracles and powerful prayer chains. May your sister continue on the path to recovery in 2017!!

                                                        Scooby123
                                                        Participant

                                                          So happy for you  keep smiling xx

                                                          Scooby123
                                                          Participant

                                                            So happy for you  keep smiling xx

                                                            Scooby123
                                                            Participant

                                                              So happy for you  keep smiling xx

                                                              snow white
                                                              Participant

                                                                such fantastic news!!!  Thanks for such a great positive post.  I remain hopeful for my Dad.  Hope he will attain NED status sometime in the near future.

                                                                Jen

                                                                snow white
                                                                Participant

                                                                  such fantastic news!!!  Thanks for such a great positive post.  I remain hopeful for my Dad.  Hope he will attain NED status sometime in the near future.

                                                                  Jen

                                                                  snow white
                                                                  Participant

                                                                    such fantastic news!!!  Thanks for such a great positive post.  I remain hopeful for my Dad.  Hope he will attain NED status sometime in the near future.

                                                                    Jen

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