Conditional Survival – 4 years post surgery

Forums General Melanoma Community Conditional Survival – 4 years post surgery

  • Post
    andrewuk
    Participant

      Hi all – I am brand new to this site so appreciate any views and opinions given.

      There seems to be very little out there in terms of conditional survival rates.

      I am 4 years post initial surgery of a 2B melanoma with clear sentinel lymph biopsy.

      Is it safe to assume, as time goes on, my survival statistics improve quite considerably?

      All of my follow up appointments during the last 4 years have been clear with nothing detected.

      Thank you.

    Viewing 14 reply threads
    • Replies
        stars
        Participant

          Interesting question. i think with other types of cancer, the 5 year mark takes you back into normal lifespan/survival expectations. I'm not sure this is the case with melanoma… Stats are often in 5 and 10 year rates, suggesting that impact of disease can extend beyond the five year mark. For examples:

          http://www.melanomapatients.org.au/information/statistics/prognosis

          If you read some of the posts on the forum you will read about both extended periods of time with no problems – like you – but also people plagued with recurrence years and years after diagnosis. Hopefully you will remain in the first group forever more!

          stars
          Participant

            Interesting question. i think with other types of cancer, the 5 year mark takes you back into normal lifespan/survival expectations. I'm not sure this is the case with melanoma… Stats are often in 5 and 10 year rates, suggesting that impact of disease can extend beyond the five year mark. For examples:

            http://www.melanomapatients.org.au/information/statistics/prognosis

            If you read some of the posts on the forum you will read about both extended periods of time with no problems – like you – but also people plagued with recurrence years and years after diagnosis. Hopefully you will remain in the first group forever more!

            stars
            Participant

              Interesting question. i think with other types of cancer, the 5 year mark takes you back into normal lifespan/survival expectations. I'm not sure this is the case with melanoma… Stats are often in 5 and 10 year rates, suggesting that impact of disease can extend beyond the five year mark. For examples:

              http://www.melanomapatients.org.au/information/statistics/prognosis

              If you read some of the posts on the forum you will read about both extended periods of time with no problems – like you – but also people plagued with recurrence years and years after diagnosis. Hopefully you will remain in the first group forever more!

              Janner
              Participant

                Yes, the survival curves do increase over time and at some year out, begin to level off.  They never go to zero as melanoma can recur many years out.  But your odds do increase the longer out you go from your initial diagnosis.

                Janner
                Participant

                  Yes, the survival curves do increase over time and at some year out, begin to level off.  They never go to zero as melanoma can recur many years out.  But your odds do increase the longer out you go from your initial diagnosis.

                  Janner
                  Participant

                    Yes, the survival curves do increase over time and at some year out, begin to level off.  They never go to zero as melanoma can recur many years out.  But your odds do increase the longer out you go from your initial diagnosis.

                    Kim K
                    Participant

                      Each day you live without a recurrence the more likely you will continue to do so.  That being said, it is not unheard of to have a relapse decades later.  Stay vigilant.

                      I was diagnosed 2A.  Eight years later by happenstance had a back x-ray which picked up a lung nodule.  No symptoms, nothing.  I went straight to stage IV.  Fortunately that was 5 years ago.  Following lung surgery and a course of IL-2, I became NED.

                      Because I had systemic treatment with IL-2 and have been NED for 5 years, I probably won't have a recurrance, at least according to the latest long term survival study of IL-2 patients.  That is what I hang my hat on.

                      Lesson – never turn your back on it, keep getting your scans or visits to onc. as required.  In my case I moved home 4 years after my initial diagnosis and never followed up with an oncologist.  I was lucky my chiropracter inadverdently saved my life.  Very rare for someone at my stage and that far out to relapse, but I did.  Fortunately my ability to do the rare thing followed me and I was successful with IL-2.

                      Best of luck!

                      Kim K
                      Participant

                        Each day you live without a recurrence the more likely you will continue to do so.  That being said, it is not unheard of to have a relapse decades later.  Stay vigilant.

                        I was diagnosed 2A.  Eight years later by happenstance had a back x-ray which picked up a lung nodule.  No symptoms, nothing.  I went straight to stage IV.  Fortunately that was 5 years ago.  Following lung surgery and a course of IL-2, I became NED.

                        Because I had systemic treatment with IL-2 and have been NED for 5 years, I probably won't have a recurrance, at least according to the latest long term survival study of IL-2 patients.  That is what I hang my hat on.

                        Lesson – never turn your back on it, keep getting your scans or visits to onc. as required.  In my case I moved home 4 years after my initial diagnosis and never followed up with an oncologist.  I was lucky my chiropracter inadverdently saved my life.  Very rare for someone at my stage and that far out to relapse, but I did.  Fortunately my ability to do the rare thing followed me and I was successful with IL-2.

                        Best of luck!

                        Kim K
                        Participant

                          Each day you live without a recurrence the more likely you will continue to do so.  That being said, it is not unheard of to have a relapse decades later.  Stay vigilant.

                          I was diagnosed 2A.  Eight years later by happenstance had a back x-ray which picked up a lung nodule.  No symptoms, nothing.  I went straight to stage IV.  Fortunately that was 5 years ago.  Following lung surgery and a course of IL-2, I became NED.

                          Because I had systemic treatment with IL-2 and have been NED for 5 years, I probably won't have a recurrance, at least according to the latest long term survival study of IL-2 patients.  That is what I hang my hat on.

                          Lesson – never turn your back on it, keep getting your scans or visits to onc. as required.  In my case I moved home 4 years after my initial diagnosis and never followed up with an oncologist.  I was lucky my chiropracter inadverdently saved my life.  Very rare for someone at my stage and that far out to relapse, but I did.  Fortunately my ability to do the rare thing followed me and I was successful with IL-2.

                          Best of luck!

                          _Paul_
                          Participant

                            My oncologist and I have been talking about this very subject. And yes, as other posters have said, the odds of continued survival increase the longer one survives. There is statistics behind it, based on Baye's Thereom of conditional probability.

                            Woohoo!!!

                            Best of luck – Paul

                             

                             

                            _Paul_
                            Participant

                              My oncologist and I have been talking about this very subject. And yes, as other posters have said, the odds of continued survival increase the longer one survives. There is statistics behind it, based on Baye's Thereom of conditional probability.

                              Woohoo!!!

                              Best of luck – Paul

                               

                               

                              _Paul_
                              Participant

                                My oncologist and I have been talking about this very subject. And yes, as other posters have said, the odds of continued survival increase the longer one survives. There is statistics behind it, based on Baye's Thereom of conditional probability.

                                Woohoo!!!

                                Best of luck – Paul

                                 

                                 

                                andrewuk
                                Participant

                                  Thank you for your replies. I have become fully aware of "looking over your shoulder" so to speak, for the rest of my life.

                                  Even a minor illness to me makes me worry "… is it back?" – I suppose there are plenty of other people who are fully aware of the fact it can reoccur years later!

                                  Thanks again.

                                  andrewuk
                                  Participant

                                    Thank you for your replies. I have become fully aware of "looking over your shoulder" so to speak, for the rest of my life.

                                    Even a minor illness to me makes me worry "… is it back?" – I suppose there are plenty of other people who are fully aware of the fact it can reoccur years later!

                                    Thanks again.

                                    andrewuk
                                    Participant

                                      Thank you for your replies. I have become fully aware of "looking over your shoulder" so to speak, for the rest of my life.

                                      Even a minor illness to me makes me worry "… is it back?" – I suppose there are plenty of other people who are fully aware of the fact it can reoccur years later!

                                      Thanks again.

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