CNLD question

Forums General Melanoma Community CNLD question

  • Post
    Shaneswife
    Participant
      My husband is having a right groin CNLD and I was wondering if he will need crutches to get around after? I want to order them from the health care store but wanted to ask first if any of you needed them after.

      Thanks in advance.

      Janis

    Viewing 11 reply threads
    • Replies
        Aaron
        Participant

          I don't think they are necessary but would be nice to have. It is a wicked surgery that will require lots of elevation.  We asked my doctor about how well I would be able to get around and I asked if I would be able to get the mail as an example and he said only if I promised to lay back down after I got it. 

            Shaneswife
            Participant
              May I ask how long you were laid up for? In terms of needing someone at home with you. I’m wondering how much time I should book off work to help my husband get around the house. We have a lot of stairs.
              momof4boys
              Participant
                I think what my surgeon said was if they have to move this muscle to get to the lymph cluster then the recovery is harder and i think that is why. I had to climb stairs to get to bed so that was a challenge. I also got an infection so it was just much harder on me. Some people are acting like it wasnt a hard surgery at all and i certainly don’t remember that being the case. Everyone is different. I also had children at home due to it being summer and they helped quite a bit. I say play it by ear.
                momof4boys
                Participant
                  I think what my surgeon said was if they have to move this muscle to get to the lymph cluster then the recovery is harder and i think that is why. I had to climb stairs to get to bed so that was a challenge. I also got an infection so it was just much harder on me. Some people are acting like it wasnt a hard surgery at all and i certainly don’t remember that being the case. Everyone is different. I also had children at home due to it being summer and they helped quite a bit. I say play it by ear.
                  momof4boys
                  Participant
                    I think what my surgeon said was if they have to move this muscle to get to the lymph cluster then the recovery is harder and i think that is why. I had to climb stairs to get to bed so that was a challenge. I also got an infection so it was just much harder on me. Some people are acting like it wasnt a hard surgery at all and i certainly don’t remember that being the case. Everyone is different. I also had children at home due to it being summer and they helped quite a bit. I say play it by ear.
                    Aaron
                    Participant

                      My muscle was moved as well. I am a bit different and I am a right leg amputee with a prosthetic and my left groin/leg had the lymph nodes removed. The bulbs are a nuisance and he certainly won't be walking any marathons but after a few days getting around will be easier but for the most part he is going to want to stay reclined and elevated.  

                      Aaron
                      Participant

                        Crutches will definitely be nice for the first week at least 

                        Aaron
                        Participant

                          Crutches will definitely be nice for the first week at least 

                          Aaron
                          Participant

                            Crutches will definitely be nice for the first week at least 

                            Aaron
                            Participant

                              My muscle was moved as well. I am a bit different and I am a right leg amputee with a prosthetic and my left groin/leg had the lymph nodes removed. The bulbs are a nuisance and he certainly won't be walking any marathons but after a few days getting around will be easier but for the most part he is going to want to stay reclined and elevated.  

                              Aaron
                              Participant

                                My muscle was moved as well. I am a bit different and I am a right leg amputee with a prosthetic and my left groin/leg had the lymph nodes removed. The bulbs are a nuisance and he certainly won't be walking any marathons but after a few days getting around will be easier but for the most part he is going to want to stay reclined and elevated.  

                                Shaneswife
                                Participant
                                  May I ask how long you were laid up for? In terms of needing someone at home with you. I’m wondering how much time I should book off work to help my husband get around the house. We have a lot of stairs.
                                  Shaneswife
                                  Participant
                                    May I ask how long you were laid up for? In terms of needing someone at home with you. I’m wondering how much time I should book off work to help my husband get around the house. We have a lot of stairs.
                                  Aaron
                                  Participant

                                    I don't think they are necessary but would be nice to have. It is a wicked surgery that will require lots of elevation.  We asked my doctor about how well I would be able to get around and I asked if I would be able to get the mail as an example and he said only if I promised to lay back down after I got it. 

                                    Aaron
                                    Participant

                                      I don't think they are necessary but would be nice to have. It is a wicked surgery that will require lots of elevation.  We asked my doctor about how well I would be able to get around and I asked if I would be able to get the mail as an example and he said only if I promised to lay back down after I got it. 

                                      momof4boys
                                      Participant
                                        Yes you will need crutches. When they do the groin they likely have to mess with a muscle. You should have some on hand
                                          Shaneswife
                                          Participant
                                            Thanks for the feedback. I will order a set.
                                            Shaneswife
                                            Participant
                                              Thanks for the feedback. I will order a set.
                                              Shaneswife
                                              Participant
                                                Thanks for the feedback. I will order a set.
                                              momof4boys
                                              Participant
                                                Yes you will need crutches. When they do the groin they likely have to mess with a muscle. You should have some on hand
                                                momof4boys
                                                Participant
                                                  Yes you will need crutches. When they do the groin they likely have to mess with a muscle. You should have some on hand
                                                  SABKLYN
                                                  Participant

                                                    I didn't need crutches or any other kind of walking assistance.I guess in some cases it may be needed, but I was fully ambulatory after the surgery.  Your husband will have his JP bulbs into which fluid will drain (for as long as three weeks) which are an inconvenience but definitely manageable.  The biggest issue is post op infection which I developed a couple of weeks after surgery and wound up back in the hospital for IV antibiotics.  Lymphadenopathy is always a possibility.  I was fortunate and really had virtually none.  Make sure he has his compression stockings that should be used as directed.  I wound up using for about three months and then haven't used them since.  

                                                    Good luck!

                                                    Stan

                                                      SABKLYN
                                                      Participant

                                                        That should read lymphadema

                                                         

                                                        SABKLYN
                                                        Participant

                                                          That should read lymphadema

                                                           

                                                          SABKLYN
                                                          Participant

                                                            That should read lymphadema

                                                             

                                                          SABKLYN
                                                          Participant

                                                            I didn't need crutches or any other kind of walking assistance.I guess in some cases it may be needed, but I was fully ambulatory after the surgery.  Your husband will have his JP bulbs into which fluid will drain (for as long as three weeks) which are an inconvenience but definitely manageable.  The biggest issue is post op infection which I developed a couple of weeks after surgery and wound up back in the hospital for IV antibiotics.  Lymphadenopathy is always a possibility.  I was fortunate and really had virtually none.  Make sure he has his compression stockings that should be used as directed.  I wound up using for about three months and then haven't used them since.  

                                                            Good luck!

                                                            Stan

                                                            SABKLYN
                                                            Participant

                                                              I didn't need crutches or any other kind of walking assistance.I guess in some cases it may be needed, but I was fully ambulatory after the surgery.  Your husband will have his JP bulbs into which fluid will drain (for as long as three weeks) which are an inconvenience but definitely manageable.  The biggest issue is post op infection which I developed a couple of weeks after surgery and wound up back in the hospital for IV antibiotics.  Lymphadenopathy is always a possibility.  I was fortunate and really had virtually none.  Make sure he has his compression stockings that should be used as directed.  I wound up using for about three months and then haven't used them since.  

                                                              Good luck!

                                                              Stan

                                                              slh4448
                                                              Participant

                                                                Regarding the compression stockings, are those typically provided to you while in surgery or should I plan on getting them before the surgery and take to the hospital with me??? Thanks.

                                                                slh4448
                                                                Participant

                                                                  Regarding the compression stockings, are those typically provided to you while in surgery or should I plan on getting them before the surgery and take to the hospital with me??? Thanks.

                                                                    Aaron
                                                                    Participant

                                                                      The hospital will provide a light weight compression hose. You will need to purchase  the real things later after being measured, etc 

                                                                      Aaron
                                                                      Participant

                                                                        The hospital will provide a light weight compression hose. You will need to purchase  the real things later after being measured, etc 

                                                                        slh4448
                                                                        Participant

                                                                          Thanks Aaron. So will I get measured while in the hospital and at least be able to wear what they provide me until I receive my new ones?

                                                                          slh4448
                                                                          Participant

                                                                            Thanks Aaron. So will I get measured while in the hospital and at least be able to wear what they provide me until I receive my new ones?

                                                                            slh4448
                                                                            Participant

                                                                              Thanks Aaron. So will I get measured while in the hospital and at least be able to wear what they provide me until I receive my new ones?

                                                                              Aaron
                                                                              Participant

                                                                                The hospital will provide a light weight compression hose. You will need to purchase  the real things later after being measured, etc 

                                                                                momof4boys
                                                                                Participant
                                                                                  I never got anything or wore any kind of compression until my drains were out and i started seeing a lymphadema therapist. She sent me to get the stocking. At that time, whichever pharmacy you go to will measure you and order you a stocking. You cant compress until your drains are out.
                                                                                  momof4boys
                                                                                  Participant
                                                                                    I never got anything or wore any kind of compression until my drains were out and i started seeing a lymphadema therapist. She sent me to get the stocking. At that time, whichever pharmacy you go to will measure you and order you a stocking. You cant compress until your drains are out.
                                                                                    momof4boys
                                                                                    Participant
                                                                                      I never got anything or wore any kind of compression until my drains were out and i started seeing a lymphadema therapist. She sent me to get the stocking. At that time, whichever pharmacy you go to will measure you and order you a stocking. You cant compress until your drains are out.
                                                                                    slh4448
                                                                                    Participant

                                                                                      Regarding the compression stockings, are those typically provided to you while in surgery or should I plan on getting them before the surgery and take to the hospital with me??? Thanks.

                                                                                  Viewing 11 reply threads
                                                                                  • You must be logged in to reply to this topic.
                                                                                  About the MRF Patient Forum

                                                                                  The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                                  The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                                  Popular Topics