CLNB results… options for treatment?

› Forums › General Melanoma Community › CLNB results… options for treatment?

  • Post
    • May 26, 2016 at 2:56 pm
    Mamapegela
    Participant

      I got the results from my left neck dissection yesterday.  In addition to the original lymph node positive for melanoma there were three additional nodes positive- the largest of which measured 3 cm in greatest diameter! I don't know how that was hiding in my neck without my knowing.  Anyway I am glad to have it out.  My next step is meeting with the oncologist at the melanoma center at University of Michigan.  I take this to mean that I am stage 3c because in total 4 nodes were posititve?  The surgeon deferred to state it because she said the oncologist will go over all of it with me.

      What treatments have others in my shoes done?  I am not ok with watch and wait.  I am thinking I will be eligable for Yervoy?  Have people had radiation for this?  I know that I am getting ahead of myself but I would like to meet the oncologist with some idea of what is reasonable.

      Thanks,

    Viewing 5 reply threads
    • Replies
        • May 26, 2016 at 4:35 pm
        jennunicorn
        Participant

          You're right, Yervoy is a good option if you are not comfortable with watch and wait. There may also be trials you could be eligible for, that's something to ask about. I'm assuming you've had a full body scan already, to make sure everything on the inside looks good?

          Sorry more melanoma was found, I am sure you feel better knowing all those lymph nodes are out of you now. 

          All the best,

          • May 26, 2016 at 4:35 pm
          jennunicorn
          Participant

            You're right, Yervoy is a good option if you are not comfortable with watch and wait. There may also be trials you could be eligible for, that's something to ask about. I'm assuming you've had a full body scan already, to make sure everything on the inside looks good?

            Sorry more melanoma was found, I am sure you feel better knowing all those lymph nodes are out of you now. 

            All the best,

            • May 26, 2016 at 4:35 pm
            jennunicorn
            Participant

              You're right, Yervoy is a good option if you are not comfortable with watch and wait. There may also be trials you could be eligible for, that's something to ask about. I'm assuming you've had a full body scan already, to make sure everything on the inside looks good?

              Sorry more melanoma was found, I am sure you feel better knowing all those lymph nodes are out of you now. 

              All the best,

              • May 26, 2016 at 9:17 pm
              Bradley75
              Participant

                I had radiation.  When I had my lymph node dissection, there was extra-nodal extension present.  That means the tissue around the outside of the lymph node also contained melanoma.  The cancer was not contained to just the lymph node.  That was the key characteristic that made radiation something for me to consider.  I opted to have radiation treatment because I am not ok with watch and wait either.  The radiation was localized to my right axilla.  It was explained to me that radiation is used to reduce the chances of regional recurrence.  It sounded like a better option to me than not doing anything at all. 

                I agree to search all clinical trial options.  There are some really good ones out there. 

                • May 26, 2016 at 9:17 pm
                Bradley75
                Participant

                  I had radiation.  When I had my lymph node dissection, there was extra-nodal extension present.  That means the tissue around the outside of the lymph node also contained melanoma.  The cancer was not contained to just the lymph node.  That was the key characteristic that made radiation something for me to consider.  I opted to have radiation treatment because I am not ok with watch and wait either.  The radiation was localized to my right axilla.  It was explained to me that radiation is used to reduce the chances of regional recurrence.  It sounded like a better option to me than not doing anything at all. 

                  I agree to search all clinical trial options.  There are some really good ones out there. 

                  • May 26, 2016 at 9:17 pm
                  Bradley75
                  Participant

                    I had radiation.  When I had my lymph node dissection, there was extra-nodal extension present.  That means the tissue around the outside of the lymph node also contained melanoma.  The cancer was not contained to just the lymph node.  That was the key characteristic that made radiation something for me to consider.  I opted to have radiation treatment because I am not ok with watch and wait either.  The radiation was localized to my right axilla.  It was explained to me that radiation is used to reduce the chances of regional recurrence.  It sounded like a better option to me than not doing anything at all. 

                    I agree to search all clinical trial options.  There are some really good ones out there. 

                Viewing 5 reply threads
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