cheking in. PD1 # 4

› Forums › General Melanoma Community › cheking in. PD1 # 4

  • Post
    • October 3, 2013 at 12:56 pm
    Tina D
    Participant

      Hi guys,

      I had my fouth dose of Mercks anti Pd1 on Monday. Feeling pretty well overall. I will have scans with my next infusion appt in 3 weeks. Will update then!

      Tina

    Viewing 5 reply threads
    • Replies
        • October 3, 2013 at 4:47 pm
        aldakota22
        Participant

          Happy that you are feeling well.Prayers sent that with your next scans you will get only good news.Beat the Beast.  Al

            • October 4, 2013 at 12:40 pm
            Tina D
            Participant

              Thank you, Al … and how are you doing?

              Tina

              • October 7, 2013 at 2:25 am
              aldakota22
              Participant

                Hi Tina. Had my gamma treatment Sept 3. MRI on  Sept.30 and results were inconclusive.There was no new brain mets and doc could not say if tumors shrunk but did say they did not increase in size.Felt it was too early to tell.Will get another MRI at end of this month.Will see onc. doc on the 15th.Will post after visit.Still keeping my PMA. Thanks for your concern.Beat the Beast.   Al

                • October 9, 2013 at 2:02 pm
                Tina D
                Participant

                  Sounds good, Al… I am sure the waiting is difficult, but I am glad you are keeping encouraged. I HATE inconclusive results, but would have to say if things aren't growing, that is good news!

                  Take Care

                  Tina

                  • October 9, 2013 at 2:02 pm
                  Tina D
                  Participant

                    Sounds good, Al… I am sure the waiting is difficult, but I am glad you are keeping encouraged. I HATE inconclusive results, but would have to say if things aren't growing, that is good news!

                    Take Care

                    Tina

                    • October 9, 2013 at 2:02 pm
                    Tina D
                    Participant

                      Sounds good, Al… I am sure the waiting is difficult, but I am glad you are keeping encouraged. I HATE inconclusive results, but would have to say if things aren't growing, that is good news!

                      Take Care

                      Tina

                      • October 7, 2013 at 2:25 am
                      aldakota22
                      Participant

                        Hi Tina. Had my gamma treatment Sept 3. MRI on  Sept.30 and results were inconclusive.There was no new brain mets and doc could not say if tumors shrunk but did say they did not increase in size.Felt it was too early to tell.Will get another MRI at end of this month.Will see onc. doc on the 15th.Will post after visit.Still keeping my PMA. Thanks for your concern.Beat the Beast.   Al

                        • October 7, 2013 at 2:25 am
                        aldakota22
                        Participant

                          Hi Tina. Had my gamma treatment Sept 3. MRI on  Sept.30 and results were inconclusive.There was no new brain mets and doc could not say if tumors shrunk but did say they did not increase in size.Felt it was too early to tell.Will get another MRI at end of this month.Will see onc. doc on the 15th.Will post after visit.Still keeping my PMA. Thanks for your concern.Beat the Beast.   Al

                          • October 4, 2013 at 12:40 pm
                          Tina D
                          Participant

                            Thank you, Al … and how are you doing?

                            Tina

                            • October 4, 2013 at 12:40 pm
                            Tina D
                            Participant

                              Thank you, Al … and how are you doing?

                              Tina

                            • October 3, 2013 at 4:47 pm
                            aldakota22
                            Participant

                              Happy that you are feeling well.Prayers sent that with your next scans you will get only good news.Beat the Beast.  Al

                              • October 3, 2013 at 4:47 pm
                              aldakota22
                              Participant

                                Happy that you are feeling well.Prayers sent that with your next scans you will get only good news.Beat the Beast.  Al

                                • October 4, 2013 at 2:20 am
                                BrianP
                                Participant

                                  Hey Tina,

                                  Glad to hear you are still feeling pretty good.  I likewise am still feeling pretty good.  Sounds like the Merck trial you are on and the BMS trial I am on are slightly different in the dosing schedule.  I'm getting 3mg/kg every two weeks for 12 weeks.  I have my 5th infusion scheduled for next Tuesday.  Was feeling just slightly run down after my 3rd infusion but I haven't really felt that way this past week.  Of course it's hard to tell if the fatigue is due to chasing my 3 and 4 year old or due to the Anti-Pd1 :).  Hope you continue to feel well.

                                  Brian

                                    • October 4, 2013 at 12:39 pm
                                    Tina D
                                    Participant

                                      Yes, chasing 3 and 4 year olds is the most delightful type of fatigue one can feel 😉   . I felt very fatigued for several days starting 4 days after last infusion. Doing ok so far this time. My thyroid has begun to waffle, so I think that may also be part of why I am feeling a bit more tired. The Merck trial I am on is every 3 weeks, but the dose is blinded. When are your scans?

                                      Glad you are also feeling well. Been reading lots of good updates from people on the PD1. Always encouraging!

                                      Tina

                                      • October 4, 2013 at 12:39 pm
                                      Tina D
                                      Participant

                                        Yes, chasing 3 and 4 year olds is the most delightful type of fatigue one can feel 😉   . I felt very fatigued for several days starting 4 days after last infusion. Doing ok so far this time. My thyroid has begun to waffle, so I think that may also be part of why I am feeling a bit more tired. The Merck trial I am on is every 3 weeks, but the dose is blinded. When are your scans?

                                        Glad you are also feeling well. Been reading lots of good updates from people on the PD1. Always encouraging!

                                        Tina

                                        • October 4, 2013 at 12:39 pm
                                        Tina D
                                        Participant

                                          Yes, chasing 3 and 4 year olds is the most delightful type of fatigue one can feel 😉   . I felt very fatigued for several days starting 4 days after last infusion. Doing ok so far this time. My thyroid has begun to waffle, so I think that may also be part of why I am feeling a bit more tired. The Merck trial I am on is every 3 weeks, but the dose is blinded. When are your scans?

                                          Glad you are also feeling well. Been reading lots of good updates from people on the PD1. Always encouraging!

                                          Tina

                                        • October 4, 2013 at 2:20 am
                                        BrianP
                                        Participant

                                          Hey Tina,

                                          Glad to hear you are still feeling pretty good.  I likewise am still feeling pretty good.  Sounds like the Merck trial you are on and the BMS trial I am on are slightly different in the dosing schedule.  I'm getting 3mg/kg every two weeks for 12 weeks.  I have my 5th infusion scheduled for next Tuesday.  Was feeling just slightly run down after my 3rd infusion but I haven't really felt that way this past week.  Of course it's hard to tell if the fatigue is due to chasing my 3 and 4 year old or due to the Anti-Pd1 :).  Hope you continue to feel well.

                                          Brian

                                          • October 4, 2013 at 2:20 am
                                          BrianP
                                          Participant

                                            Hey Tina,

                                            Glad to hear you are still feeling pretty good.  I likewise am still feeling pretty good.  Sounds like the Merck trial you are on and the BMS trial I am on are slightly different in the dosing schedule.  I'm getting 3mg/kg every two weeks for 12 weeks.  I have my 5th infusion scheduled for next Tuesday.  Was feeling just slightly run down after my 3rd infusion but I haven't really felt that way this past week.  Of course it's hard to tell if the fatigue is due to chasing my 3 and 4 year old or due to the Anti-Pd1 :).  Hope you continue to feel well.

                                            Brian

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