› Forums › General Melanoma Community › Brain Mets, want ipi/nivo combo
- This topic has 12 replies, 3 voices, and was last updated 10 years, 2 months ago by
Bubbles.
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- December 19, 2015 at 6:25 pm
Discovered two brain mets last week, after having been stage 3, unknown primary since January of this year.
One met removed by surgery, other to be removed with rapidarc very shortly. Can not get trials because of very low risk stage 1 colon cancer surgically removed 2.5 years ago. I want to get the ipi/nivo combo that was approved in October, but I am getting static about that not being for adjuvant. My question is does anyone have a doctor in Southern California who has used this combo for adjuvant stage 4 and gotten it paid by Medicare. My plan would be to take the combo and then pembro and clearly the other way around would be just as good or better.
Jack
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- December 19, 2015 at 10:05 pm
After your stage 3 diagnosis. Did you use any adjuvacant care? Just so we can start making suggestions? -
- December 19, 2015 at 10:13 pm
Hi Jack,
I understand your position. NED after brain mets feels very tenuous doesn't it? Been there done that! And…the ipi/nivo combo has the best results going. However, here's some info that may be helpful if you can't make that happen:
And there's this by two melanoma experts…..if you could get your PD-L1 status evaluated (and accurately) that informtion could impact choices as well:
There have been some ipi/nivo trials for NED patients but I don't know that any are recruiting at this time. I wish you my best. Celeste
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- December 19, 2015 at 10:13 pm
Hi Jack,
I understand your position. NED after brain mets feels very tenuous doesn't it? Been there done that! And…the ipi/nivo combo has the best results going. However, here's some info that may be helpful if you can't make that happen:
And there's this by two melanoma experts…..if you could get your PD-L1 status evaluated (and accurately) that informtion could impact choices as well:
There have been some ipi/nivo trials for NED patients but I don't know that any are recruiting at this time. I wish you my best. Celeste
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- December 19, 2015 at 10:13 pm
Hi Jack,
I understand your position. NED after brain mets feels very tenuous doesn't it? Been there done that! And…the ipi/nivo combo has the best results going. However, here's some info that may be helpful if you can't make that happen:
And there's this by two melanoma experts…..if you could get your PD-L1 status evaluated (and accurately) that informtion could impact choices as well:
There have been some ipi/nivo trials for NED patients but I don't know that any are recruiting at this time. I wish you my best. Celeste
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- December 22, 2015 at 1:17 am
You might find this synopsis helpful:http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/12/anti-pd1-products-fda-approved-as-first.html
Celeste
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- December 22, 2015 at 1:17 am
You might find this synopsis helpful:http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/12/anti-pd1-products-fda-approved-as-first.html
Celeste
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- December 22, 2015 at 1:17 am
You might find this synopsis helpful:http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/12/anti-pd1-products-fda-approved-as-first.html
Celeste
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