Boots how you doin

Forums General Melanoma Community Boots how you doin

  • Post
    killmel
    Participant

      Hi Boots,

       

      I have been away from MPIP.

      What treatment did youdecide to do?How is the treatment going?

      Wishing you the best!

      A.

      Hi Boots,

       

      I have been away from MPIP.

      What treatment did youdecide to do?How is the treatment going?

      Wishing you the best!

      A.

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    • Replies
        boot2aboot
        Participant

          thank you for asking…

          i am on zelboraf and have a rough ride on it so far…still not up to full strength of the medicine…my pancreatic and liver enzymes are dismal… i have chills, fevers, body rashes, aches and bowel problems…i feel very weak and not able to correspond like i would like to…the doctor said the side effects would diminish…to hang in there and that is what i am doing.

          boots

          boot2aboot
          Participant

            thank you for asking…

            i am on zelboraf and have a rough ride on it so far…still not up to full strength of the medicine…my pancreatic and liver enzymes are dismal… i have chills, fevers, body rashes, aches and bowel problems…i feel very weak and not able to correspond like i would like to…the doctor said the side effects would diminish…to hang in there and that is what i am doing.

            boots

              FormerCaregiver
              Participant

                Boots, I would just like to chime in here. Sorry to read that you are having a rough time at the moment. Have you had a reply from Dr Rosenberg regarding possible TIL treatment?

                Good luck with Zelboraf, and I hope that you are feeling better soon.

                Frank from Australia

                FormerCaregiver
                Participant

                  Boots, I would just like to chime in here. Sorry to read that you are having a rough time at the moment. Have you had a reply from Dr Rosenberg regarding possible TIL treatment?

                  Good luck with Zelboraf, and I hope that you are feeling better soon.

                  Frank from Australia

                  killmel
                  Participant

                    Boots,

                    Why did you pick this treatment? Are you being treated by Dr. Weber.

                    killmel
                    Participant

                      Boots,

                      Why did you pick this treatment? Are you being treated by Dr. Weber.

                      MichaelFL
                      Participant

                        She was told best option and yes.

                        MichaelFL
                        Participant

                          She was told best option and yes.

                          killmel
                          Participant

                            Hi Boots

                            So sorry to hear about those side effects.

                            If you are being treated by Dr. Weber maybe you can switch to PD-1 trial. Just a thought.

                            Mary

                            killmel
                            Participant

                              Hi Boots

                              So sorry to hear about those side effects.

                              If you are being treated by Dr. Weber maybe you can switch to PD-1 trial. Just a thought.

                              Mary

                              rbruce
                              Participant

                                Hey Boots, sorry to hear it's a tough go on Zelboraf.  I did hear from others that the side effects subside after a while, I hope that is true for you.  I have my next Onc appt. at UCSF on the 5th of October to look at a PK13/MTOR inhibitor trial with scans the following week.  UCSF has a anti-PD1 trial starting the following month which I'm leaning towards as long as scans show I can wait til then.  Take care. 

                                Robert

                                rbruce
                                Participant

                                  Hey Boots, sorry to hear it's a tough go on Zelboraf.  I did hear from others that the side effects subside after a while, I hope that is true for you.  I have my next Onc appt. at UCSF on the 5th of October to look at a PK13/MTOR inhibitor trial with scans the following week.  UCSF has a anti-PD1 trial starting the following month which I'm leaning towards as long as scans show I can wait til then.  Take care. 

                                  Robert

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