Blurry vision on Zelboraf

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  • Post
    • October 24, 2012 at 4:06 pm
    Tina D
    Participant

      I have been back on Zelboraf for a few weeks now and my eyes have been somewhat bloodshot for the past few days and my vision is not as clear as usual. I intend to see an eye Dr if it doesnt clear up, but was wondering if anyone else has experienced this? I can still see to read, and such, but it is slightly blurry and my eyes are burning a little. None of it is terrible… but it is noticable.

      Thanks!

      Tina

      I have been back on Zelboraf for a few weeks now and my eyes have been somewhat bloodshot for the past few days and my vision is not as clear as usual. I intend to see an eye Dr if it doesnt clear up, but was wondering if anyone else has experienced this? I can still see to read, and such, but it is slightly blurry and my eyes are burning a little. None of it is terrible… but it is noticable.

      Thanks!

      Tina

    Viewing 11 reply threads
    • Replies
        • October 24, 2012 at 5:53 pm
        lhaley
        Participant

          I am having the exact problem!  I'm also on Dex and my left eye has bothered me the last time I was on the Dex so I didn't worry about it.  Last week it got really bad in the right eye and itching and went to the eye Dr.  She has given me eye drops and so far one day my eyes will be ok and the next will be terrible.  She did say that I do not have uveilitis (I know that is spelled wrong) which can be caused by zelboraf and can do damage in the eye.  For me the right eye started when the eye lid became red and got a few of the bumps there by zelboraf.  My derm gave me an ointment for that.   

          When I called my mel oncologist he was out of the country. The person covering for him suggested the eye Dr.  I was amazed that they fit me into her schedule the next day!  I think I'm going to call my onc back again. Maybe I need to stop the pills for a few day.

          Linda

          • October 24, 2012 at 5:53 pm
          lhaley
          Participant

            I am having the exact problem!  I'm also on Dex and my left eye has bothered me the last time I was on the Dex so I didn't worry about it.  Last week it got really bad in the right eye and itching and went to the eye Dr.  She has given me eye drops and so far one day my eyes will be ok and the next will be terrible.  She did say that I do not have uveilitis (I know that is spelled wrong) which can be caused by zelboraf and can do damage in the eye.  For me the right eye started when the eye lid became red and got a few of the bumps there by zelboraf.  My derm gave me an ointment for that.   

            When I called my mel oncologist he was out of the country. The person covering for him suggested the eye Dr.  I was amazed that they fit me into her schedule the next day!  I think I'm going to call my onc back again. Maybe I need to stop the pills for a few day.

            Linda

            • October 24, 2012 at 5:53 pm
            lhaley
            Participant

              I am having the exact problem!  I'm also on Dex and my left eye has bothered me the last time I was on the Dex so I didn't worry about it.  Last week it got really bad in the right eye and itching and went to the eye Dr.  She has given me eye drops and so far one day my eyes will be ok and the next will be terrible.  She did say that I do not have uveilitis (I know that is spelled wrong) which can be caused by zelboraf and can do damage in the eye.  For me the right eye started when the eye lid became red and got a few of the bumps there by zelboraf.  My derm gave me an ointment for that.   

              When I called my mel oncologist he was out of the country. The person covering for him suggested the eye Dr.  I was amazed that they fit me into her schedule the next day!  I think I'm going to call my onc back again. Maybe I need to stop the pills for a few day.

              Linda

              • October 24, 2012 at 8:12 pm
              awillett1991
              Participant
                Tina – Been there done that, twice. I had bloodshot eyes, blurry with a yellow bump in one or the other. Eye dr said they were extremely dry. I used OTC eye drops (blink) then it went away. It came back worse and I had good luck with an ointment (Genteal) for severe dry eyes at night. Yucky though, like putting Vaseline in your eyes. Couldn’t see my way to the bed lol!!
                • October 24, 2012 at 8:12 pm
                awillett1991
                Participant
                  Tina – Been there done that, twice. I had bloodshot eyes, blurry with a yellow bump in one or the other. Eye dr said they were extremely dry. I used OTC eye drops (blink) then it went away. It came back worse and I had good luck with an ointment (Genteal) for severe dry eyes at night. Yucky though, like putting Vaseline in your eyes. Couldn’t see my way to the bed lol!!
                  • October 24, 2012 at 8:12 pm
                  awillett1991
                  Participant
                    Tina – Been there done that, twice. I had bloodshot eyes, blurry with a yellow bump in one or the other. Eye dr said they were extremely dry. I used OTC eye drops (blink) then it went away. It came back worse and I had good luck with an ointment (Genteal) for severe dry eyes at night. Yucky though, like putting Vaseline in your eyes. Couldn’t see my way to the bed lol!!
                    • October 25, 2012 at 11:58 pm
                    Tina D
                    Participant

                      Went to the optometrist this afternoon, and NO sign of uveitis..YAY! Eyes are dry, and OTC eye drops recommended. My Oncologist still wants me to get a brain CT scan, just to be safe, so I do that tomorrow, but am not expecting any new news.He has asked me to stay off the Z until we get the results.

                      Thanks for the encouraging and helpful words. It just helps so much to have others to talk to who walk this road!

                      Tina

                        • October 26, 2012 at 12:45 am
                        lhaley
                        Participant

                          Tina,

                          I'm going to a different eye Dr tomorrow. Oncologist called today and had made an appointment with a optomologist that has experience with zelboraf.  Meanwhile I've been taken off of it until tomorrows appointment. 

                          Linda

                          • October 26, 2012 at 2:30 am
                          awillett1991
                          Participant
                            I hope you both find some relief soon. I should’ve specified I saw an ophthalmologist, (the one with the MD), not an optometrist. I didn’t really know the difference. The OTC ointment worked great for me. Didn’t fix it, but managed it. Dry eyes went away when I stopped Zel.

                            Amy

                            • October 26, 2012 at 3:03 am
                            lhaley
                            Participant

                              My mistake. Mine is an opthamalogist but when I was trying to correct my spelling I ended up putting the wrong one.  I'm thinking my problem is the combination of the Zel and the dex.   How long did it take for your dry eyes go away?  I know when I got off of Dex the first time it took me a few weeks.  Don't think I can afford to be off of Zel for a long time!!

                              Linda

                              • October 26, 2012 at 12:49 pm
                              awillett1991
                              Participant
                                I’m not sure exactly when the dry eyes cleared, maybe a week? I got iritis from Ipi in one eye right after so it was confusing. I had great success with the night ointment/gel managing the eye symptoms. I never had to stop Zel for the eyes.

                                I was on 5 mg prednisone for months and started tapering down then stopped before stopping Zel, but it didn’t help my eyes. I know Dex is much stronger. Hope this helps. And makes sense.

                                • October 26, 2012 at 12:49 pm
                                awillett1991
                                Participant
                                  I’m not sure exactly when the dry eyes cleared, maybe a week? I got iritis from Ipi in one eye right after so it was confusing. I had great success with the night ointment/gel managing the eye symptoms. I never had to stop Zel for the eyes.

                                  I was on 5 mg prednisone for months and started tapering down then stopped before stopping Zel, but it didn’t help my eyes. I know Dex is much stronger. Hope this helps. And makes sense.

                                  • October 26, 2012 at 12:49 pm
                                  awillett1991
                                  Participant
                                    I’m not sure exactly when the dry eyes cleared, maybe a week? I got iritis from Ipi in one eye right after so it was confusing. I had great success with the night ointment/gel managing the eye symptoms. I never had to stop Zel for the eyes.

                                    I was on 5 mg prednisone for months and started tapering down then stopped before stopping Zel, but it didn’t help my eyes. I know Dex is much stronger. Hope this helps. And makes sense.

                                    • October 26, 2012 at 3:03 am
                                    lhaley
                                    Participant

                                      My mistake. Mine is an opthamalogist but when I was trying to correct my spelling I ended up putting the wrong one.  I'm thinking my problem is the combination of the Zel and the dex.   How long did it take for your dry eyes go away?  I know when I got off of Dex the first time it took me a few weeks.  Don't think I can afford to be off of Zel for a long time!!

                                      Linda

                                      • October 26, 2012 at 3:03 am
                                      lhaley
                                      Participant

                                        My mistake. Mine is an opthamalogist but when I was trying to correct my spelling I ended up putting the wrong one.  I'm thinking my problem is the combination of the Zel and the dex.   How long did it take for your dry eyes go away?  I know when I got off of Dex the first time it took me a few weeks.  Don't think I can afford to be off of Zel for a long time!!

                                        Linda

                                        • October 26, 2012 at 2:30 am
                                        awillett1991
                                        Participant
                                          I hope you both find some relief soon. I should’ve specified I saw an ophthalmologist, (the one with the MD), not an optometrist. I didn’t really know the difference. The OTC ointment worked great for me. Didn’t fix it, but managed it. Dry eyes went away when I stopped Zel.

                                          Amy

                                          • October 26, 2012 at 2:30 am
                                          awillett1991
                                          Participant
                                            I hope you both find some relief soon. I should’ve specified I saw an ophthalmologist, (the one with the MD), not an optometrist. I didn’t really know the difference. The OTC ointment worked great for me. Didn’t fix it, but managed it. Dry eyes went away when I stopped Zel.

                                            Amy

                                            • October 26, 2012 at 12:45 am
                                            lhaley
                                            Participant

                                              Tina,

                                              I'm going to a different eye Dr tomorrow. Oncologist called today and had made an appointment with a optomologist that has experience with zelboraf.  Meanwhile I've been taken off of it until tomorrows appointment. 

                                              Linda

                                              • October 26, 2012 at 12:45 am
                                              lhaley
                                              Participant

                                                Tina,

                                                I'm going to a different eye Dr tomorrow. Oncologist called today and had made an appointment with a optomologist that has experience with zelboraf.  Meanwhile I've been taken off of it until tomorrows appointment. 

                                                Linda

                                              • October 25, 2012 at 11:58 pm
                                              Tina D
                                              Participant

                                                Went to the optometrist this afternoon, and NO sign of uveitis..YAY! Eyes are dry, and OTC eye drops recommended. My Oncologist still wants me to get a brain CT scan, just to be safe, so I do that tomorrow, but am not expecting any new news.He has asked me to stay off the Z until we get the results.

                                                Thanks for the encouraging and helpful words. It just helps so much to have others to talk to who walk this road!

                                                Tina

                                                • October 25, 2012 at 11:58 pm
                                                Tina D
                                                Participant

                                                  Went to the optometrist this afternoon, and NO sign of uveitis..YAY! Eyes are dry, and OTC eye drops recommended. My Oncologist still wants me to get a brain CT scan, just to be safe, so I do that tomorrow, but am not expecting any new news.He has asked me to stay off the Z until we get the results.

                                                  Thanks for the encouraging and helpful words. It just helps so much to have others to talk to who walk this road!

                                                  Tina

                                                  • October 26, 2012 at 1:54 pm
                                                  Richard_K
                                                  Participant

                                                     

                                                    Tina

                                                    While I do not think I have experienced this side effect, I sometimes wonder.  From time to time, vision does not seem as clear as it was, but later on it seems fine.  I never thought there was any association.  Anyway, I found this video that talks about Zelboraf side effects, the vision segment starts around the 13:10 mark.

                                                    http://www.zelboraf.com/dermatology/resources/nurse/index.html#resourcePlayer/all/chapter2

                                                    Good luck,

                                                    Dick

                                                      • October 27, 2012 at 1:46 am
                                                      Tina D
                                                      Participant

                                                        Thank you, Dick,

                                                        I thought I had noticed the same thing before my long break off the med…with vision being a little blurry, then clearing up – but my eyes never got red like they are now. I am always so curious as to what causes the drug to cause the side effects. Wondering if the blurriness before was from eyes being dry? The drops are helping the discomfort, but they are still pretty red. Went for CT scan today and once I get the results back on Monday, considering they are normal, I will restart Zelboraf then.I was very relieved that it was not uveitis & even felt a little silly for going to the Dr for dry eyes, but was not wanting to take a chance with my vision.

                                                        Thank again & hope your break is allowing you some sleep-in mornings!

                                                        Tina

                                                        • October 27, 2012 at 1:46 am
                                                        Tina D
                                                        Participant

                                                          Thank you, Dick,

                                                          I thought I had noticed the same thing before my long break off the med…with vision being a little blurry, then clearing up – but my eyes never got red like they are now. I am always so curious as to what causes the drug to cause the side effects. Wondering if the blurriness before was from eyes being dry? The drops are helping the discomfort, but they are still pretty red. Went for CT scan today and once I get the results back on Monday, considering they are normal, I will restart Zelboraf then.I was very relieved that it was not uveitis & even felt a little silly for going to the Dr for dry eyes, but was not wanting to take a chance with my vision.

                                                          Thank again & hope your break is allowing you some sleep-in mornings!

                                                          Tina

                                                          • October 27, 2012 at 1:46 am
                                                          Tina D
                                                          Participant

                                                            Thank you, Dick,

                                                            I thought I had noticed the same thing before my long break off the med…with vision being a little blurry, then clearing up – but my eyes never got red like they are now. I am always so curious as to what causes the drug to cause the side effects. Wondering if the blurriness before was from eyes being dry? The drops are helping the discomfort, but they are still pretty red. Went for CT scan today and once I get the results back on Monday, considering they are normal, I will restart Zelboraf then.I was very relieved that it was not uveitis & even felt a little silly for going to the Dr for dry eyes, but was not wanting to take a chance with my vision.

                                                            Thank again & hope your break is allowing you some sleep-in mornings!

                                                            Tina

                                                          • October 26, 2012 at 1:54 pm
                                                          Richard_K
                                                          Participant

                                                             

                                                            Tina

                                                            While I do not think I have experienced this side effect, I sometimes wonder.  From time to time, vision does not seem as clear as it was, but later on it seems fine.  I never thought there was any association.  Anyway, I found this video that talks about Zelboraf side effects, the vision segment starts around the 13:10 mark.

                                                            http://www.zelboraf.com/dermatology/resources/nurse/index.html#resourcePlayer/all/chapter2

                                                            Good luck,

                                                            Dick

                                                            • October 26, 2012 at 1:54 pm
                                                            Richard_K
                                                            Participant

                                                               

                                                              Tina

                                                              While I do not think I have experienced this side effect, I sometimes wonder.  From time to time, vision does not seem as clear as it was, but later on it seems fine.  I never thought there was any association.  Anyway, I found this video that talks about Zelboraf side effects, the vision segment starts around the 13:10 mark.

                                                              http://www.zelboraf.com/dermatology/resources/nurse/index.html#resourcePlayer/all/chapter2

                                                              Good luck,

                                                              Dick

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