Biopsy Results

Forums General Melanoma Community Biopsy Results

  • Post
    MattF
    Participant
      So biopsy of lump on my right side of neck
      about half an inch below my primary MM
      WLE with clear SNB and marginsa Stage II
      from Sept 2012 are in.

      UCLA FNA confirmed Metastatic Melanoma
      in the Salivary Gland on right side.

      I meet with the Oncologist (Dr Bartosz
      Chmielowski) tomorrow. I assume this is
      moves me to stage III as it is not a “distant”
      site. I expect PET, parotidectomy (sp),
      possible neck dissection or lymphextomy (sp)
      and probably some treatment.

      Anyone with any info please feel free to
      pass it on.

      Matt

      So biopsy of lump on my right side of neck
      about half an inch below my primary MM
      WLE with clear SNB and marginsa Stage II
      from Sept 2012 are in.

      UCLA FNA confirmed Metastatic Melanoma
      in the Salivary Gland on right side.

      I meet with the Oncologist (Dr Bartosz
      Chmielowski) tomorrow. I assume this is
      moves me to stage III as it is not a “distant”
      site. I expect PET, parotidectomy (sp),
      possible neck dissection or lymphextomy (sp)
      and probably some treatment.

      Anyone with any info please feel free to
      pass it on.

      Matt

    Viewing 7 reply threads
    • Replies
        ecc26
        Participant

          So sorry that it turned out to be melanoma. I read your other post (didn't have anything useful to add, so I didn't comment) and was really hoping for salivary cyst or blocked gland. 

          Not sure if they'll classify it as local/in transit met (stage III) or whether since it's in an organ (salivary gland) vs lymph node or subQ they'll call it a distant met (stage IV). Either way, you're probably right- you're in for some imaging (either a PET or a CT, maybe a PET since it's on your head). With any luck this is the only met you have and surgery will be just the thing. They may offer to follow up with something like Ipilimumab  or suggest looking into clinical trials (for stage III) just to be safe. What surgery and the extent of surgery will depend on what they see on the scans, which they'll need for surgical planning as well as to search the rest of your body for other mets. 

          Wishing you all the best and keeping my fingers crossed for you.

          -Eva

          ecc26
          Participant

            So sorry that it turned out to be melanoma. I read your other post (didn't have anything useful to add, so I didn't comment) and was really hoping for salivary cyst or blocked gland. 

            Not sure if they'll classify it as local/in transit met (stage III) or whether since it's in an organ (salivary gland) vs lymph node or subQ they'll call it a distant met (stage IV). Either way, you're probably right- you're in for some imaging (either a PET or a CT, maybe a PET since it's on your head). With any luck this is the only met you have and surgery will be just the thing. They may offer to follow up with something like Ipilimumab  or suggest looking into clinical trials (for stage III) just to be safe. What surgery and the extent of surgery will depend on what they see on the scans, which they'll need for surgical planning as well as to search the rest of your body for other mets. 

            Wishing you all the best and keeping my fingers crossed for you.

            -Eva

            ecc26
            Participant

              So sorry that it turned out to be melanoma. I read your other post (didn't have anything useful to add, so I didn't comment) and was really hoping for salivary cyst or blocked gland. 

              Not sure if they'll classify it as local/in transit met (stage III) or whether since it's in an organ (salivary gland) vs lymph node or subQ they'll call it a distant met (stage IV). Either way, you're probably right- you're in for some imaging (either a PET or a CT, maybe a PET since it's on your head). With any luck this is the only met you have and surgery will be just the thing. They may offer to follow up with something like Ipilimumab  or suggest looking into clinical trials (for stage III) just to be safe. What surgery and the extent of surgery will depend on what they see on the scans, which they'll need for surgical planning as well as to search the rest of your body for other mets. 

              Wishing you all the best and keeping my fingers crossed for you.

              -Eva

              kathycmc
              Participant

                A CT scan will give them more definitive information about the salivary gland than a PET scan but they may do a PET as well to rule out anything else.  In my daughter's case they did only the CT.  If you are staged at III there are a few treatment options such as Interferon alone, Biochemotherapy, wait and see or a drug trial if you qualify.  Be sure to ask your surgeon about any facial nerves that may be affected during surgery.  They had to move a branch of the facial nerve during my daughters surgery and she had weakness of her lower lip which, minimally, interfered with talking and smiling but is now getting better (7 months later).

                kathycmc
                Participant

                  A CT scan will give them more definitive information about the salivary gland than a PET scan but they may do a PET as well to rule out anything else.  In my daughter's case they did only the CT.  If you are staged at III there are a few treatment options such as Interferon alone, Biochemotherapy, wait and see or a drug trial if you qualify.  Be sure to ask your surgeon about any facial nerves that may be affected during surgery.  They had to move a branch of the facial nerve during my daughters surgery and she had weakness of her lower lip which, minimally, interfered with talking and smiling but is now getting better (7 months later).

                  kathycmc
                  Participant

                    A CT scan will give them more definitive information about the salivary gland than a PET scan but they may do a PET as well to rule out anything else.  In my daughter's case they did only the CT.  If you are staged at III there are a few treatment options such as Interferon alone, Biochemotherapy, wait and see or a drug trial if you qualify.  Be sure to ask your surgeon about any facial nerves that may be affected during surgery.  They had to move a branch of the facial nerve during my daughters surgery and she had weakness of her lower lip which, minimally, interfered with talking and smiling but is now getting better (7 months later).

                    MattF
                    Participant

                      Thank you

                      yes i will be interested to see what they stage it as and what they use to stage it.

                      i actually will push for PET…to me a salivary gland is enough to want to check entire body for spread.

                      and i would hope they offer follow up…or even demand it. i'm not sure I would feel comfortable with just a cut it out approach.

                      MattF
                      Participant

                        Thank you

                        yeah this is about what i expect….my only issue would be the wait and see approach…that i would not agree with…I am less than 1 year out from my primary treatment of WLE and SNB then "we got it wait and see if anything else is wrong" I would hope this time I can take greater steps.

                        MattF
                        Participant

                          Thank you

                          yes i will be interested to see what they stage it as and what they use to stage it.

                          i actually will push for PET…to me a salivary gland is enough to want to check entire body for spread.

                          and i would hope they offer follow up…or even demand it. i'm not sure I would feel comfortable with just a cut it out approach.

                          MattF
                          Participant

                            Thank you

                            yes i will be interested to see what they stage it as and what they use to stage it.

                            i actually will push for PET…to me a salivary gland is enough to want to check entire body for spread.

                            and i would hope they offer follow up…or even demand it. i'm not sure I would feel comfortable with just a cut it out approach.

                            MattF
                            Participant

                              Thank you

                              yeah this is about what i expect….my only issue would be the wait and see approach…that i would not agree with…I am less than 1 year out from my primary treatment of WLE and SNB then "we got it wait and see if anything else is wrong" I would hope this time I can take greater steps.

                              MattF
                              Participant

                                Thank you

                                yeah this is about what i expect….my only issue would be the wait and see approach…that i would not agree with…I am less than 1 year out from my primary treatment of WLE and SNB then "we got it wait and see if anything else is wrong" I would hope this time I can take greater steps.

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