becoming NED

› Forums › General Melanoma Community › becoming NED

  • Post
    • November 8, 2012 at 9:01 pm
    Maggie23
    Participant

      Hi Everyone,

      I have been following this site for a while and all of the posts and information have been extremely helpful.  I have a question that I thought you melanoma gurus may be able to answer.  Is it possible for someone diagnosed at stage IV to become NED if the tumors are not able to be removed surgically?  I have seen wonderful posts about others becoming NED but each one of them mentions having surgery.  I have never seen a post about NED without the surgery. 

      Hi Everyone,

      I have been following this site for a while and all of the posts and information have been extremely helpful.  I have a question that I thought you melanoma gurus may be able to answer.  Is it possible for someone diagnosed at stage IV to become NED if the tumors are not able to be removed surgically?  I have seen wonderful posts about others becoming NED but each one of them mentions having surgery.  I have never seen a post about NED without the surgery. 

    Viewing 8 reply threads
    • Replies
        • November 8, 2012 at 9:19 pm
        jmmm
        Participant
          My husband was dx with stage 4 in January 2011. He hs had a combination of surgeries (all in 2011), Yervoy (May-July 2011) and Zelboraf (since October 2011). The Yervoy got rid of a few tumors, 3 tumors were surgically resected and several tumors went away with Zelboraf. He is currently NED! So, if you’re asking if tumors can go away without surgery, yes they can. His melanoma specialist likes to treat with medication first, watch and wait, then surgically ressect if they are causing a problem. Not sure if that really helps or not, but that’s hs experience.
          • November 8, 2012 at 9:19 pm
          jmmm
          Participant
            My husband was dx with stage 4 in January 2011. He hs had a combination of surgeries (all in 2011), Yervoy (May-July 2011) and Zelboraf (since October 2011). The Yervoy got rid of a few tumors, 3 tumors were surgically resected and several tumors went away with Zelboraf. He is currently NED! So, if you’re asking if tumors can go away without surgery, yes they can. His melanoma specialist likes to treat with medication first, watch and wait, then surgically ressect if they are causing a problem. Not sure if that really helps or not, but that’s hs experience.
            • November 8, 2012 at 9:19 pm
            jmmm
            Participant
              My husband was dx with stage 4 in January 2011. He hs had a combination of surgeries (all in 2011), Yervoy (May-July 2011) and Zelboraf (since October 2011). The Yervoy got rid of a few tumors, 3 tumors were surgically resected and several tumors went away with Zelboraf. He is currently NED! So, if you’re asking if tumors can go away without surgery, yes they can. His melanoma specialist likes to treat with medication first, watch and wait, then surgically ressect if they are causing a problem. Not sure if that really helps or not, but that’s hs experience.
              • November 9, 2012 at 12:03 am
              Richard_K
              Participant
                Yes. My tumors have not shown on PET for almost 2 years. CT scan shows no change in 1 year and my doctor thinks it’s scar tissue. Never had surgery except back in 1998 when I was stage I.
                Dick
                • November 9, 2012 at 12:03 am
                Richard_K
                Participant
                  Yes. My tumors have not shown on PET for almost 2 years. CT scan shows no change in 1 year and my doctor thinks it’s scar tissue. Never had surgery except back in 1998 when I was stage I.
                  Dick
                  • November 9, 2012 at 12:03 am
                  Richard_K
                  Participant
                    Yes. My tumors have not shown on PET for almost 2 years. CT scan shows no change in 1 year and my doctor thinks it’s scar tissue. Never had surgery except back in 1998 when I was stage I.
                    Dick
                    • November 9, 2012 at 1:55 am
                    Tina D
                    Participant

                      I had my first scan 2 months after starting Zelboraf and got a NED report. Will have another set of scans beginning of december. Had tumors in my pancreas, near my intestine, near my Aorta and infront of my pancreas. All resolved completely.

                      So Thankful!

                      Tina

                      • November 9, 2012 at 1:55 am
                      Tina D
                      Participant

                        I had my first scan 2 months after starting Zelboraf and got a NED report. Will have another set of scans beginning of december. Had tumors in my pancreas, near my intestine, near my Aorta and infront of my pancreas. All resolved completely.

                        So Thankful!

                        Tina

                        • November 9, 2012 at 1:55 am
                        Tina D
                        Participant

                          I had my first scan 2 months after starting Zelboraf and got a NED report. Will have another set of scans beginning of december. Had tumors in my pancreas, near my intestine, near my Aorta and infront of my pancreas. All resolved completely.

                          So Thankful!

                          Tina

                            • November 12, 2012 at 2:35 am
                            Maggie23
                            Participant

                              Thank you all very much for sharing your success stories!  I love hearing all of the good news! 

                              • November 12, 2012 at 2:35 am
                              Maggie23
                              Participant

                                Thank you all very much for sharing your success stories!  I love hearing all of the good news! 

                                • November 12, 2012 at 2:35 am
                                Maggie23
                                Participant

                                  Thank you all very much for sharing your success stories!  I love hearing all of the good news! 

                            Viewing 8 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics