Wayne and I just returned from his check up appointment. Only did lab, – saw Derm and saw Dr. B.
He said he had just returned from a huge conference (do not know if it was OSCO or not) – but they were discussing what to do with patients who had a complete response with ZEL, like Wayne did.
He said only about 4% of people have this kind of response, but they now do not know really what to do with them. They are working on a protocol about this very thing and how long a patient should keep taking the ZEL.
Wayne and I just returned from his check up appointment. Only did lab, – saw Derm and saw Dr. B.
He said he had just returned from a huge conference (do not know if it was OSCO or not) – but they were discussing what to do with patients who had a complete response with ZEL, like Wayne did.
He said only about 4% of people have this kind of response, but they now do not know really what to do with them. They are working on a protocol about this very thing and how long a patient should keep taking the ZEL.
Also, they are talking about doing a trial for a PREVENTON drug foro Melanoma mets. That's all we found out at his point. In the meantime, Wayne will continue with the full meal deal (4 tabs twice a day) and visit MDA every month –
doing PETS – CATS – ETC. every other month.
This was very, very encouraging to us. WOW…….a preventive med !!!. How awesome would that be ! He was very in earnest as he talked to us wanting us to understand these things…..but that he must continue on as he is now –
and we want that very much TAKING NO CHANCES ! 🙂
Just thought I'd share this bit of info we got yesterday at MDA.
Nancy (devoted wife of 3X Warrior Wayne )
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