Hello everyone!
I haven't had anything to say about the anti-LAG-3 (BMS986016)/Opdivo combo trial I'm in since my last scan in mid-August, because there really wasn't anything to say. But I wanted to give everyone an update.
After the last two infusions, the most recent one this past Tuesday (9/12), I have noticed a significant increase in my level of fatigue. It doesn't last too long — 2-3 days so far — but it has been pretty heavy duty, to the point of my just having to go to bed and sleep for up to 11-12 hours. But that's only for one day, then my sleep habits have pretty much returned to normal. I suppose some of that fatigue could also stem from the 2+ hour trip each way to and from Johns Hopkins, although I can't say I noticed it after the first 2 or 3 infusions.
Other than the fatigue, I was extremely itchy and a little broken out on my upper chest and lower legs after my infusion on August 29. But that also quickly passed and I haven't noticed it as much this time.
I would have liked to have heard that my lesions had shrunk when I had my first scan last month, but they had only gotten slightly larger, and actually one of the target lesions had remained the same size. Dr. Sharfman seems satisfied with how things are going so far, so who am I to think otherwise? 🙂
My next scan is on October 6 (a CT scan to help celebrate my birthday the next day! Woo Hoo!!). I'll be back with info about how that went after I hear the results.
-Bill
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