6 mth Zel and disappointing CT

Forums General Melanoma Community 6 mth Zel and disappointing CT

  • Post
    François
    Participant

      I just finished my 6th month on Zelboraf, 8 pills a day, having CT scan every 8 weeks showing that 3 lungs mets disappeared since the very beginning of the treatment. Last week ct scan results showed 3 new 20 mm spots on the liver. Radiologist suggest that they could be mets but my onc is a bit surprised and He book me a Pet scan next week. He doesn't believe that lungs mets didn't come back at the time that liver mets are 20 mm, considering that previous ct was cleared. I am very disappointed because I feel very good, no pain, except typical side effects.

      I just finished my 6th month on Zelboraf, 8 pills a day, having CT scan every 8 weeks showing that 3 lungs mets disappeared since the very beginning of the treatment. Last week ct scan results showed 3 new 20 mm spots on the liver. Radiologist suggest that they could be mets but my onc is a bit surprised and He book me a Pet scan next week. He doesn't believe that lungs mets didn't come back at the time that liver mets are 20 mm, considering that previous ct was cleared. I am very disappointed because I feel very good, no pain, except typical side effects. Two years ago after being 2 weeks on the hospital after surgery and having 3000mg every day of Paracetamol, I had the same problem with a Pet that showed 2 doubtful met that finally were nothing. Today, due to Vemurafenib, I have my GGT up in the clouds raising at 600/800 and I hope it could be the answer. I also had previously fatty lever due to alcohol ingestion. I will keep you informed.

      François

    Viewing 2 reply threads
    • Replies
        Tina D
        Participant

          I am sorry for the added stress of this report, but it does sound hopeful that there are other possible explanations. I am glad they are going to seek it out, though, and figure out for sure what is going on. Keep us posted of your progress and hopefully you will get encouraging news soon…it really does sound like that is likely the case. I do hate these emotional ups and downs, though. This can be such a roller coaster at times. 

          Tina

          Tina D
          Participant

            I am sorry for the added stress of this report, but it does sound hopeful that there are other possible explanations. I am glad they are going to seek it out, though, and figure out for sure what is going on. Keep us posted of your progress and hopefully you will get encouraging news soon…it really does sound like that is likely the case. I do hate these emotional ups and downs, though. This can be such a roller coaster at times. 

            Tina

            Tina D
            Participant

              I am sorry for the added stress of this report, but it does sound hopeful that there are other possible explanations. I am glad they are going to seek it out, though, and figure out for sure what is going on. Keep us posted of your progress and hopefully you will get encouraging news soon…it really does sound like that is likely the case. I do hate these emotional ups and downs, though. This can be such a roller coaster at times. 

              Tina

          Viewing 2 reply threads
          • You must be logged in to reply to this topic.
          About the MRF Patient Forum

          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

          Popular Topics