5 Years NED! Happy dance to follow!

Forums General Melanoma Community 5 Years NED! Happy dance to follow!

  • Post
    Julie in SoCal
    Participant

      Good Morning Friends,

      Yesterday I had my annual scans, and although the scanxiety was through the roof the results were worth it.  I remain NED.  Over the last 5 years I have read, and laughed and cried with folks here, I just wanted to write and say that I'm still here.  I don't post much, but I wanted to share the good news and encourage everyone out there. 

      Good Morning Friends,

      Yesterday I had my annual scans, and although the scanxiety was through the roof the results were worth it.  I remain NED.  Over the last 5 years I have read, and laughed and cried with folks here, I just wanted to write and say that I'm still here.  I don't post much, but I wanted to share the good news and encourage everyone out there. 

      5 years ago I didn't think I would make it this far. When I was diagnosed, I had just made a major career change and gone back to school for my PhD.  Needless to say Mel wasn't in my plans and after the surgeries and treatment it took me quite awhile to get my feet back under me (and my head screwed on right) so I could study. But here it is 5 years on. I continue to be NED and I should graduate in June

      Friends, be gentle with yourself.  It take a while to adjust to all the new normals (how I hated that phrase a few years ago).  Lean in.  Lean into folks around you who love you.  You'll find them, although their identities may surprise you. And deepen your relationships with them.  Also lean into your faith.  Personally, I'm a follower of Jesus, and I have found that this has sustained and upheld and sometimes carried me kicking and screaming.  But it has now been tested by Mel, and I have found God is so much bigger.  But whatever your faith is, lean in.    Deepen your relationships there. 

      Life is precious.  Live every drop you're given.

      With my love and respect,

      Julie

      Stage 3, many WLEs, 2 SNBs, LND, HD-INF, GM-CSF = NED 5 years!

    Viewing 8 reply threads
    • Replies
        killmel
        Participant

          Hi Julie,

           

          So happy to read your post. It is nice to hear a "happy ending" to your story.

          Are you still seeing Dr. Oday. If not who is your doctor now???

          I  live in So California & always trying to keep up with good doctors in the area.

          Continued good health …stay well.

          k

          killmel
          Participant

            Hi Julie,

             

            So happy to read your post. It is nice to hear a "happy ending" to your story.

            Are you still seeing Dr. Oday. If not who is your doctor now???

            I  live in So California & always trying to keep up with good doctors in the area.

            Continued good health …stay well.

            k

              Julie in SoCal
              Participant

                Thanks k,

                I'm still at the Angeles Clinic and I'm seen by Dr Boasberg.  All my scans have been done there, and a at the point where I'm at I didn't see any reason to switch over.  There really aren't any slouches at the Angeles Clinic, though some Dr. may be more personable than others.  I think if I was in a different situation, I'd probably ask the "big dr" for a second opinion. But I'm very pleased with where I'm at now.

                Blessings,

                Julie

                Julie in SoCal
                Participant

                  Thanks k,

                  I'm still at the Angeles Clinic and I'm seen by Dr Boasberg.  All my scans have been done there, and a at the point where I'm at I didn't see any reason to switch over.  There really aren't any slouches at the Angeles Clinic, though some Dr. may be more personable than others.  I think if I was in a different situation, I'd probably ask the "big dr" for a second opinion. But I'm very pleased with where I'm at now.

                  Blessings,

                  Julie

                  Julie in SoCal
                  Participant

                    Thanks k,

                    I'm still at the Angeles Clinic and I'm seen by Dr Boasberg.  All my scans have been done there, and a at the point where I'm at I didn't see any reason to switch over.  There really aren't any slouches at the Angeles Clinic, though some Dr. may be more personable than others.  I think if I was in a different situation, I'd probably ask the "big dr" for a second opinion. But I'm very pleased with where I'm at now.

                    Blessings,

                    Julie

                  killmel
                  Participant

                    Hi Julie,

                     

                    So happy to read your post. It is nice to hear a "happy ending" to your story.

                    Are you still seeing Dr. Oday. If not who is your doctor now???

                    I  live in So California & always trying to keep up with good doctors in the area.

                    Continued good health …stay well.

                    k

                    kpcollins31
                    Participant

                      Always great to hear the positive stories… they help keep us going. Congratulations and here's to 5 more!

                      Kevin

                      kpcollins31
                      Participant

                        Always great to hear the positive stories… they help keep us going. Congratulations and here's to 5 more!

                        Kevin

                        kpcollins31
                        Participant

                          Always great to hear the positive stories… they help keep us going. Congratulations and here's to 5 more!

                          Kevin

                          triciad
                          Participant

                            Julie,

                            It is wonderful to read such uplifting news.  Congratulations and many more decades of NED status.  Go and celebrate!

                            Tricia

                            triciad
                            Participant

                              Julie,

                              It is wonderful to read such uplifting news.  Congratulations and many more decades of NED status.  Go and celebrate!

                              Tricia

                                NYKaren
                                Participant
                                  Julie,
                                  SO happy to hear your great news.
                                  I find it amazing that our bad fortune often brings out the best in those around us.
                                  I wish you many more years of NED.
                                  Karen
                                  NYKaren
                                  Participant
                                    Julie,
                                    SO happy to hear your great news.
                                    I find it amazing that our bad fortune often brings out the best in those around us.
                                    I wish you many more years of NED.
                                    Karen
                                    NYKaren
                                    Participant
                                      Julie,
                                      SO happy to hear your great news.
                                      I find it amazing that our bad fortune often brings out the best in those around us.
                                      I wish you many more years of NED.
                                      Karen
                                    triciad
                                    Participant

                                      Julie,

                                      It is wonderful to read such uplifting news.  Congratulations and many more decades of NED status.  Go and celebrate!

                                      Tricia

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