› Forums › General Melanoma Community › 5 Years NED! Happy dance to follow!
- This topic has 15 replies, 5 voices, and was last updated 13 years, 1 month ago by
NYKaren.
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- January 9, 2013 at 6:06 pm
Good Morning Friends,
Yesterday I had my annual scans, and although the scanxiety was through the roof the results were worth it. I remain NED. Over the last 5 years I have read, and laughed and cried with folks here, I just wanted to write and say that I'm still here. I don't post much, but I wanted to share the good news and encourage everyone out there.
Good Morning Friends,
Yesterday I had my annual scans, and although the scanxiety was through the roof the results were worth it. I remain NED. Over the last 5 years I have read, and laughed and cried with folks here, I just wanted to write and say that I'm still here. I don't post much, but I wanted to share the good news and encourage everyone out there.
5 years ago I didn't think I would make it this far. When I was diagnosed, I had just made a major career change and gone back to school for my PhD. Needless to say Mel wasn't in my plans and after the surgeries and treatment it took me quite awhile to get my feet back under me (and my head screwed on right) so I could study. But here it is 5 years on. I continue to be NED and I should graduate in June
Friends, be gentle with yourself. It take a while to adjust to all the new normals (how I hated that phrase a few years ago). Lean in. Lean into folks around you who love you. You'll find them, although their identities may surprise you. And deepen your relationships with them. Also lean into your faith. Personally, I'm a follower of Jesus, and I have found that this has sustained and upheld and sometimes carried me kicking and screaming. But it has now been tested by Mel, and I have found God is so much bigger. But whatever your faith is, lean in. Deepen your relationships there.
Life is precious. Live every drop you're given.
With my love and respect,
Julie
Stage 3, many WLEs, 2 SNBs, LND, HD-INF, GM-CSF = NED 5 years!
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- January 9, 2013 at 6:49 pm
Hi Julie,
So happy to read your post. It is nice to hear a "happy ending" to your story.
Are you still seeing Dr. Oday. If not who is your doctor now???
I live in So California & always trying to keep up with good doctors in the area.
Continued good health …stay well.
k
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- January 9, 2013 at 6:49 pm
Hi Julie,
So happy to read your post. It is nice to hear a "happy ending" to your story.
Are you still seeing Dr. Oday. If not who is your doctor now???
I live in So California & always trying to keep up with good doctors in the area.
Continued good health …stay well.
k
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- January 9, 2013 at 7:18 pm
Thanks k,
I'm still at the Angeles Clinic and I'm seen by Dr Boasberg. All my scans have been done there, and a at the point where I'm at I didn't see any reason to switch over. There really aren't any slouches at the Angeles Clinic, though some Dr. may be more personable than others. I think if I was in a different situation, I'd probably ask the "big dr" for a second opinion. But I'm very pleased with where I'm at now.
Blessings,
Julie
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- January 9, 2013 at 7:18 pm
Thanks k,
I'm still at the Angeles Clinic and I'm seen by Dr Boasberg. All my scans have been done there, and a at the point where I'm at I didn't see any reason to switch over. There really aren't any slouches at the Angeles Clinic, though some Dr. may be more personable than others. I think if I was in a different situation, I'd probably ask the "big dr" for a second opinion. But I'm very pleased with where I'm at now.
Blessings,
Julie
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- January 9, 2013 at 7:18 pm
Thanks k,
I'm still at the Angeles Clinic and I'm seen by Dr Boasberg. All my scans have been done there, and a at the point where I'm at I didn't see any reason to switch over. There really aren't any slouches at the Angeles Clinic, though some Dr. may be more personable than others. I think if I was in a different situation, I'd probably ask the "big dr" for a second opinion. But I'm very pleased with where I'm at now.
Blessings,
Julie
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- January 9, 2013 at 6:49 pm
Hi Julie,
So happy to read your post. It is nice to hear a "happy ending" to your story.
Are you still seeing Dr. Oday. If not who is your doctor now???
I live in So California & always trying to keep up with good doctors in the area.
Continued good health …stay well.
k
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- January 9, 2013 at 7:44 pm
Always great to hear the positive stories… they help keep us going. Congratulations and here's to 5 more!
Kevin
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- January 9, 2013 at 7:44 pm
Always great to hear the positive stories… they help keep us going. Congratulations and here's to 5 more!
Kevin
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- January 9, 2013 at 7:44 pm
Always great to hear the positive stories… they help keep us going. Congratulations and here's to 5 more!
Kevin
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- January 10, 2013 at 12:20 am
Julie,
It is wonderful to read such uplifting news. Congratulations and many more decades of NED status. Go and celebrate!
Tricia
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