3c and holding!

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  • Post
    • December 20, 2013 at 2:26 pm
    Julie in SoCal
    Participant

      Dear friends,

      I"m now back in Southern California after a bit of a whirlwind ride from Bangkok.  

      Yesterday I had scans and saw my Rock Star Mel Dr.  Scans came back all fine.  No indication of mel anywhere!  Needless to say i'm over the moon with these results. I didn't quite have myself buried and gone, but I did have a very real discussion with myself and family about the possibilities, including that this would be a "career ending injury" as my brother called it.  So coming out of this only in-transit mets is fabulous!

      Because I left one in place (thank you all for encouraging me to do this!!!) I technically have active measurable disease and am therfore, technically eligable for ippi!  So sometime after the New Year, I'll start.  Amazing.  

      Thank you so much for your advice and encouragement!

      Merry Christmas and Blessings to you in this New Year!

      Julie

       

       

       

       

       

       

    Viewing 5 reply threads
    • Replies
        • December 20, 2013 at 4:56 pm
        POW
        Participant
          Julie, thank you so much for the update. Although its never good news when one has melanoma, if you've got to have it you did all the right things. I, too, am glad that Janner suggested that you leave one "lump" in place and that you followed her suggestion. I was thinking of gettng a second opinion about the pathology. But the fact that this remaining tumor makes you elegible for ipi is great news. Since you have time, you might check to see if there are any clinical trials of anti-PD1 for Stage III patients. I think most of them say you have to have non-resectable tumors, but it won't hurt to check. 
           
          But the bottom line is you were very smart, you acted quickly and decisively, and you have every reason to be optimistic about your future. AND you get to celebrate Christmas at home! Good for you!
           
          • December 20, 2013 at 4:56 pm
          POW
          Participant
            Julie, thank you so much for the update. Although its never good news when one has melanoma, if you've got to have it you did all the right things. I, too, am glad that Janner suggested that you leave one "lump" in place and that you followed her suggestion. I was thinking of gettng a second opinion about the pathology. But the fact that this remaining tumor makes you elegible for ipi is great news. Since you have time, you might check to see if there are any clinical trials of anti-PD1 for Stage III patients. I think most of them say you have to have non-resectable tumors, but it won't hurt to check. 
             
            But the bottom line is you were very smart, you acted quickly and decisively, and you have every reason to be optimistic about your future. AND you get to celebrate Christmas at home! Good for you!
             
            • December 20, 2013 at 4:56 pm
            POW
            Participant
              Julie, thank you so much for the update. Although its never good news when one has melanoma, if you've got to have it you did all the right things. I, too, am glad that Janner suggested that you leave one "lump" in place and that you followed her suggestion. I was thinking of gettng a second opinion about the pathology. But the fact that this remaining tumor makes you elegible for ipi is great news. Since you have time, you might check to see if there are any clinical trials of anti-PD1 for Stage III patients. I think most of them say you have to have non-resectable tumors, but it won't hurt to check. 
               
              But the bottom line is you were very smart, you acted quickly and decisively, and you have every reason to be optimistic about your future. AND you get to celebrate Christmas at home! Good for you!
               
              • December 27, 2013 at 10:41 pm
              Michelem
              Participant

                So glad for Julie – and I would like to know more about this. We were kicked from an interferon/ipi randomized trial because the melanoma reappeared . . . were told you must be cancer-free to get the ipi.

                Can you share more information about the circumstances that make it possible for a Stage III patient to receive the ipi?  Thanks so much!

                 

                • December 27, 2013 at 10:41 pm
                Michelem
                Participant

                  So glad for Julie – and I would like to know more about this. We were kicked from an interferon/ipi randomized trial because the melanoma reappeared . . . were told you must be cancer-free to get the ipi.

                  Can you share more information about the circumstances that make it possible for a Stage III patient to receive the ipi?  Thanks so much!

                   

                  • December 27, 2013 at 10:41 pm
                  Michelem
                  Participant

                    So glad for Julie – and I would like to know more about this. We were kicked from an interferon/ipi randomized trial because the melanoma reappeared . . . were told you must be cancer-free to get the ipi.

                    Can you share more information about the circumstances that make it possible for a Stage III patient to receive the ipi?  Thanks so much!

                     

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