2nd set of Zel scans results & switching to Yervoy

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  • Post
    • September 5, 2012 at 1:39 am
    awillett1991
    Participant
      I got my second set of scan results after about 5 mos total now on Zel. My cardiac tumor has gone from 23x24mm in April down to 7x8mm and isn’t detectable on the PET. In April I also had a “4 mm area of enhancement in the left inferior frontal lobe with edema. Probable metastasis.” but no confirmed tumor mass. Brain is now ALL CLEAR. For this BRAF V600D girl, Zel has saved me for now.

      I have a couple of questionable spots from the PET ( maybe lymph nodes or nothing) in my abdomen and am getting a follow up CT. So, not sure if ZEL is starting to fail, but for me the most important organs are clear, as well as my skeleton 1 yr after surgical removal of a nasty pelvic bone met, so I’m calling this a WIN.

      Having not done Yervoy I am switching over in a couple of weeks while things are looking really good. Not eligible for ANY trial with a cardiac met. Anyway, I’m still hoping to kick this Mel once and for all and be able to raise my 3 kids. Even though Yervoy scares me, Zel has been no picnic either. Y’all, my fingernails are starting to come loose from the nail beds. Seriously. Yuk.

      Amy

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        • September 5, 2012 at 4:13 am
        aldakota22
        Participant

          Glad that round one went to you with "Z" in your corner.Will pray that now that you wil soonl be on Yervoy that you finally win the fight.Beat the Beast.  Al

          • September 5, 2012 at 4:13 am
          aldakota22
          Participant

            Glad that round one went to you with "Z" in your corner.Will pray that now that you wil soonl be on Yervoy that you finally win the fight.Beat the Beast.  Al

            • September 5, 2012 at 4:13 am
            aldakota22
            Participant

              Glad that round one went to you with "Z" in your corner.Will pray that now that you wil soonl be on Yervoy that you finally win the fight.Beat the Beast.  Al

              • September 5, 2012 at 11:15 pm
              Gene_S
              Participant

                Amy,

                My research to date shows that Yervoy has the largest numbers of long term survivors. I am currently on it, doing the high dose version and the biggest problems for me is itching (maybe just me)?   You should watch the following video as it has current info on vitamin D-3. See http://www.youtube.com/watch?v=eeXtGHSt-5o  pay more attention around the 13 minute time marker for what I believe is helping me win the battle with the beast. Diet also has a lot to do with winning your battle, however your oncologist will never tell you this. If possible drink only spring water and lots of it. Green tea helps too.

                Best wishes,

                Gene

                • September 5, 2012 at 11:15 pm
                Gene_S
                Participant

                  Amy,

                  My research to date shows that Yervoy has the largest numbers of long term survivors. I am currently on it, doing the high dose version and the biggest problems for me is itching (maybe just me)?   You should watch the following video as it has current info on vitamin D-3. See http://www.youtube.com/watch?v=eeXtGHSt-5o  pay more attention around the 13 minute time marker for what I believe is helping me win the battle with the beast. Diet also has a lot to do with winning your battle, however your oncologist will never tell you this. If possible drink only spring water and lots of it. Green tea helps too.

                  Best wishes,

                  Gene

                  • September 5, 2012 at 11:15 pm
                  Gene_S
                  Participant

                    Amy,

                    My research to date shows that Yervoy has the largest numbers of long term survivors. I am currently on it, doing the high dose version and the biggest problems for me is itching (maybe just me)?   You should watch the following video as it has current info on vitamin D-3. See http://www.youtube.com/watch?v=eeXtGHSt-5o  pay more attention around the 13 minute time marker for what I believe is helping me win the battle with the beast. Diet also has a lot to do with winning your battle, however your oncologist will never tell you this. If possible drink only spring water and lots of it. Green tea helps too.

                    Best wishes,

                    Gene

                Viewing 5 reply threads
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