› Forums › General Melanoma Community › 15 days, mystery solved,back at it again, 2nd ipi tomorrow! wow!
- This topic has 18 replies, 6 voices, and was last updated 13 years, 1 month ago by
Tina D.
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- January 8, 2013 at 10:20 pm
Early in December, abt the 9th, I started to have an uncomforable feeling in my abdomen… felt like gassy pains, but worse. This gnawed at me for a good while, and I rationalized that it was just not a big deal. I also started running low grade temps, but just coming off the Zelboraf, kind-of paid little attention. On the 21st ( our daughters birthday) I came home from an errand, kind-of doubled over and hubby stood his ground INSISTING I go see the Doc…who sent me to the ER, who treated me symptomatically as a cancer pt and sent me home, by the 24th, I was in agony and very sick.
Early in December, abt the 9th, I started to have an uncomforable feeling in my abdomen… felt like gassy pains, but worse. This gnawed at me for a good while, and I rationalized that it was just not a big deal. I also started running low grade temps, but just coming off the Zelboraf, kind-of paid little attention. On the 21st ( our daughters birthday) I came home from an errand, kind-of doubled over and hubby stood his ground INSISTING I go see the Doc…who sent me to the ER, who treated me symptomatically as a cancer pt and sent me home, by the 24th, I was in agony and very sick. Back to the hospital and admitted.Over the next week, every bowel test and numerous scans and exrays and cultures could not identify why my white count had soared to 25,000, temps elevated, could NOT eat anything, N/V and excrutiating pain. Finally it was decided reluctantly by my surgeon to do an exploratory lap with little hope on his part of fixing the problem. He removed lots of adhesions, but did not feel too confident that was the problem. Well… the following day, I could tell things felt different…my white counts dropped to 8 & temp was normal! Thank God! My appetite returned, and I FINALLY got to come home yesterday after a 15 day hospital stay. So, the Chrismas tree is still up, and will stay up until we are able to celebrate 🙂 . Dr Linette said if I am able, come on for next ipi infusion as previously scheduled, so I will be heading there tomorrow!! Hemoglobin is very low from surgery ( they wanted to do a transfusion, I begged a chance to rebuild at home). I also got a port put in since I can not use my right arm for IVs, my left arm was SHOT by the time I went for surgery… so it will be convenient to have a port. I am thankful to be safely on the other side of this!! Off to St Louis tomorrow!! Never a dull moment…..
Tina
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- January 8, 2013 at 10:49 pm
Glad to hear the improvement. My hemoglobin improved immediately and I felt better after the first of the two bags of concentrated red blood cells I received. I was even better the next day. I did read that chicken liver contains three times the iron per unit of weight that bef liver does. I've been eating more chicken livers sinced then. (The chicken liver is harder to locate.)
Enjoy your Christmas.
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- January 8, 2013 at 10:49 pm
Glad to hear the improvement. My hemoglobin improved immediately and I felt better after the first of the two bags of concentrated red blood cells I received. I was even better the next day. I did read that chicken liver contains three times the iron per unit of weight that bef liver does. I've been eating more chicken livers sinced then. (The chicken liver is harder to locate.)
Enjoy your Christmas.
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- January 8, 2013 at 10:49 pm
Glad to hear the improvement. My hemoglobin improved immediately and I felt better after the first of the two bags of concentrated red blood cells I received. I was even better the next day. I did read that chicken liver contains three times the iron per unit of weight that bef liver does. I've been eating more chicken livers sinced then. (The chicken liver is harder to locate.)
Enjoy your Christmas.
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- January 8, 2013 at 11:01 pm
Thanks for posting Tina, everyone will be so glad to hear from you! WOW, you have been through so much the past few weeks and it doesn't sound like there is a reasonable explanation for any of it!
The thought of another ipi dose, so soon after all this, makes me a bit nervous for you! Sounds like you would benefit from more rest before taking on another ipi dose….make sure you tell your doc everything! I had a bad experience from just one dose of ipi, so hence the apprehension!
Thinking of you, happy your feeling better and continued wishes for complete healing!
Swanee
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- January 8, 2013 at 11:01 pm
Thanks for posting Tina, everyone will be so glad to hear from you! WOW, you have been through so much the past few weeks and it doesn't sound like there is a reasonable explanation for any of it!
The thought of another ipi dose, so soon after all this, makes me a bit nervous for you! Sounds like you would benefit from more rest before taking on another ipi dose….make sure you tell your doc everything! I had a bad experience from just one dose of ipi, so hence the apprehension!
Thinking of you, happy your feeling better and continued wishes for complete healing!
Swanee
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- January 8, 2013 at 11:01 pm
Thanks for posting Tina, everyone will be so glad to hear from you! WOW, you have been through so much the past few weeks and it doesn't sound like there is a reasonable explanation for any of it!
The thought of another ipi dose, so soon after all this, makes me a bit nervous for you! Sounds like you would benefit from more rest before taking on another ipi dose….make sure you tell your doc everything! I had a bad experience from just one dose of ipi, so hence the apprehension!
Thinking of you, happy your feeling better and continued wishes for complete healing!
Swanee
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- January 9, 2013 at 12:06 am
You go girl! So glad you are on the mend. I’ve had a power port 2 1/2 yrs and don’t even notice it any more. It makes my life easier. I remember one of the kids asking if the drs used it to track me – Lol!It sounds like your Dr has lots of Ipi experience and will make sure you are taken care of, just remember to speak up – no extra points awarded for suffering!
Good luck tomorrow!
Amy -
- January 9, 2013 at 12:06 am
You go girl! So glad you are on the mend. I’ve had a power port 2 1/2 yrs and don’t even notice it any more. It makes my life easier. I remember one of the kids asking if the drs used it to track me – Lol!It sounds like your Dr has lots of Ipi experience and will make sure you are taken care of, just remember to speak up – no extra points awarded for suffering!
Good luck tomorrow!
Amy-
- January 10, 2013 at 4:58 pm
Thanks guys… it was a long a tiring day, but treatment went fine, and we actually dined out last night in the hotel restaurant. Felt awesome. My hemoglobin is up to 10.2 already, so I was pretty happy abt that! We are hoping to be able to finish our Christmas shopping and have our family Christmas celebration the weekend of the 19th, along with our oldest daughter's 25th birthday celebration ( that was the 21st of Dec).
Surgery recovery is going well… SO glad he was able to do it laprascopically. Much easier recovery.
Feeling blessed and looking forward to getting settled back in at home 🙂
Tina
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- January 10, 2013 at 4:58 pm
Thanks guys… it was a long a tiring day, but treatment went fine, and we actually dined out last night in the hotel restaurant. Felt awesome. My hemoglobin is up to 10.2 already, so I was pretty happy abt that! We are hoping to be able to finish our Christmas shopping and have our family Christmas celebration the weekend of the 19th, along with our oldest daughter's 25th birthday celebration ( that was the 21st of Dec).
Surgery recovery is going well… SO glad he was able to do it laprascopically. Much easier recovery.
Feeling blessed and looking forward to getting settled back in at home 🙂
Tina
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- January 10, 2013 at 4:58 pm
Thanks guys… it was a long a tiring day, but treatment went fine, and we actually dined out last night in the hotel restaurant. Felt awesome. My hemoglobin is up to 10.2 already, so I was pretty happy abt that! We are hoping to be able to finish our Christmas shopping and have our family Christmas celebration the weekend of the 19th, along with our oldest daughter's 25th birthday celebration ( that was the 21st of Dec).
Surgery recovery is going well… SO glad he was able to do it laprascopically. Much easier recovery.
Feeling blessed and looking forward to getting settled back in at home 🙂
Tina
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- January 9, 2013 at 12:06 am
You go girl! So glad you are on the mend. I’ve had a power port 2 1/2 yrs and don’t even notice it any more. It makes my life easier. I remember one of the kids asking if the drs used it to track me – Lol!It sounds like your Dr has lots of Ipi experience and will make sure you are taken care of, just remember to speak up – no extra points awarded for suffering!
Good luck tomorrow!
Amy
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