12 Years NED today after BRAIN MET

Forums General Melanoma Community 12 Years NED today after BRAIN MET

  • Post
    Carole K
    Participant

      Hi Everyone,

      For all intents I am concisdered to be an OLD TIMER on the board eventough I rarely post anymore.  I am still NED after a brain met for which I had surgery 12 years ago today at NYU Medical Center in NYC.  I am still amazed and every day I wake up and say IT'S A BEAUTIFUL DAY, I OPENED MY EYES TODAY. NO matter the storm, the rain in my life or with the weather I still find many blessings.

      Hi Everyone,

      For all intents I am concisdered to be an OLD TIMER on the board eventough I rarely post anymore.  I am still NED after a brain met for which I had surgery 12 years ago today at NYU Medical Center in NYC.  I am still amazed and every day I wake up and say IT'S A BEAUTIFUL DAY, I OPENED MY EYES TODAY. NO matter the storm, the rain in my life or with the weather I still find many blessings.

      We all know the diagnosis of Brain Met is considered a death sentemce.  I was petrified until my oncoldogst said.. Carole, noone can tell you where the statistics come from , nor nos they wre arrived at or how old they are. YOU ARE AN INDIVIDUAL AND YOU ARE DIFGFERENT FROM EVERYONE ELSE.  Those words stuc with me and still do to this day, 

      I have been blessed to see both of my daughters married and three incredible grandchildren brought into the world and a fourth one on the way and a hopefully a fith one by the end of the year. What more could I ask for.  I spend so much time with my grandchidlren who make me smile and at times make me cry wiht a big kiss or a cry as I leave and say goodbye.  Wow.. I wouldn't  trade it for anything in the world.  No amoung of money could buy this happiness. 

      To each and everyone of you on this journey, take a deep breath, try to find the gifts, there are many and yet at times I know how difficult it is to find them. the past 12 years have not been easy in many ways,.  I have lost far too  many loved ones, far too many Melanoma Patients I have connected with, a huge financial loss and at the same time I have witnessed two daughers being married, three grandhcidren being born, I have built a new house, I have traveled far and wide to meet so many of you , WE have shared laughter, tears and joy and I am so eternally gratefull to each and everyone who havr crossed my ;path.  You have brought me smiles, joys and laughtert at the times I have needed it most. You have brought me sanity in those times of insanity. You have brought me hope in times of Fear,Laughter in times of sorrw and most of all Love and Light I will teasure forever.

      ONE NIGHT AT A PARTY MY DAUGHTERS HAD THE SONG   YOU ARE SIMPLY THE BEST, BETTER THAN ALL THE REST playerd for me. I  dediacate this song to all of you.  HANG TOUGH.. NEVER EVER EVER GIVE UP HOPE.  and To each and everyone of you I dedicate my song to my daughters.  Celine Dion  BECAUSE YOU LOVED ME.  Many years ago I also dedicated that song to two people I met on MPIP who are a huge part of my life to this day… Chip and Bonnie whose strngth and courage helped me through the most difficult time of my life. Despite the fact they were in the mdst of a very diffcult time of their own they were ther then and continue to be with me today.. 12 years later. Thang you All.

      Love and Ligth

      Carole K

      IF I CAN BE OF ANY HELP EM AIL ME ATmm MMPatientSupport@aol.com  

      LOVE AND LIGHT

      CAROLE

    Viewing 14 reply threads
    • Replies
        Janner
        Participant

          Hey Carole,

          So good to see you posting!  Long time!  Glad everything is going well for you and you and NED are doing well together.  You need to pop in here a bit more often.

          Cheers,

          Janner

          Janner
          Participant

            Hey Carole,

            So good to see you posting!  Long time!  Glad everything is going well for you and you and NED are doing well together.  You need to pop in here a bit more often.

            Cheers,

            Janner

            Janner
            Participant

              Hey Carole,

              So good to see you posting!  Long time!  Glad everything is going well for you and you and NED are doing well together.  You need to pop in here a bit more often.

              Cheers,

              Janner

              DeniseK
              Participant
                Hi Carol,
                Truly beautiful and inspiring words. We ARE ALL INDIVIDUALS and I say don’t stop believing! Thank you so much for posting ♥
                All my best,
                Denise
                DeniseK
                Participant
                  Hi Carol,
                  Truly beautiful and inspiring words. We ARE ALL INDIVIDUALS and I say don’t stop believing! Thank you so much for posting ♥
                  All my best,
                  Denise
                  DeniseK
                  Participant
                    Hi Carol,
                    Truly beautiful and inspiring words. We ARE ALL INDIVIDUALS and I say don’t stop believing! Thank you so much for posting ♥
                    All my best,
                    Denise
                    Fen
                    Participant

                      Carole – you are an amazing and inspriational woman.  Thank you for posting and offering hope and prayers to all.  Fen

                      Fen
                      Participant

                        Carole – you are an amazing and inspriational woman.  Thank you for posting and offering hope and prayers to all.  Fen

                        Fen
                        Participant

                          Carole – you are an amazing and inspriational woman.  Thank you for posting and offering hope and prayers to all.  Fen

                          Ali
                          Participant

                            Grandkids are my goal!  Hooray for you!  Love your perspective…

                            Ali

                            Ali
                            Participant

                              Grandkids are my goal!  Hooray for you!  Love your perspective…

                              Ali

                              Ali
                              Participant

                                Grandkids are my goal!  Hooray for you!  Love your perspective…

                                Ali

                                MissyA
                                Participant

                                  So good to see you post…..was just thinking about Ashville NC and how much fun we had! I am Grandma too!! It will be 15 yrs this year!!! I look like someone's failed biology project but I am still going strong!!

                                  MissyA
                                  Participant

                                    So good to see you post…..was just thinking about Ashville NC and how much fun we had! I am Grandma too!! It will be 15 yrs this year!!! I look like someone's failed biology project but I am still going strong!!

                                    MissyA
                                    Participant

                                      So good to see you post…..was just thinking about Ashville NC and how much fun we had! I am Grandma too!! It will be 15 yrs this year!!! I look like someone's failed biology project but I am still going strong!!

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