Turn left, no, turn right!

› Forums › General Melanoma Community › Turn left, no, turn right!

  • Post
    • January 30, 2015 at 5:35 am
    _Paul_
    Participant

      Just met with my oncologist today and I am going to start Keytruda on Tuesday. I was originally thinking to go with TIL if I showed progression from the Yervoy/radiation trial (RAD-VAX) I recently completed. However I just had a PET scan as part of the trial protocol, and it showed a new tumor at the back of my left shoulder blade and something weird lighting up between the toes of my right foot.

      It will be weeks yet before I even know if the SCCA can harvest seed TIL from a large tumor that was growing inside my gallbladder which was removed last week.

      My oncologist said my disease burden is low right now and since anti-PD-1 seems to be more successful when the burden is low, this seems to be the opportune time to give it a whirl. In a few weeks if the TIL can be grown, SCCA will store it cryogenically. So that will become my new plan B.

      Like I have heard many people say here, now that I have made a decision (with the help of my oncologist) I need to stick with it and not look back.

      Gotta say though, it feels like setting sail on a spaceship with destination unknown! But then again, I always did want to visit space… 😎

      – Paul.

    Viewing 5 reply threads
    • Replies
        • January 30, 2015 at 7:48 am
        JustMeInCA
        Participant

          I think that was a wise decision, as you seem to be at the perfect point to start a PD-1. I hope it works wonders!

          • January 30, 2015 at 7:48 am
          JustMeInCA
          Participant

            I think that was a wise decision, as you seem to be at the perfect point to start a PD-1. I hope it works wonders!

            • January 30, 2015 at 7:48 am
            JustMeInCA
            Participant

              I think that was a wise decision, as you seem to be at the perfect point to start a PD-1. I hope it works wonders!

                • January 30, 2015 at 10:42 am
                Jubes
                Participant

                  So far my tumours are shrinking on keytruda and I hope all the best for you with yours!

                  jubes

                  • January 30, 2015 at 10:42 am
                  Jubes
                  Participant

                    So far my tumours are shrinking on keytruda and I hope all the best for you with yours!

                    jubes

                    • January 30, 2015 at 10:42 am
                    Jubes
                    Participant

                      So far my tumours are shrinking on keytruda and I hope all the best for you with yours!

                      jubes

                      • January 30, 2015 at 2:10 pm
                      _Paul_
                      Participant

                        Thanks Jubes, sounds good to me!

                        • January 30, 2015 at 2:10 pm
                        _Paul_
                        Participant

                          Thanks Jubes, sounds good to me!

                          • January 30, 2015 at 2:10 pm
                          _Paul_
                          Participant

                            Thanks Jubes, sounds good to me!

                            • January 30, 2015 at 2:09 pm
                            _Paul_
                            Participant

                              Thanks Elaine. I hope so to!

                              • January 30, 2015 at 2:09 pm
                              _Paul_
                              Participant

                                Thanks Elaine. I hope so to!

                                • January 30, 2015 at 2:09 pm
                                _Paul_
                                Participant

                                  Thanks Elaine. I hope so to!

                                • January 30, 2015 at 1:37 pm
                                Bubbles
                                Participant

                                  Sorry, Paul.  Melanoma is like a box of chocolates….!!!!  But, Keytruda just now really does sound like a good treatment presto-chango to me.  Many melanoma big dogs (and research is proving them out) posited a couple of years ago that an anti-PD1 and ipi combo…or sequential administration…could provide better results than the products alone.  You are just sequencing!!! I know changing paths gets tiresome.  But, I really hope this spaceship takes you where you need to go!  celeste

                                  • January 30, 2015 at 1:37 pm
                                  Bubbles
                                  Participant

                                    Sorry, Paul.  Melanoma is like a box of chocolates….!!!!  But, Keytruda just now really does sound like a good treatment presto-chango to me.  Many melanoma big dogs (and research is proving them out) posited a couple of years ago that an anti-PD1 and ipi combo…or sequential administration…could provide better results than the products alone.  You are just sequencing!!! I know changing paths gets tiresome.  But, I really hope this spaceship takes you where you need to go!  celeste

                                    • January 30, 2015 at 1:37 pm
                                    Bubbles
                                    Participant

                                      Sorry, Paul.  Melanoma is like a box of chocolates….!!!!  But, Keytruda just now really does sound like a good treatment presto-chango to me.  Many melanoma big dogs (and research is proving them out) posited a couple of years ago that an anti-PD1 and ipi combo…or sequential administration…could provide better results than the products alone.  You are just sequencing!!! I know changing paths gets tiresome.  But, I really hope this spaceship takes you where you need to go!  celeste

                                        • January 30, 2015 at 2:11 pm
                                        _Paul_
                                        Participant

                                          Thanks Celeste! I guess I am beginning to understand why people use the term "journey".

                                          • January 30, 2015 at 2:11 pm
                                          _Paul_
                                          Participant

                                            Thanks Celeste! I guess I am beginning to understand why people use the term "journey".

                                            • January 30, 2015 at 2:11 pm
                                            _Paul_
                                            Participant

                                              Thanks Celeste! I guess I am beginning to understand why people use the term "journey".

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